Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Hi all, Well (and Mommy - heehee) survived the 2nd tenotomy and we are set to have this cast removed on September 13th (24 days). When Dr Herzenberg came to me from the OR with his " report " , he siad he got the results from her foot that he wanted and that she would go back to the DBB when the casts come off. Since he had been out of the country, we saw his partner, Dr. Standard, for the past two appointments. We were not sent to have 's feet measured inbetween any casts so Dr. H said to have both of her shoes sized with her right (non-clubbed) foot. This is very concerning to me as there is a tremendous size difference between her feet. Her CF bigtoe only comes to the bottom of her right bigtoe when here feet are placed sole to sole. Her first pair of DBB shoes were different sizes and we never had any problems with sores, slipping off, etc. I am very concerned that the left shoe will be too big and cause problems. Any suggestions? This is the first time I have been concerened with anything Dr H has said. Marilouise 9/9/03, LCF, 3 week cast after 2nd tenotomy Owen and 3/20/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Marilouise, I bet Dr. H. didn't notice or forgot her feet are so different in size during the procedure. I would imagine if you reminded him of this, he'd say differently. Sometimes, even the best Dr's are confused which patient they're seeing or talking about or whatever (remembering something like this) and need to be reminded. They do see many patients each day and if they're specializing in something like this all the patients can get massed together a blur of little feet lol... not that it's acceptable for a Dr to be a flake remembering things - but it happens. I remember my RE who is fantastic, up on the latest technology, cares about his patients and everyone likes him, blah, blah, blah... But darn if he wasn't a little goofy when it came to remembering which patient was who and what her treatment was specifically when not looking at the chart right then and there. He used to take a picture of each patient with a Polaroid and stick it in her chart. So funny, because he even forgot he took a picture of me a few years later. I told him he did, and then he told me he just started doing it. What a forgetful guy! lol, I totally remember him taking my picture. (we were not in a clinical setting at the time - he didn't have my chart to reference). What size was her shoe (for the CF) last time? Was it getting too small or just right when you first saw Dr. H? If it was just right - you still have that old shoe right? Worst case, you can use that shoe for a while till they get the right size. If it was starting to get small, that was like 5 weeks ago right? It might be on the too small side when she gets the tenotomy cast off. So all you need to do is call the brace shop and make sure they have shoes in two half sizes larger than the one you've got available for on the 13th. Personally I'm all for whole sizes larger when we get new shoes - I've not had good luck with half sizes because she grows so fast. So a half size larger or one whole size should be about right for her I would imagine. As long as they're available at the time (meaning they don't have to order them), you shouldn't have a problem. Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 LOL, at our last check up our dr. said Zoe had great flexibility in her foot, he was very impressed (with himself, no doubt), only he was checking on her left foot, instead of her right. Turns out her left foot over dorsiflexes (womb position??) and I think he thought he did a crazy tenotomy. Louisa 6-27-99 Zoe 2-22-04 RCF > Marilouise, > > I bet Dr. H. didn't notice or forgot her feet are so different in size > during the procedure. I would imagine if you reminded him of this, he'd > say differently. Sometimes, even the best Dr's are confused which patient > they're seeing or talking about or whatever (remembering something like > this) and need to be reminded. They do see many patients each day and if > they're specializing in something like this all the patients can get massed > together a blur of little feet lol... not that it's acceptable for a Dr to > be a flake remembering things - but it happens. I remember my RE who is > fantastic, up on the latest technology, cares about his patients and > everyone likes him, blah, blah, blah... But darn if he wasn't a little > goofy when it came to remembering which patient was who and what her > treatment was specifically when not looking at the chart right then and > there. He used to take a picture of each patient with a Polaroid and stick > it in her chart. So funny, because he even forgot he took a picture of me > a few years later. I told him he did, and then he told me he just started > doing it. What a forgetful guy! lol, I totally remember him taking my > picture. (we were not in a clinical setting at the time - he didn't have > my chart to reference). > > What size was her shoe (for the CF) last time? Was it getting too small or > just right when you first saw Dr. H? If it was just right - you still have > that old shoe right? Worst case, you can use that shoe for a while till > they get the right size. If it was starting to get small, that was like 5 > weeks ago right? It might be on the too small side when she gets the > tenotomy cast off. So all you need to do is call the brace shop and make > sure they have shoes in two half sizes larger than the one you've got > available for on the 13th. Personally I'm all for whole sizes > larger when we get new shoes - I've not had good luck with half sizes > because she grows so fast. So a half size larger or one whole size should > be about right for her I would imagine. As long as they're available at > the time (meaning they don't have to order them), you shouldn't have a > problem. > > > Kori > Mama of > Kenton 6/98 > Merek 3/00 > Darbi 3/03 - Rt. CF - DBB 12hr/day > (¨`·.