Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 I'm sorry to hear you're having problems, your poor baby! Considering you are on vacation I would personally remove the DBB and give up on it until I could see my regular clubfoot doctor, but make arrangments to see the dr. ASAP!!! The purple color concerns me, sounds like the start of a pressure sore and those can get serious quick. And just a note to all the new parents out there - I've noticed this a couple times lately, people planning trips at the time their child begins the DBB regeim...... The DBB isn't some " toy " you happily leave the doctor's office with to go home and play therapay on your child with. Getting the DBB isn't the " end " of your child's treatment, it's the beginning of a whole new phase. I dont' mean that to sound cruel, it's just that it's a very serious thing that often has serious draw-backs, such as in your case here (and others), so new parents out there ought to plan on staying home and close to their care provider until all the kinks are worked out. Getting used to the DBB is hard on both parents and children under the best of conditions. Being away from the familure comfort of home seems to aggrivate the process in some cases. s. extreme Dbb hell Hi all: We got Amelias Dbb yesterday and have gone through two of the worst days ever. To top it off we are on a visit to family and not near our doctor or a local orthopist. Mia has 2 ugly looking blisters one on her big toe and the other on the top of her foot. I've tried everything on the lists as far as help and nothing works, she cries unconsolably until we take it off. I hate to admit defeat, but are we looking at another cast or should I keep trying? The top of the foot blister is purpleish and the big toe one is big but only red. What should I do? Help please Jeff and Amelia 6wo w/ unilateral Left cf ... 10pds baby... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 I would put two socks on her and a Band-Aid on the blisters until you can get back to see your doctor. A little Tylenol wouldn't hurt either. I think it sounds like your shoes are two small or her feet are not totally corrected. Can you call your doctor and see what he recommends? I would also give her several short breaks instead of one long one. Like 4 or 5 half hour breaks. Dr Ponseti told us that being out of the brace of 2 hours instead of 1 is fine. HTH and you can get back to your doctor soon. Hang in there. If you have questions about weather her feet are totally corrected send pictures to Dr Ponseti. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 I would put two socks on her and a Band-Aid on the blisters until you can get back to see your doctor. A little Tylenol wouldn't hurt either. I think it sounds like your shoes are two small or her feet are not totally corrected. Can you call your doctor and see what he recommends? I would also give her several short breaks instead of one long one. Like 4 or 5 half hour breaks. Dr Ponseti told us that being out of the brace of 2 hours instead of 1 is fine. HTH and you can get back to your doctor soon. Hang in there. If you have questions about weather her feet are totally corrected send pictures to Dr Ponseti. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Jeff, you guys hand in there it well get better. My wife Nikki and I the same problem with the Dbb with our son Zack. We used blister block on the blisters and left the Dbb off until the blister's heal. We had to continue doing Zack's stretches but I understand not all Dr. have parents do the stretching. Zack was out of his Dbb 15 of his first 20 days with them. He is know 1 yr and starting to walk. We also used adult size shoe laces to help stop the foot from slipping. Our first two weeks was pure hell so we understand your problem so feel free to contact us if you need any help or have questions. I can tell you that Mia will do fine and when you see her starting to walk it well be the greatest day or it was for me. God Bless the s Family, jeff jeffamiller@...> wrote: Hi all: We got Amelias Dbb yesterday and have gone through two of the worst days ever. To top it off we are on a visit to family and not near our doctor or a local orthopist. Mia has 2 ugly looking blisters one on her big toe and the other on the top of her foot. I've tried everything on the lists as far as help and nothing works, she cries unconsolably until we take it off. I hate to admit defeat, but are we looking at another cast or should I keep trying? The top of the foot blister is purpleish and the big toe one is big but only red. What should I do? Help please Jeff and Amelia 6wo w/ unilateral Left cf ... 10pds baby... