Want to spread the word -- please help

[Guest guest]

Hello all,

I would like to start spreading the word about this method here in

the Lansing, Michigan area. However, since I am a Grandma to a bcf

baby that was born in California, I don't know how to go about

contacting new parents of cf babies. Any suggests on how to go

about that? I have looked on DrP site, and there are no recommended

doctors in the Michigan area.

Any ideas would be appreciated.

Sally

(Logan's (bcf 06-05-04) & Meegan's Grandma " Boo " )

[Guest guest]

What about a newspaper article in a Sunday Feature? And posters around

baby-related stores, etc.?

s.

Want to spread the word -- please help

Hello all,

I would like to start spreading the word about this method here in

the Lansing, Michigan area. However, since I am a Grandma to a bcf

baby that was born in California, I don't know how to go about

contacting new parents of cf babies. Any suggests on how to go

about that? I have looked on DrP site, and there are no recommended

doctors in the Michigan area.

Any ideas would be appreciated.

Sally

(Logan's (bcf 06-05-04) & Meegan's Grandma " Boo " )

[Guest guest]

I was thinking the same thing! I did not know until my son was born

that he will have a clubfoot. So I thought since baby's are usually

delivered/or diagnosed already in the belly by the OB/Gyn doctor I

will give some Information to my doctor. I did this yesterday and

this woman was very thankful and ask if she could forward it to

other doctors. I told her how dissappointing it was not to get

enough information and to be referred to an ignorant orthopedic

surgeon. This was in Southern California. I thought maybe that's a

good way to go since those doctors deal with parents of Clubfoot

babys.

Good luck

Kody 2/1/04 rt atyp CF 23/7 DBB

Serendy 6/29/02

> Hello all,

>

> I would like to start spreading the word about this method here in

> the Lansing, Michigan area. However, since I am a Grandma to a

bcf

> baby that was born in California, I don't know how to go about

> contacting new parents of cf babies. Any suggests on how to go

> about that? I have looked on DrP site, and there are no

recommended

> doctors in the Michigan area.

>

> Any ideas would be appreciated.

>

> Sally

> (Logan's (bcf 06-05-04) & Meegan's Grandma " Boo " )

[Guest guest]

I recently made a flyer for a local support group that I and couple

of others here ( & Ruth) have started. We have given it to

our local orthopedic clinic here but are still somewhat unsure if

they are giving it to new parents. As an added measure that the word

gets out, we went up to the fetal assessment unit of the maternity

hospital and asked if they would display the flyer or distribute it

to pregnant mothers who had received a clubfoot diagnosis. I had to

go through the PR department to get the flyer 'approved' first but

after about a month, we made it through all the hoops and they were

glad to have it. It's only been about 2 months but we've yet to hear

from anyone new. At least it's a start!

You may also want to contact the pediatric orthopaedic surgeons in

your area to find out whether or not any of them are practicing the

Ponseti Method - in it's entirety or in part - there may be some who

have switched over but are not listed on Ponseti's site.

When Owen was born, our local clinic had one doctor who had just

begun using the method - with modifications. It wasn't until Owen

was in his fourth cast that I discovered this group and was then able

to become more knowledgeable about his treatment and vocal when it

came to the modifications (deviations) that I was noticing. Owen's

doctor was good about doing things that I specifically asked for

(long leg casts as opposed to below the knee, for instance) but of

course, if not for this group, I would never have known the

difference!

Anyway, good luck and God bless you for wanting to do something about

it!

Daiga and Owen, 02/04/03

> > Hello all,

> >

> > I would like to start spreading the word about this method here

in

> > the Lansing, Michigan area. However, since I am a Grandma to a

> bcf

> > baby that was born in California, I don't know how to go about

> > contacting new parents of cf babies. Any suggests on how to go

> > about that? I have looked on DrP site, and there are no

> recommended

> > doctors in the Michigan area.

> >

> > Any ideas would be appreciated.

> >

> > Sally

> > (Logan's (bcf 06-05-04) & Meegan's Grandma " Boo " )

[Guest guest]

I recently made a flyer for a local support group that I and couple

of others here ( & Ruth) have started. We have given it to

our local orthopedic clinic here but are still somewhat unsure if

they are giving it to new parents. As an added measure that the word

gets out, we went up to the fetal assessment unit of the maternity

hospital and asked if they would display the flyer or distribute it

to pregnant mothers who had received a clubfoot diagnosis. I had to

go through the PR department to get the flyer 'approved' first but

after about a month, we made it through all the hoops and they were

glad to have it. It's only been about 2 months but we've yet to hear

from anyone new. At least it's a start!

You may also want to contact the pediatric orthopaedic surgeons in

your area to find out whether or not any of them are practicing the

Ponseti Method - in it's entirety or in part - there may be some who

have switched over but are not listed on Ponseti's site.

When Owen was born, our local clinic had one doctor who had just

begun using the method - with modifications. It wasn't until Owen

was in his fourth cast that I discovered this group and was then able

to become more knowledgeable about his treatment and vocal when it

came to the modifications (deviations) that I was noticing. Owen's

doctor was good about doing things that I specifically asked for

(long leg casts as opposed to below the knee, for instance) but of

course, if not for this group, I would never have known the

difference!

Anyway, good luck and God bless you for wanting to do something about

it!

Daiga and Owen, 02/04/03

> > Hello all,

> >

> > I would like to start spreading the word about this method here

in

> > the Lansing, Michigan area. However, since I am a Grandma to a

> bcf

> > baby that was born in California, I don't know how to go about

> > contacting new parents of cf babies. Any suggests on how to go

> > about that? I have looked on DrP site, and there are no

> recommended

> > doctors in the Michigan area.

> >

> > Any ideas would be appreciated.

> >

> > Sally

> > (Logan's (bcf 06-05-04) & Meegan's Grandma " Boo " )

[Guest guest]

I recently made a flyer for a local support group that I and couple

of others here ( & Ruth) have started. We have given it to

our local orthopedic clinic here but are still somewhat unsure if

they are giving it to new parents. As an added measure that the word

gets out, we went up to the fetal assessment unit of the maternity

hospital and asked if they would display the flyer or distribute it

to pregnant mothers who had received a clubfoot diagnosis. I had to

go through the PR department to get the flyer 'approved' first but

after about a month, we made it through all the hoops and they were

glad to have it. It's only been about 2 months but we've yet to hear

from anyone new. At least it's a start!

You may also want to contact the pediatric orthopaedic surgeons in

your area to find out whether or not any of them are practicing the

Ponseti Method - in it's entirety or in part - there may be some who

have switched over but are not listed on Ponseti's site.

When Owen was born, our local clinic had one doctor who had just

begun using the method - with modifications. It wasn't until Owen

was in his fourth cast that I discovered this group and was then able

to become more knowledgeable about his treatment and vocal when it

came to the modifications (deviations) that I was noticing. Owen's

doctor was good about doing things that I specifically asked for

(long leg casts as opposed to below the knee, for instance) but of

course, if not for this group, I would never have known the

difference!

Anyway, good luck and God bless you for wanting to do something about

it!

Daiga and Owen, 02/04/03

> > Hello all,

> >

> > I would like to start spreading the word about this method here

in

> > the Lansing, Michigan area. However, since I am a Grandma to a

> bcf

> > baby that was born in California, I don't know how to go about

> > contacting new parents of cf babies. Any suggests on how to go

> > about that? I have looked on DrP site, and there are no

> recommended

> > doctors in the Michigan area.

> >

> > Any ideas would be appreciated.

> >

> > Sally

> > (Logan's (bcf 06-05-04) & Meegan's Grandma " Boo " )