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Re: BHR/Sharry/Newbies

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Thanks, Sharry,

I appreciate your support. I am very seriously considering your

guy. I still think that Treacy is an excellent surgeon (I wouldn't

have chosen him the first time if he wasn't), and I am certainly

grateful to him for his role in developing the BHR. But even the

best surgeons occasionally have less than optimum, or even

tragic, outcomes. No one bats 1000% at all times. And every

patient presents a unique morphology and different set of

problems that have to be taken into account.

My point in airing my situation was to seek input and advice

(yours, like Cindy's and some other patients, has been most

helpful and appreciated), to alert newbies to the possibility of

length lengthening, and to give some prescriptive steps on how

to avoid the same fate.

I think in my case he added a few extra millimeters to the hip,

and that, with the slight pre-existing differential in my tibia, put

things over the top from an unsensed difference into a

lopsidedness that is a real pain in the. . . . you know. Had the

surgeon measured me pre-op, I'm sure this could have all been

avoided. And had I known that leg lengthening was a possibility,

I would not have consented to being operated upon unless he

took five minutes to do so.

I just now received an e-mail from his secretary apologizing for

the most recent runaround & mismanagement of my e-mails.

She says he is willing to speak to me on the phone. (Which

made me wonder if they're following this thread.) I am now

mulling whether to forgive and work things through or to plunge

into The Belgian Option. While reluctant at first, I have gradually

warmed to the idea of getting my second hip fixed in a different

country and by a different surgeon so that I might compare the

experiences. I'm sure newbies comparing the Belgian-English

choice would welcome a comparison!

Thank heaven for such an array of options.

I just spoke to a 35 year old who got a THR at age 25 and is

facing a revision because the polyethelene is degrading. (Her

surgeon, interestingly enough, is now participating in the FDA

resurfacing trials.) I only wish she was fortunate enough to have

the same choices we now have. At age 10, she fell down and

dislocated her hip. For the next 15 years, the docs here told first

her mother, and then her, that the resulting pain was wholely

imagined and her limp a psychiatric symptom because they

couldn't find anything wrong with her knee. (She had a lot of

referred pain there.) Finally, she found an ortho who did a whole

body scan and pinpointed the problem. Just goes to show that

as patients, we are best advised to be proactive and our own

advocates.

Sorry for going on so - all the very best to you,

Sheila

> > > In a message dated 11/19/2003 12:35:05 PM Pacific

> Standard

> > Time,

> > > david.vale@b... writes:

> > > These are the two who jointly developed BHR and (I

believe)

> > both have

> > > done more of these ops than anyone else, ever.

> > >

> > > Choosing between them would be like deciding whether

> your

> > hospital

> > > dinner should be cooked by Gordon Ramsey or

> Le

> > Blanc. You

> > > cannot make a bad decision.

> > > I agree with this sentiment, and I had both of mine done

by

> > Treacy.

> > >

> > > Des Tuck

> > > 10/01 and 5/03

> > >

> > >

> > >

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Hi Sheila

It can't hurt to get an opinion from Dr De Smet, even if you decide eventually

to go with Treacy again. I find that just being able to compare what the

different docs say helps me enormously in my decision making. Comparison

shopping....that's the ticket..

Sharry

Re: BHR/Sharry/Newbies

Thanks, Sharry,

I appreciate your support. I am very seriously considering your

guy. I still think that Treacy is an excellent surgeon (I wouldn't

have chosen him the first time if he wasn't), and I am certainly

grateful to him for his role in developing the BHR. But even the

best surgeons occasionally have less than optimum, or even

tragic, outcomes. No one bats 1000% at all times. And every

patient presents a unique morphology and different set of

problems that have to be taken into account.

My point in airing my situation was to seek input and advice

(yours, like Cindy's and some other patients, has been most

helpful and appreciated), to alert newbies to the possibility of

length lengthening, and to give some prescriptive steps on how

to avoid the same fate.

I think in my case he added a few extra millimeters to the hip,

and that, with the slight pre-existing differential in my tibia, put

things over the top from an unsensed difference into a

lopsidedness that is a real pain in the. . . . you know. Had the

surgeon measured me pre-op, I'm sure this could have all been

avoided. And had I known that leg lengthening was a possibility,

I would not have consented to being operated upon unless he

took five minutes to do so.

I just now received an e-mail from his secretary apologizing for

the most recent runaround & mismanagement of my e-mails.

She says he is willing to speak to me on the phone. (Which

made me wonder if they're following this thread.) I am now

mulling whether to forgive and work things through or to plunge

into The Belgian Option. While reluctant at first, I have gradually

warmed to the idea of getting my second hip fixed in a different

country and by a different surgeon so that I might compare the

experiences. I'm sure newbies comparing the Belgian-English

choice would welcome a comparison!

Thank heaven for such an array of options.

I just spoke to a 35 year old who got a THR at age 25 and is

facing a revision because the polyethelene is degrading. (Her

surgeon, interestingly enough, is now participating in the FDA

resurfacing trials.) I only wish she was fortunate enough to have

the same choices we now have. At age 10, she fell down and

dislocated her hip. For the next 15 years, the docs here told first

her mother, and then her, that the resulting pain was wholely

imagined and her limp a psychiatric symptom because they

couldn't find anything wrong with her knee. (She had a lot of

referred pain there.) Finally, she found an ortho who did a whole

body scan and pinpointed the problem. Just goes to show that

as patients, we are best advised to be proactive and our own

advocates.

Sorry for going on so - all the very best to you,

Sheila

> > > In a message dated 11/19/2003 12:35:05 PM Pacific

> Standard

> > Time,

> > > david.vale@b... writes:

> > > These are the two who jointly developed BHR and (I

believe)

> > both have

> > > done more of these ops than anyone else, ever.

> > >

> > > Choosing between them would be like deciding whether

> your

> > hospital

> > > dinner should be cooked by Gordon Ramsey or

> Le

> > Blanc. You

> > > cannot make a bad decision.

> > > I agree with this sentiment, and I had both of mine done

by

> > Treacy.

> > >

> > > Des Tuck

> > > 10/01 and 5/03

> > >

> > >

> > >

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