Re: seeking advice, suggestions, ideas, anything!

December 9, 2004

I don't remember him telling me about my thyroid dumping. It was my

second RAI treatment. The first was probably 7 or 8 mos ago. As

far as the labs go i only know that my tsh was at 35 when he

perscribed the levoxyl, and it was 29 maybe a month ago when i had

the most recent blood test. I have to go in for a blood test this

coming week i'll ask for a copy of the results. I haven't ever done

the before, because i have no idea what i'm looking at, but i'm

certainly willing to learn.

> Mike, it takes some time for many people's thyroid to literally

quit functioning. You're most likely feeling the effects of the RAI

that is still doing it's job, killing off the thyroid, which is

causing the hyper symptoms you describe. Since you don't mention

any testing, you would need to get copies of the labs with ranges and

post those also.

>

> Did your Dr not tell you that this dumping of the thyroid hormones

would happen? If not, shame on him. A lot of dr's will not put you

on replacement therapy so soon, but will give a prescription for

atd's which will help. I'm curious why your dr didn't do this. Was

this your first dose of RAI? And how much info did the dr share with

you on how this works.

>

> SandyE~Houston

> seeking advice, suggestions,

ideas, anything!

>

> Hi, I don't really know what to say here. I've seen numerous

dr's

> over the past 3 mos and they all tell me basically that i can't

be

> experiencing any kind of reaction from levoxyl, that it's

something

> else causing it. I am supposed to be taking 100 mcg of levoxyl a

> day, but i can only tolerate 50. I've tried numerous time to

take

> the 100, but after 3 days or so it is just too strong in my

system.

> I'm not supposed to feel it at all or to be able to even tell

it's

> there. It causes panic attacks, extreme anxiety, about 8 hrs

after i

> take it i get very hot like i was when i was hyperthyroid. An

hour

> and a half or so after i take it i feel like my brain is cooking,

i

> feel very speedy, as if i've taken several caffine pills. I

don't do

> well on caffine either, in fact i completely cut caffine out of

my

> diet a few years ago. One cup of coffee makes me all shaky and

> nervous. I stopped taking the levoxyl all together for 4 days a

> couple weeks ago just because i felt i had to, and after a couple

> days all the anxiety went away. I felt sooooo much better, but

after

> the 4th day or so the hypo symptoms came back as far as the stiff

> muscles, and muscle cramps, and my face feeling puffy, things

like

> that. The levoxyl definately helps with the hypo symptoms, but i

> don't want to feel like i'm losing my mind in order for my body

to

> feel normal. I'm going to have to take this stuff for the rest

of my

> life as i'm sure is the case with most if not all of us, i just

want

> to take something that i can take, i don't care what it is. Does

> anyone have any idea why levoxyl would cause these side effects

in me

> or what i can tell the endo in order for him to take it

seriously,

> what kind of tests i can have him run in order to determine if

> somethign else is not right. It's almost as if i have too much

t3 in

> my body after 8 hrs or so, i don't know it's so hard to describe.

My

> mother, and one sister both take synthroid and " can't even tell

it's

> in their system " i whish that were the case with me. I don't

mind

> taking whatever i need to take, i just want to be able to take

it. I

> don't currently have insurance, so basically i have to deal with

this

> one endocranologist. So far he hasn't been at all sympathetic,

i've

> only been able to talk to his nurse though thus far. She relays

the

> messages, and all i've gotten from him is " keep taking it " I've

> gained 40 lbs since the rai treatments 4 mos ago or so, i want to

> start working out again, I'd love to have my life back. I

actually

> felt better when i hade graves i think. needless to say i'm

more

> than a little frustrated. I may have repeated some of this in

earlier

> posts, and if it's getting redundent i appologize, i'm just at a

loss

> as to what to do here. I just want to be able to go out and

function

> everyday. Anyway, thanks for you time, and advice.

> Mike

>

December 9, 2004

Mike, it takes some time for many people's thyroid to literally quit

functioning. You're most likely feeling the effects of the RAI that is still

doing it's job, killing off the thyroid, which is causing the hyper symptoms you

describe. Since you don't mention any testing, you would need to get copies of

the labs with ranges and post those also.

Did your Dr not tell you that this dumping of the thyroid hormones would happen?

If not, shame on him. A lot of dr's will not put you on replacement therapy so

soon, but will give a prescription for atd's which will help. I'm curious why

your dr didn't do this. Was this your first dose of RAI? And how much info did

the dr share with you on how this works.

SandyE~Houston

seeking advice, suggestions, ideas,

anything!

Hi, I don't really know what to say here. I've seen numerous dr's

over the past 3 mos and they all tell me basically that i can't be

experiencing any kind of reaction from levoxyl, that it's something

else causing it. I am supposed to be taking 100 mcg of levoxyl a

day, but i can only tolerate 50. I've tried numerous time to take

the 100, but after 3 days or so it is just too strong in my system.

