Re: sarahjane/vics sister /funeral./dawn

[Guest guest]

I couldn,t believe to come home from bury my friend toread all this hurtful stuff.To the person who wrotewhat she did i truly hope you re think some of thethings you said.This support group is the family alotof those with rsd dont have.Support is so vital forcoping.How could you attack the very core of dealingwith pain?I can only presumme you are having a roughtime and had to vent but please think of others.I know from vickis point of veiw this group is thelink that stops her from thinking in a self piting wayshe knows there are others out there worse than her,that intern inpowers her to face each day.From a parents point of veiw, any test or treatmentonce proven to be safe is alight at the end of thetunnel.To watch your child suffer and you cant takethat pain away is a slow death for a parent.If this group didnt exsist there are times i wouldwalk out!!!So thankyou to all for being there and lets stay together!!!!!!!!!!!!!!!!!!!!!!!!Lois,

I am truly sorry for the loss of your friend. I hope Vicki gets over her tummy problems soon and yes this group should be about support and also l believe that we should all just forget about this and go back to what we are so good at and that is supporting and caring about each other.

I know how hard it is to bury a friend to watch your child suffer and there is nothing you can do has to be so hard.

I will keep you and Vicki in my prayers

Lin

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