·´¨) > `·.¸(¨`·.·´¨) > `·.¸.·´ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Hi Kori, I mentioned to Dr H right then about her CF being so much smaller and he just said the same thing again -- measure with the good foot. Didn't think about her old shoes! Her right one (non CF), her toes were hanging over the edge but the CF shoe her toes weren't even to the tip of it yet. So probably the next whole size would be best as I am sure she has grown and plus her foot is a bit straighter now that the medial crease has improved. The place I get her shoes from was great the first time. has only had one pair of shoes so far. Thanks!! Marilouise 9/9/03, LCF, 3 week cast after 2nd tenotomy Owen and 3/20/99 > Marilouise, > > I bet Dr. H. didn't notice or forgot her feet are so different in size > during the procedure. I would imagine if you reminded him of this, he'd > say differently. Sometimes, even the best Dr's are confused which patient > they're seeing or talking about or whatever (remembering something like > this) and need to be reminded. They do see many patients each day and if > they're specializing in something like this all the patients can get massed > together a blur of little feet lol... not that it's acceptable for a Dr to > be a flake remembering things - but it happens. I remember my RE who is > fantastic, up on the latest technology, cares about his patients and > everyone likes him, blah, blah, blah... But darn if he wasn't a little > goofy when it came to remembering which patient was who and what her > treatment was specifically when not looking at the chart right then and > there. He used to take a picture of each patient with a Polaroid and stick > it in her chart. So funny, because he even forgot he took a picture of me > a few years later. I told him he did, and then he told me he just started > doing it. What a forgetful guy! lol, I totally remember him taking my > picture. (we were not in a clinical setting at the time - he didn't have > my chart to reference). > > What size was her shoe (for the CF) last time? Was it getting too small or > just right when you first saw Dr. H? If it was just right - you still have > that old shoe right? Worst case, you can use that shoe for a while till > they get the right size. If it was starting to get small, that was like 5 > weeks ago right? It might be on the too small side when she gets the > tenotomy cast off. So all you need to do is call the brace shop and make > sure they have shoes in two half sizes larger than the one you've got > available for on the 13th. Personally I'm all for whole sizes > larger when we get new shoes - I've not had good luck with half sizes > because she grows so fast. So a half size larger or one whole size should > be about right for her I would imagine. As long as they're available at > the time (meaning they don't have to order them), you shouldn't have a > problem. > > > Kori > Mama of > Kenton 6/98 > Merek 3/00 > Darbi 3/03 - Rt. CF - DBB 12hr/day > (¨`·.·´¨) > `·.¸(¨`·.·´¨) > `·.¸.·´ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 They always check Darbs non CF foot as well, and at least 2 times when she was very little the comment came that her non CF foot was nicely corrected lol. Each time they start manipulating her left foot all interested in it's dorsiflexion etc. I remind them she's unilateral right. I don't know if they just don't look at the chart, or if they're comparing or confused or what... Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ At 12:26 PM 8/23/2004, you wrote: >LOL, at our last check up our dr. said Zoe had great flexibility in >her foot, he was very impressed (with himself, no doubt), only he was >checking on her left foot, instead of her right. Turns out her left >foot over dorsiflexes (womb position??) and I think he thought he did >a crazy tenotomy. > >Louisa > 6-27-99 >Zoe 2-22-04 RCF > >--- In nosurg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 I don't know either, but can tell you I was very pleased when Zoe had her tenotomy and they sent someone in specifically to mark her " procedure " foot. Prevented me from having to take out the marker I had brought on my own. LOL. No kidding. Louisa > >LOL, at our last check up our dr. said Zoe had great flexibility in > >her foot, he was very impressed (with himself, no doubt), only he was > >checking on her left foot, instead of her right. Turns out her left > >foot over dorsiflexes (womb position??) and I think he thought he did > >a crazy tenotomy. > > > >Louisa > > 6-27-99 > >Zoe 2-22-04 RCF > > > >--- In nosurg Quote Link to comment Share on other sites More sharing options...
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