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Jeff & , I know it is very hard times, most of us have been there. Double check to make sure the shoes are on correctly (I think you said you did). As far the blisters, I would use Neosporn with band-aids to help. Don't put the shoes back on until the blisters go away. The poor thing is uncomfortable and is surely letting you know. I would see your doc or orthotist ASAP to make sure there is nothing very wrong. Hang in there, it only gets better! > Hi all: > > We got Amelias Dbb yesterday and have gone through two of the worst > days ever. To top it off we are on a visit to family and not near > our doctor or a local orthopist. Mia has 2 ugly looking blisters one > on her big toe and the other on the top of her foot. I've tried > everything on the lists as far as help and nothing works, she cries > unconsolably until we take it off. I hate to admit defeat, but are > we looking at another cast or should I keep trying? The top of the > foot blister is purpleish and the big toe one is big but only red. > What should I do? Help please > > Jeff and > > Amelia 6wo w/ unilateral Left cf ... 10pds baby... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Jeff & , Take the brace off for a day or two until the blister heals. If you call a Dr or ask a nurse they can tell you what to put on the blister to help it heal faster. She might be too far gone for this, but I use Desitin on every sore spot Rose gets anywhere, including her bottom. I noticed your baby is already 6 months old and that is older than most when they start the DBB. The shoes may be too small, or she may just be frustrated by the lack of movement, or both. My daughter rubbed the side of her big toe nearly raw and her heel too, but we just put a bandaid over them and shoes back on and she was fine by the next day. Also, and others may disagree with me, but use the laces to tighten the shoes, not the strap. The strap needs to be snug, but the laces with not put pressure on one part of the foot like the strap does. Also, when you put the shoes back on in a day or two, don't be afraid to give her some Tylenol. It will take the edge off and she will be much happier and will adjust better if she is not quite as uncomfortable. We took Rose's cast off in the morning and put the the DBB on about 8 p.m. She screamed and kicked and fought and it was totally awful. About 11 p.m. we gave her some Tylenol and sat up with her all night long. My husband would hold her in one position and after a little while she would start to squirm. He would shift her position and he did this all night long. But by morning, we had our happy baby back. I agree with S about being home and in a calm environment. We didn't know Rose was going to have a DBB until three weeks before she got it. Coincidentally, my husband's mother and grandmother and niece were visiting us for a week. So, not only do I have to convince my child to wear this contraption, she was already overtired and overstimulated by three strange people. Still, it only took one night and one day for her to be basically okay with it. The pressure spots and red spots on her feet we dealt with before they got bad enough for her to complain. Anyway, try to be home where you are not bothering other people if your baby screams all night and you can make sure what is causing her to scream all night. at 17 months, we have no issues with the DBB, but overstimulation causes her to be unreasonable about everything including the DBB. Best of luck Robin & Rose 3/12/03 right club foot jeff jeffamiller@...> wrote: Hi all: We got Amelias Dbb yesterday and have gone through two of the worst days ever. To top it off we are on a visit to family and not near our doctor or a local orthopist. Mia has 2 ugly looking blisters one on her big toe and the other on the top of her foot. I've tried everything on the lists as far as help and nothing works, she cries unconsolably until we take it off. I hate to admit defeat, but are we looking at another cast or should I keep trying? The top of the foot blister is purpleish and the big toe one is big but only red. What should I do? Help please Jeff and Amelia 6wo w/ unilateral Left cf ... 10pds baby... