Hi, everybody/welcome to Robin

[Guest guest]

I awaken! LOL

I've been offline for several weeks now due to multiple things, mostly

physical incapacity on my own part, but am fighting and clawing my way back

by inches now. Welcome, Robin & Jo! As Sue Ginley (my dear, brave

friend who suffers much and complains little) said, you will find many

friends here who truly understand all the strange and sometimes scary and

painful things your body does. I, too have hypermobile joints. My two sons

and I have all been diagnosed with first EDS Hypermobility Type, and now

also with Classical EDS as well (yes, a person can have more than one EDS

type), and have many attendant health concerns, including severe autonomic

nervous system dysfunctions. Other members, and Caro and , and

others, too, manifest some of these type problems as well. Fortunately for

me and my teenage sons, the Vascular Type was ruled out. Others are not so

fortunate. Have you had the skin biopsy done? I've had 15 surgeries, all

EDS related, including some for stabilization. My shoulders, fingers, and

hips all sublux/dislocate easily. I have pale, thin, translucent fair skin

with prominent veins (which won't support IV's well at all). My skin tears,

bruises, and scars easily. My story is like many you will hear. Brace

yourself, literally. It's so good to have new members, and so very good

to feel like sitting up at my computer for a few minutes today.

Love,

~LoneStarRose~

(~~)