I'm not supposed to feel it at all or to be able to even tell it's

there. It causes panic attacks, extreme anxiety, about 8 hrs after i

take it i get very hot like i was when i was hyperthyroid. An hour

and a half or so after i take it i feel like my brain is cooking, i

feel very speedy, as if i've taken several caffine pills. I don't do

well on caffine either, in fact i completely cut caffine out of my

diet a few years ago. One cup of coffee makes me all shaky and

nervous. I stopped taking the levoxyl all together for 4 days a

couple weeks ago just because i felt i had to, and after a couple

days all the anxiety went away. I felt sooooo much better, but after

the 4th day or so the hypo symptoms came back as far as the stiff

muscles, and muscle cramps, and my face feeling puffy, things like

that. The levoxyl definately helps with the hypo symptoms, but i

don't want to feel like i'm losing my mind in order for my body to

feel normal. I'm going to have to take this stuff for the rest of my

life as i'm sure is the case with most if not all of us, i just want

to take something that i can take, i don't care what it is. Does

anyone have any idea why levoxyl would cause these side effects in me

or what i can tell the endo in order for him to take it seriously,

what kind of tests i can have him run in order to determine if

somethign else is not right. It's almost as if i have too much t3 in

my body after 8 hrs or so, i don't know it's so hard to describe. My

mother, and one sister both take synthroid and " can't even tell it's

in their system " i whish that were the case with me. I don't mind

taking whatever i need to take, i just want to be able to take it. I

don't currently have insurance, so basically i have to deal with this

one endocranologist. So far he hasn't been at all sympathetic, i've

only been able to talk to his nurse though thus far. She relays the

messages, and all i've gotten from him is " keep taking it " I've

gained 40 lbs since the rai treatments 4 mos ago or so, i want to

start working out again, I'd love to have my life back. I actually

felt better when i hade graves i think. needless to say i'm more

than a little frustrated. I may have repeated some of this in earlier

posts, and if it's getting redundent i appologize, i'm just at a loss

as to what to do here. I just want to be able to go out and function

everyday. Anyway, thanks for you time, and advice.

Mike

December 9, 2004

Hi Mike. I'm really sorry to read about your current frustration.

Let me assure you that this WILL pass eventually. To Sandy's great

response, I also want to add that your symptoms sound strongly like

an overreacting adrenal gland, as well, or can even be the result of

sluggish adrenals. If your adrenals aren't functioning properly, the

thyroid hormones OVERbuild in your system, causing those kind of

symptoms. There is a good adrenal test from a lab called ZRT--it's a

saliva test, and you don't need a prescription. You can check it out

in our LINKS section. It will give you more information to figure

this out.

Additionally, you might want to get your Ferritin tested. LOTS of us

have had intensely low Ferritin, which can also cause the symptoms

you describe, even though they sound more like an adrenal issue.

You need to chuck those Endo's. They are the absolute worst for good

thyroid care. The fact that you are on Levoxyl, which is a T4-only

med, and not Armour is another good reason to find a better doc.

Where are you located?

I'm sure you will get other good responses, too, and will eventually

figure this all out. And Mike, once you do get a handle on this,

please don't be complacent about being on a T4-only med, even if

your sister and mom are. Armour is a FAR FAR better thyroid

treatment than T4-only meds. It gives you exactly what your own

thyroid would be giving you. Your sister and mother have symptoms

related to an inferior treatment that they are probably not aware of.

There is a good reason this group is here: because we found out the

hard way about T4-only meds. They are a poor treatment.

Janie

>

> Hi, I don't really know what to say here. I've seen numerous dr's

> over the past 3 mos and they all tell me basically that i can't be

> experiencing any kind of reaction from levoxyl, that it's

something

> else causing it. I am supposed to be taking 100 mcg of levoxyl a

> day, but i can only tolerate 50. I've tried numerous time to take

> the 100, but after 3 days or so it is just too strong in my

system.

> I'm not supposed to feel it at all or to be able to even tell it's

> there. It causes panic attacks, extreme anxiety, about 8 hrs

after i

> take it i get very hot like i was when i was hyperthyroid. An

hour

> and a half or so after i take it i feel like my brain is cooking,

i

> feel very speedy, as if i've taken several caffine pills. I don't

do

> well on caffine either, in fact i completely cut caffine out of my

> diet a few years ago. One cup of coffee makes me all shaky and

> nervous. I stopped taking the levoxyl all together for 4 days a

> couple weeks ago just because i felt i had to, and after a couple

> days all the anxiety went away. I felt sooooo much better, but

after

> the 4th day or so the hypo symptoms came back as far as the stiff

> muscles, and muscle cramps, and my face feeling puffy, things like

> that. The levoxyl definately helps with the hypo symptoms, but i

> don't want to feel like i'm losing my mind in order for my body to

> feel normal.