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Jeff & , Take the brace off for a day or two until the blister heals. If you call a Dr or ask a nurse they can tell you what to put on the blister to help it heal faster. She might be too far gone for this, but I use Desitin on every sore spot Rose gets anywhere, including her bottom. I noticed your baby is already 6 months old and that is older than most when they start the DBB. The shoes may be too small, or she may just be frustrated by the lack of movement, or both. My daughter rubbed the side of her big toe nearly raw and her heel too, but we just put a bandaid over them and shoes back on and she was fine by the next day. Also, and others may disagree with me, but use the laces to tighten the shoes, not the strap. The strap needs to be snug, but the laces with not put pressure on one part of the foot like the strap does. Also, when you put the shoes back on in a day or two, don't be afraid to give her some Tylenol. It will take the edge off and she will be much happier and will adjust better if she is not quite as uncomfortable. We took Rose's cast off in the morning and put the the DBB on about 8 p.m. She screamed and kicked and fought and it was totally awful. About 11 p.m. we gave her some Tylenol and sat up with her all night long. My husband would hold her in one position and after a little while she would start to squirm. He would shift her position and he did this all night long. But by morning, we had our happy baby back. I agree with S about being home and in a calm environment. We didn't know Rose was going to have a DBB until three weeks before she got it. Coincidentally, my husband's mother and grandmother and niece were visiting us for a week. So, not only do I have to convince my child to wear this contraption, she was already overtired and overstimulated by three strange people. Still, it only took one night and one day for her to be basically okay with it. The pressure spots and red spots on her feet we dealt with before they got bad enough for her to complain. Anyway, try to be home where you are not bothering other people if your baby screams all night and you can make sure what is causing her to scream all night. at 17 months, we have no issues with the DBB, but overstimulation causes her to be unreasonable about everything including the DBB. Best of luck Robin & Rose 3/12/03 right club foot jeff jeffamiller@...> wrote: Hi all: We got Amelias Dbb yesterday and have gone through two of the worst days ever. To top it off we are on a visit to family and not near our doctor or a local orthopist. Mia has 2 ugly looking blisters one on her big toe and the other on the top of her foot. I've tried everything on the lists as far as help and nothing works, she cries unconsolably until we take it off. I hate to admit defeat, but are we looking at another cast or should I keep trying? The top of the foot blister is purpleish and the big toe one is big but only red. What should I do? Help please Jeff and Amelia 6wo w/ unilateral Left cf ... 10pds baby... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Jeff & , Take the brace off for a day or two until the blister heals. If you call a Dr or ask a nurse they can tell you what to put on the blister to help it heal faster. She might be too far gone for this, but I use Desitin on every sore spot Rose gets anywhere, including her bottom. I noticed your baby is already 6 months old and that is older than most when they start the DBB. The shoes may be too small, or she may just be frustrated by the lack of movement, or both. My daughter rubbed the side of her big toe nearly raw and her heel too, but we just put a bandaid over them and shoes back on and she was fine by the next day. Also, and others may disagree with me, but use the laces to tighten the shoes, not the strap. The strap needs to be snug, but the laces with not put pressure on one part of the foot like the strap does. Also, when you put the shoes back on in a day or two, don't be afraid to give her some Tylenol. It will take the edge off and she will be much happier and will adjust better if she is not quite as uncomfortable. We took Rose's cast off in the morning and put the the DBB on about 8 p.m. She screamed and kicked and fought and it was totally awful. About 11 p.m. we gave her some Tylenol and sat up with her all night long. My husband would hold her in one position and after a little while she would start to squirm. He would shift her position and he did this all night long. But by morning, we had our happy baby back. I agree with S about being home and in a calm environment. We didn't know Rose was going to have a DBB until three weeks before she got it. Coincidentally, my husband's mother and grandmother and niece were visiting us for a week. So, not only do I have to convince my child to wear this contraption, she was already overtired and overstimulated by three strange people. Still, it only took one night and one day for her to be basically okay with it. The pressure spots and red spots on her feet we dealt with before they got bad enough for her to complain. Anyway, try to be home where you are not bothering other people if your baby screams all night and you can make sure what is causing her to scream all night. at 17 months, we have no issues with the DBB, but overstimulation causes her to be unreasonable about everything including the DBB. Best of luck Robin & Rose 3/12/03 right club foot jeff jeffamiller@...