Re: Pulmo visit tomorrow

[Guest guest]

Jeane

how far south can you drive

maybe we can meet somewhere between Philly and Hazelton for lunch or dinner

do you have someone who can drive you?Pink Joyce IPF 3/06 Pennsylvania

Subject: Re: Pulmo visit tomorrowTo: Breathe-Support Date: Wednesday, December 3, 2008, 8:22 PM

I just got home a little while from the doctor's. Took a detour and stopped at this wonderful place to have some ribs. I considered it my reward for going thru the pulmonary function torture and the 6 minute or till you crook walk.My functions took a significant drop (10 %) across the board pretty much. But this is the first real serious drop at one time like that. My DLCO is now 42% but I refuse to let things get me down. It could be worse - that could have been my highest # instead of one of the lower ones. I will still keep on going on and fighting this. Heck sure beats the alternative. Why waste what time I have left on a pity party. I knew that there would be tests like this at times. I'm not happy with it but there is little I can do about it except use it to make me more determined to fight and find voices to yell about it for all of us.Maybe I will figure out a way to contact

Obama's office again like I did before election day. I need to give him something more to think about besides which fortune 500 company needs a bailout next. We need a bailout here and now.