December 10, 2004

That sounds like an excellent idea, I've tried though. Unfortunately

I don't have insurance currently, so i'm going through the county

hospital, they only have one endo and he refuses to change the med.

He says it can't possibly be bothering me. I've done walk in's and

even tried the emergency room to get it changed, but they all say

he's the " expert " and refuse to step on his toes. That's the

frustrating thing. I finally have an appt with him next thursday

after 3 months of trying to take this stuff, and was hoping for some

suggestions of tests i can have him run to confirm that i can't take

this med. I've tried everything i can think of to get them to change

it. I don't even care what i take i just want to be able to take it

and not have the cure be worse than the disease.

> Mike,

> There are many thyroid replacement drugs on the market. You should

try the

> various ones until you find one that works with your body. I could

not

> tolerate the synthetic drugs and went on the natural form

(Armour). Most of

> the side effects you are descibing I had on synthyroid and Leveoxyl

and

> Unithyroid. I would recommend asking the doc for a different brand

and work

> through the various brands until you find one that works for you.

Hope this

> helps.

>

> Regards,

> LaCretia

>

> >From: " Mike " <mbennett34@y...>

> >Reply-To: NaturalThyroidHormones

> >To: NaturalThyroidHormones

> >Subject: seeking advice, suggestions,

ideas,

> >anything!

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> >

> >Hi, I don't really know what to say here. I've seen numerous dr's

> >over the past 3 mos and they all tell me basically that i can't be

> >experiencing any kind of reaction from levoxyl, that it's something

> >else causing it. I am supposed to be taking 100 mcg of levoxyl a

> >day, but i can only tolerate 50. I've tried numerous time to take

> >the 100, but after 3 days or so it is just too strong in my system.

> >I'm not supposed to feel it at all or to be able to even tell it's

> >there. It causes panic attacks, extreme anxiety, about 8 hrs

after i

> >take it i get very hot like i was when i was hyperthyroid. An hour

> >and a half or so after i take it i feel like my brain is cooking, i

> >feel very speedy, as if i've taken several caffine pills. I don't

do

> >well on caffine either, in fact i completely cut caffine out of my

> >diet a few years ago. One cup of coffee makes me all shaky and

> >nervous. I stopped taking the levoxyl all together for 4 days a

> >couple weeks ago just because i felt i had to, and after a couple

> >days all the anxiety went away. I felt sooooo much better, but

after

> >the 4th day or so the hypo symptoms came back as far as the stiff

> >muscles, and muscle cramps, and my face feeling puffy, things like

> >that. The levoxyl definately helps with the hypo symptoms, but i

> >don't want to feel like i'm losing my mind in order for my body to

> >feel normal. I'm going to have to take this stuff for the rest of

my

> >life as i'm sure is the case with most if not all of us, i just

want

> >to take something that i can take, i don't care what it is. Does

> >anyone have any idea why levoxyl would cause these side effects in

me

> >or what i can tell the endo in order for him to take it seriously,

> >what kind of tests i can have him run in order to determine if

> >somethign else is not right. It's almost as if i have too much t3

in

> >my body after 8 hrs or so, i don't know it's so hard to describe.

My

> >mother, and one sister both take synthroid and " can't even tell

it's

> >in their system " i whish that were the case with me. I don't mind

> >taking whatever i need to take, i just want to be able to take

it. I

> >don't currently have insurance, so basically i have to deal with

this

> >one endocranologist. So far he hasn't been at all sympathetic,

i've

> >only been able to talk to his nurse though thus far. She relays

the

> >messages, and all i've gotten from him is " keep taking it " I've

> >gained 40 lbs since the rai treatments 4 mos ago or so, i want to

> >start working out again, I'd love to have my life back. I actually

> >felt better when i hade graves i think. needless to say i'm more

> >than a little frustrated. I may have repeated some of this in

earlier

> >posts, and if it's getting redundent i appologize, i'm just at a

loss

> >as to what to do here. I just want to be able to go out and

function

> >everyday. Anyway, thanks for you time, and advice.

> > Mike

> >

December 11, 2004

Mike, I was visiting my brother the other night at the county hospital (he's

just had a double bypass) and while all of us women in the room were talking, I

found out there were 6 or 7 of us who are hypoT.

Everyone of these women is having to depend on the dr's thru the hospital

district and they are all being given Levoxyl or Synthroid. They all had

complaints. Some gained a lot of weight, some had hair falling out, and all

complaints fell on the dr's deaf ears.

I of course had to tell them about armour thyroid and that I refused to take any

T4 supplement which didn't work for me. I'm simply amazed at the things these

people are having to go through because a dr who does not have hypothyroidism

says they are 'fine'. It only confirms why I've chosen the route I've taken

with self medicating. I really have a 'thing' for Endo's and it's not a 'good

thing'. If they had this disease, they'd be doing backflips to feel better, and

that I'd bet on. (I only bet on sure things btw). :-)

SandyE~Houston

seeking advice, suggestions,