Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Hi, Jasper is free of plasters and it's great to see his little feet. His plasters had gotten quite tight and the skin was very dry and sore but this will clear up now that they are free. We were fitted for boots and bar, size 000. Plan to go and buy some more socks tomorrow. Tamsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 That's great Tamsin. Isn't it the best seeing those little feet again! I touch and kiss Zoe's all of the time. She giggles. It is great! His skin will probably improve really quickly. It's best not to put cream on his feet, even if they are dry. How big are his feet? Louisa 6-27-99 Zoe 2-22-04 RCF FAB 18/7 > Hi, > Jasper is free of plasters and it's great to see his little feet. His plasters had gotten quite > tight and the skin was very dry and sore but this will clear up now that they are free. We > were fitted for boots and bar, size 000. Plan to go and buy some more socks tomorrow. > Tamsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Hey Congratulations! s. Jasper's feet Hi, Jasper is free of plasters and it's great to see his little feet. His plasters had gotten quite tight and the skin was very dry and sore but this will clear up now that they are free. We were fitted for boots and bar, size 000. Plan to go and buy some more socks tomorrow. Tamsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 Hey Tasmin, So, how's it going? I'm hoping since we haven't heard from you that everything is just great. I love the name Jasper too! Kori At 12:03 AM 8/23/2004, you wrote: >Hi, >Jasper is free of plasters and it's great to see his little feet. His >plasters had gotten quite >tight and the skin was very dry and sore but this will clear up now that >they are free. We >were fitted for boots and bar, size 000. Plan to go and buy some more >socks tomorrow. >Tamsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 > So, how's it going? I'm hoping since we haven't heard from you that > everything is just great. I love the name Jasper too! > > Kori > \ Hi, I wrote a huge reply and even though this computer told me it went through, it hasn't come up on the list, so (incase it does sorry for the repeat) here goes. Not much sleep! About 3 hrs each night, although Jasper got heaps more than that - he can sleep in our arms realy well! He woke constantly for the first three nights but tonight seems great so far. Although our doctor is Ponseti certified, we have the DBB for 15hrs and do manipulations every 2 hrs when they are off. We have an appointment in 4 weeks so we'll see how this goes as we were expecting 23hrs wear each day. We have been agonising over whether to follow the doctor's 12hrs/night or go 23hrs, and have compromised at 15hrs straight wear for the 4 weeks - if he'll need more casting... well we'll tackle that if we get there. I'm hoping we'll notice any changes in his correcton. Yesterday we tried putting them on earlier (at 3pm) and we had one VERY angry boy. He wouldn't settle and tried to kick them off and cried. At 5pm I took them off to check them and rubbed his feet - there were no sore spots so it was pure frustration, and when they went back on it took ages to settle him and we had to cuddle him (even in his sleep) until midnight, then he woke from 3-4am, them again at 7 and they came off at 8. I have been lifting and moving the bar following his little movements to try and help him get used to it but it only made him madder. Tonight though, things worked a treat. We plan to make them part of his bedtime routine. He had a bath, then half a feed, then DBB (by this time it was 5pm), then the other half of the feed, then a play on the rug until he got sleepy and into bed with a book at 6pm. He woke crying at 7pm and had to be cuddled back to sleep - violently kicking those little feet at us- but has been sleeping since - it's now 9pm. So hopefully tonight will bring everyone sleep and this is how he will take to the boots and isn't just because he is tired out from the last few nights. It seems much easier when it is bedtime and he can just forget about his feet and go to sleep. Jasper's feet have no big sores so far, on the first night we had the straps in the top slit and the heels seemed down and no sore bits checking two hourly. Night 2 we moved the straps down but there was crying and carrying on after about an hours wear and on checking they had been biting into his feet - so back to the upper slots and all OK (he has little but chubby feet). There was a tiny sore on the top of the feet where the strap goes through the tongue but this turned into a tiny scab (the size of half a poppy seed) and has now disappeared. Tonight I am not sure if his right foot is in properly - I tried three times but cant tighten the strap further without causing a cranky boy, I think he has curled his toes up and I am not sure if this is affecting the wear - the heel appears to be in the right place - bent knee and dorsifexed I cant push it in any further. The size of his shoes is 000 but each foot is different as they come to different points in his boots (his right foot was always stiffer than his left and is about 5mm shorter). I'm finding nursing him a bit more difficult as he doesn't want to attach properly but this only happens every other feed and I think we'll both get used to his feet straight out soon enough. Some questions: What should we be looking out for to see if the feet relapse? Do the feet in a relapse get pulled around by the toes or do the ligaments tighten the foot back around? How tightly should the laces on the boots be done up? How can you tell if you have the boots on properly in the beginning - so that I can make a penline in the correct spot? (Here the shop just sells you the shoes and bar - you fit them yourself) How can you coax the toes out if they are curled up (Jasper curled his toes in casts and now in the boots - the toes are at a bent angle but the hospital says they are corrected and they seem to be straighter each day of DBB wear)? How much do the shoes stretch -(tonight I have done them up one hole tighter)? Thanks everyone for the help, Tamsin mother of Jasper, bilateral 4.5, 5/13/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 Hi Tamsin, I am glad Jasper is doing a bit better! I can't answer the relapse questions, but with regards to how tight to do the laces up. I do them up as tight as possible, so that when I give a little tug on her calf her toes do not move at all. I put a pen mark in her shoes in the beginning