An overdue update.....

[Guest guest]

Sorry it has taken us so long to update but we just got back to

California on Monday night, and we have been trying to adjust our

schedules back to west coast time!

If you don't remember I was having doubts about the treatment and

overall correction of my daughters feet. She is 2 1/2 and at about

3 weeks old began initial treatment with Dr. Ponseti. We live in

Southern California and have done follow-up with Dr. Early @

CHLA, and Dr. King in Tarzana. Our last visit with Dr. King

about 6 weeks ago we were told that Becky was going to need to wear a

brace on her right foot similar to an AFO and then continue with the

FAB at night, and that there was a possiblity of ATTT later on. The

next day I was on the phone with Dr. Ponseti and was convinced that

we needed to take her back to Iowa City to be checked out.

We had a nice trip. We drove from LosAngeles, to Burlington, IA (my

IL's live there) I think that it is 37 total driving hours (we

stopped over 2 nights) and with a 5 year old and a 2 year old

things went surprisingly smooth.

The next day we went up to Iowa City and spent the night in the

Mc house (we were expecting to be casted/possible ATTT)

and prepared for appointment the next morning. We saw Dr. Ponseti

and boy is he just as wonderful as ever!!! He was there with

another doctor that he was training (I didn't get his name, I was

busy occuping the kids LOL) But it looks like there is something

going on with Becky's feet. He decided not to cast her yet, as that

isn't really going to help? It is something with the tendons in her

feet that only happens in about 5-10% of cases. She still has alot

of flexiblity, and that is good He upped her hours in the FAB

to 14 (she was down to 10-12) and told me that if I discontinued

the brace she would surely relapse. I assured him that we have come

this far in treatment we are not about to stop following the doctors

orders now! LOL He wants to closely monitor her and I guess he is

going to decide next year if she is going to need the ATTT or not.

I am real sketchy on all of the particulairs as I was there with the

2 kids alone, and they were up to no good LOL But Dr. Ponseti as

well as the doctor that was there consulting/training with him were a

very puzzled by her feet and spent a great deal of time with her. I

am going to email him next week to get all of the information I can

about what is going on, it will be better for me I think to have it

all in writing.

Sorry this has turned into such a long post. I will keep you all

updated as I find things out.

and Becky 2 1/2, bilateral clubfoot