Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 In a message dated 03/24/2002 8:42:12 PM Central Standard Time, hummycherub@... writes: > I am suppose to have surgery on my leg and foot. and was wondering.........I > heard some where that when u have surgery the fibromyalgia pain gets alot > worse........true? > ~~~Tami~~~ > I just had surgery, a diagnostic laproscopy. It hurt yeah, and yes, the fibro pain seems to be worse. But a lot of it I contribute to having to quit all meds three weeks before the surgery, so my platlets would be new and perfect LOL. I also was really really exhausted a good bit of the time. My husband was really taking over for the last two weeks. I finally started feeling better prolly friday afternoon with the exhaustion, but the fibro pain is still in full swing, livable, but def. there! ~*Meredith*~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 I am new to this group. I received information on this from Dr. Ponseti. My son is 10 months old. He's been in casts since birth. We are from Michigan and we've been in Iowa, at the Mc house, for the past month seeing Dr. Ponseti. has atypical bilateral clubbed feet. We have just been told that he is going to require surgery. It will be two procedures that require at least one overnight stay in the hospital. I am kind of familiar with the tenotomy, is that the lengthening of the heel cord? The second procedure I know even less about, the lengthening of the posterior ligaments. I was wondering if anyone knew anything more about these procedures. Thank you so much, Wold Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 Welcome, & , I'm sorry to hear that your son's treatment has been dragging on for so very long, and so sorry to hear that he's going to need some surgical correction. However, he is in the best hands in the world with the team at the U of Iowa. I don't have any info for you about the posterior ligaments procedure. Perhaps (our resident expert ) will have some info for you. Please keep us posted on 's progress. What region are you in in Michigan? We used to live in the U.P. and made the trek to Iowa from there....it's quite a haul! When did you start going to Iowa? Welcome to our board! & (3-16-00) left clubfoot, switched to Ponseti method at 4 mo. old http://ponseticlubfoot.freeservers.com/ > I am new to this group. I received information on this from Dr. > Ponseti. My son is 10 months old. He's been in casts since birth. > We are from Michigan and we've been in Iowa, at the Mc > house, for the past month seeing Dr. Ponseti. has atypical > bilateral clubbed feet. We have just been told that he is going to > require surgery. It will be two procedures that require at least one > overnight stay in the hospital. I am kind of familiar with the > tenotomy, is that the lengthening of the heel cord? The second > procedure I know even less about, the lengthening of the posterior > ligaments. I was wondering if anyone knew anything more about these > procedures. > > Thank you so much, > Wold Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 , hopefully it's a good sign that you don't need surgery. As for not giving a direct answer to the doctor, that's what your advocate is for! Who are you taking with you? Or who would go if you asked? Last week a lady from the chronic pain support group I attend called me to ask some questions about her doctor visit that day. I knew from the group that she has not learned to be assertive & that she has a lot of issues that her doctors have not been addressing (recent breast cancer survivor, recent divorce by cheating husband, lost everything from 30-year marriage, PAIN, depression, did I say PAIN?, etc.), so after giving her some suggestions, I said, "How about if I go to the appointment with you?" She was very hesitant, didn't want to trouble me, etc., but finally agreed. In fact, we decided to meet at IHOP before the appt. for coffee & to go over her questions & concerns. She brought her son, which was nice, as he had some useful comments. She had a long list of stuff, including toenail fungus. I helped her combine some things & get it down to the main 3 or 4 issues. I made my own list & off we went. I was so glad that I went with her. She broke down & told the doctor that she was just falling apart. The doctor was very compassionate. She did a thorough exam, especially testing for sensation in the feet. Maybe she would have anyway, but I brought it up as something that my friend was concerned about & none of the doctors had ever checked. The whole visit was pretty satisfying. All the major points we had were addressed, the doctor is having her back before Christmas, & will have time to review her chart, plus some MRI's & other tests that had been mislaid & never looked at! Anyway, the point of the story is that it is so important to take someone with you who knows what needs to be accomplished during that visit & won't let you or the doctor leave until it's done. Now, another idea: I'm thinking that you have a lot of back pain, don't you? I read a small article in my local paper about a new treatment for spinal stenosis. Here is a website about it: http://www.spine-dr.com/site/surgery/s_xstop_ipd_local.html There are quite a few websites about it. If you just type in X-stop in your search engine, you'll get a lot of weird stuff, so type X-stop spinal implant. I'm going to look into it when I get Medicare coverage. I hope you have a pretty good Thanksgiving. I will give thanks for you & every one else in this group. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: "neuro sarc group" <neurosarcoidosis >Subject: surgeryDate: Tue, 22 Nov 2005 16:32:25 -0600 Had the EMG and it was good so now I don’t need surgery yipiee. But maybe not at least surgery would have fixed it and I would have had a chance that it would have gotten better. Neurology is sending me to the pain clinic . I assume they will inject prednisone into my spine again. My nerves are ok. I knew that my foot haws only dropped three times. I did make the mistake of not answering the neurologist direct question with a direct answer he asked if I had more pain since the fall or less pain. I answered with sir with pain medication in me I have no pain. he asked me three or 4 times I answered the same thing instead of just saying yes. I need to learn to be concise and I am not. I am slow it takes me a day to think about the question before I can answer. So my brain cells are still not keen. I could never work in my medical office again. Anyway he is sending me to the pain clinic and then the first week in Jan I go to the spine center. I am a bit worried when I do not have pain medication in me I am in intense human suffering pain. They will wean me off the narcotics, but hopefully not leave me to suffer. M ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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