so I could detect slipping. Zoe used to curl her toes too, I would just kind of put my fingers on the bottom of her feet (when they were in the shoe, but laces not done up yet) and gently massage them out, until the seemed flat, then I would put my thumb firmly on the top of her foot while I did up the strap and laces. If she curled them up after that it was fine, but keep in mind that then I could see the mark I had made with the pen, which freaked me out a bit, but then If I uncurled her toes to check it was fine. When you say they gave you the shoes and the bar and you fit them, do you mean they did not attach the shoes to the bar for you? If that is the case, I would be a little worried if I had the angle right. On the shoe stretching. Zoe has been in hers since 2 mos old, she is now 6 and we are just moving to the second notch on the strap. I think it has stretched over time. I look forward to hearing about how the rest of the night went! Louisa 6-27-99 Zoe 2-22-04 RCF 18/7 > > So, how's it going? I'm hoping since we haven't heard from you that > > everything is just great. I love the name Jasper too! > > > > Kori > > \ > > Hi, > > I wrote a huge reply and even though this computer told me it went through, it hasn't > come up on the list, so (incase it does sorry for the repeat) here goes. > > Not much sleep! About 3 hrs each night, although Jasper got heaps more than that - he > can sleep in our arms realy well! He woke constantly for the first three nights but tonight > seems great so far. Although our doctor is Ponseti certified, we have the DBB for 15hrs > and do manipulations every 2 hrs when they are off. We have an appointment in 4 weeks > so we'll see how this goes as we were expecting 23hrs wear each day. We have been > agonising over whether to follow the doctor's 12hrs/night or go 23hrs, and have > compromised at 15hrs straight wear for the 4 weeks - if he'll need more casting... well > we'll tackle that if we get there. I'm hoping we'll notice any changes in his correcton. > > Yesterday we tried putting them on earlier (at 3pm) and we had one VERY angry boy. He > wouldn't settle and tried to kick them off and cried. At 5pm I took them off to check them > and rubbed his feet - there were no sore spots so it was pure frustration, and when they > went back on it took ages to settle him and we had to cuddle him (even in his sleep) until > midnight, then he woke from 3-4am, them again at 7 and they came off at 8. I have been > lifting and moving the bar following his little movements to try and help him get used to it > but it only made him madder. > > Tonight though, things worked a treat. We plan to make them part of his bedtime routine. > He had a bath, then half a feed, then DBB (by this time it was 5pm), then the other half of > the feed, then a play on the rug until he got sleepy and into bed with a book at 6pm. He > woke crying at 7pm and had to be cuddled back to sleep - violently kicking those little > feet at us- but has been sleeping since - it's now 9pm. So hopefully tonight will bring > everyone sleep and this is how he will take to the boots and isn't just because he is tired > out from the last few nights. It seems much easier when it is bedtime and he can just > forget about his feet and go to sleep. > > Jasper's feet have no big sores so far, on the first night we had the straps in the top slit > and the heels seemed down and no sore bits checking two hourly. Night 2 we moved the > straps down but there was crying and carrying on after about an hours wear and on > checking they had been biting into his feet - so back to the upper slots and all OK (he has > little but chubby feet). There was a tiny sore on the top of the feet where the strap goes > through the tongue but this turned into a tiny scab (the size of half a poppy seed) and has > now disappeared. Tonight I am not sure if his right foot is in properly - I tried three times > but cant tighten the strap further without causing a cranky boy, I think he has curled his > toes up and I am not sure if this is affecting the wear - the heel appears to be in the right > place - bent knee and dorsifexed I cant push it in any further. > > The size of his shoes is 000 but each foot is different as they come to different points in > his boots (his right foot was always stiffer than his left and is about 5mm shorter). I'm > finding nursing him a bit more difficult as he doesn't want to attach properly but this only > happens every other feed and I think we'll both get used to his feet straight out soon > enough. > > Some questions: > What should we be looking out for to see if the feet relapse? > Do the feet in a relapse get pulled around by the toes or do the ligaments tighten the foot > back around? > How tightly should the laces on the boots be done up? > How can you tell if you have the boots on properly in the beginning - so that I can make a > penline in the correct spot? (Here the shop just sells you the shoes and bar - you fit them > yourself) > How can you coax the toes out if they are curled up (Jasper curled his toes in casts and > now in the boots - the toes are at a bent angle but the hospital says they are corrected > and they seem to be straighter each day of DBB wear)? > How much do the shoes stretch -(tonight I have done them up one hole tighter)? > > Thanks everyone for the help, > Tamsin > mother of Jasper, bilateral 4.5, 5/13/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 Hi Tasmin, The leather of the strap will indeed stretch as you break in the shoes. Sometimes you even need to punch a new hole or two. A quick answer about brace wear.. I would be concerned about having him out of the shoes for so many hours so early. In the method, which has been tested over many years, full time wear at first is what is best at keeping the feet from relapsing. The risk of relapse is high in the early months/years. The feet should have been corrected with the last cast to an outward angle of 70 degrees, which is where the shoes on the bar should also be. What to watch for.. I'd look for signs of that overcorrection being gone.. also the stretch in the heels tightening up, or the heels turning in on their sides, that is, the lateral/outside edge of the foot facing down. Here is a link to an article by Dr. P on relapses which has much more detail: http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/13223 Hope this helps. and Claire Quote Link to comment Share on other sites More sharing options...
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