> wrote: Hi all: We got Amelias Dbb yesterday and have gone through two of the worst days ever. To top it off we are on a visit to family and not near our doctor or a local orthopist. Mia has 2 ugly looking blisters one on her big toe and the other on the top of her foot. I've tried everything on the lists as far as help and nothing works, she cries unconsolably until we take it off. I hate to admit defeat, but are we looking at another cast or should I keep trying? The top of the foot blister is purpleish and the big toe one is big but only red. What should I do? Help please Jeff and Amelia 6wo w/ unilateral Left cf ... 10pds baby... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 At 10:57 AM 8/13/2004, you wrote: >Jeff & , > >Take the brace off for a day or two until the blister heals. If you call >a Dr or ask a nurse they can tell you what to put on the blister to help >it heal faster. She might be too far gone for this, but I use Desitin on >every sore spot Rose gets anywhere, including her bottom. I noticed your >baby is already 6 months old and that is older than most when they start >the DBB. The shoes may be too small, or she may just be frustrated by the >lack of movement, or both. My daughter rubbed the side of her big toe >nearly raw and her heel too, but we just put a bandaid over them and shoes >back on and she was fine by the next day. Also, and others may disagree >with me, but use the laces to tighten the shoes, not the strap. The strap >needs to be snug, but the laces with not put pressure on one part of the >foot like the strap does. > I have taken to doing that too lately - trying to get rid of the red marks on the tops of her feet. I think the padding in the new shoes is too thin. Make the laces really tight, or tighten the buckle to make sure the heel is seated properly and then tighten the laces over it really tight. Then loosen the buckle. Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 At 10:57 AM 8/13/2004, you wrote: >Jeff & , > >Take the brace off for a day or two until the blister heals. If you call >a Dr or ask a nurse they can tell you what to put on the blister to help >it heal faster. She might be too far gone for this, but I use Desitin on >every sore spot Rose gets anywhere, including her bottom. I noticed your >baby is already 6 months old and that is older than most when they start >the DBB. The shoes may be too small, or she may just be frustrated by the >lack of movement, or both. My daughter rubbed the side of her big toe >nearly raw and her heel too, but we just put a bandaid over them and shoes >back on and she was fine by the next day. Also, and others may disagree >with me, but use the laces to tighten the shoes, not the strap. The strap >needs to be snug, but the laces with not put pressure on one part of the >foot like the strap does. > I have taken to doing that too lately - trying to get rid of the red marks on the tops of her feet. I think the padding in the new shoes is too thin. Make the laces really tight, or tighten the buckle to make sure the heel is seated properly and then tighten the laces over it really tight. Then loosen the buckle. Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 I'm so sorry you are dealing with this. Like a previous poster stated, chances are the shoes aren't positioned properly, or possibly the feet aren't fully corrected - typically, if the shoes are fitted properly and the foot is fully corrected, most children will experience no pain (just a small adjustment period). Someone had mentioned taking the DBB off until you get home - I'm leary of this, as I know the foot turns in quickly (more quickly than you would ever imagine) - if I were you, I would seriously consider getting into contact with your ortho, or going home early. I know that sounds extreme - but it's nothing to take lightly. Holly Zachary 7/27/02 Unilateral Right Clubfoot Treated by Dr. Ponseti 10 hours/day DBB #2 due: 1/8 > I would put two socks on her and a Band-Aid on the blisters until you > can get back to see your doctor. A little Tylenol wouldn't hurt > either. I think it sounds like your shoes are two small or her feet > are not totally corrected. Can you call your doctor and see what he > recommends? I would also give her several short breaks instead of > one long one. Like 4 or 5 half hour breaks. Dr Ponseti told us that > being out of the brace of 2 hours instead of 1 is fine. HTH and you > can get back to your doctor soon. Hang in there. If you have > questions about weather her feet are totally corrected send pictures > to Dr Ponseti. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Hi Jeff and , My son had a similar problem the day after he got his DBB's. I had to call the doctor on call to find out what I should do. He told me that I could leave them off for a few hours and then try putting them on. As far as you daughter crying it could be adjustment to the shoes, since she is restricted on moving her legs freely. I would call her doctor ASAP. Also when putting on her DBB's you could try to rock her to sleep and then try to put the shoes on. We had to just until he got use to them. Christi 10/23/01 9/27/03 BCF DBB 12hr/day jeff jeffamiller@...> wrote: Hi all: We got Amelias Dbb yesterday and have gone through two of the worst days ever. To top it off we are on a visit to family and not near our doctor or a local orthopist. Mia has 2 ugly looking blisters one on her big toe and the other on the top of her foot. I've tried everything on the lists as far as help and nothing works, she cries unconsolably until we take it off. I hate to admit defeat, but are we looking at another cast or should I keep trying? The top of the foot blister is purpleish and the big toe one is big but only red. What should I do? Help please Jeff and Amelia 6wo w/ unilateral Left cf ... 10pds baby... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Jeff & , I'm sorry that Amelia is having issues. What doctor are you seeing? I noticed your email moniker was " appletoncop " , are you seeing a doctor in the Appleton, WI, area or perhaps Dr. Noonan in Madison? Please update us when you can. Thanks, & (3-16-00) left clubfoot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Jeff & , I'm sorry that Amelia is having issues. What doctor are you seeing? I noticed your email moniker was " appletoncop " , are you seeing a doctor in the Appleton, WI, area or perhaps Dr. Noonan in Madison? Please update us when you can. Thanks, & (3-16-00) left clubfoot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Thanks everyone. We'll use some of the ideas to help calm her down. Doc said today to get it on as much as possible until ortho opens on monday. We honestly had no idea what we were in for, but the family thing was for everyone to meet our new little one. We were certainly prepared to head home, but doc said not a problem he thinks the shoes are too small. and Rich we are in Wisconsin and we see Dr. Noonan... He has done a great job so far. Thanks for all the help most of the purple is gone so we hope to get at least 12 hrs over the next two days and have it solved at home on Monday... This group is great!!! --- & Rich jenrichtrevillian@...> wrote: > Jeff & , > I'm sorry that Amelia is having issues. What doctor > are you seeing? > I noticed your email moniker was " appletoncop " , are > you seeing a > doctor in the Appleton, WI, area or perhaps Dr. > Noonan in Madison? > Please update us when you can. > Thanks, > & (3-16-00) > left clubfoot > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 I'm glad to hear it's going a little better for you. I understand, I really do, I had a helluva time starting the DBB on mine. s. Re: Re: extreme Dbb hell Thanks everyone. We'll use some of the ideas to help calm her down. Doc said today to get it on as much as possible until ortho opens on monday. We honestly had no idea what we were in for, but the family thing was for everyone to meet our new little one. We were certainly prepared to head home, but doc said not a problem he thinks the shoes are too small. and Rich we are in Wisconsin and we see Dr. Noonan... He has done a great job so far. Thanks for all the help most of the purple is gone so we hope to get at least 12 hrs over the next two days and have it solved at home on Monday... This group is great!!! --- & Rich jenrichtrevillian@...> wrote: > Jeff & , > I'm sorry that Amelia is having issues. What doctor > are you seeing? > I noticed your email moniker was " appletoncop " , are > you seeing a > doctor in the Appleton, WI, area or perhaps Dr. > Noonan in Madison? > Please update us when you can. > Thanks, > & (3-16-00) > left clubfoot > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Jeff, There is a downloadable shoe size chart on the Markell Shoe Company's website that you can use to determine what size shoes they should be using for Amelia. Make sure you distinguish if you are getting the " old style " Tarso shoes or the " new style " also. I'm glad she's doing better, and I'm glad you're happy w/ Dr. Noonan thus far! Keep us posted! & (3-16-00) left clubfoot > > > Jeff & , > > I'm sorry that Amelia is having issues. What doctor > > are you seeing? > > I noticed your email moniker was " appletoncop " , are > > you seeing a > > doctor in the Appleton, WI, area or perhaps Dr. > > Noonan in Madison? > > Please update us when you can. > > Thanks, > > & (3-16-00) > > left clubfoot > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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