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thanks very much. hope they work. --i'm sick to my stomach with all this

stuff i'm reading on this nf group email.

Re: Sandy

Sandy..I have not had that operation, but know that my prayers are with you.

Carol

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First thing Sandy:) Is relax. I KNOW a few people that have had that op

and are FINE. I myself have bad tumors in spine and had C1 thru C7 radiated

FRS almost 3 years ago. So it really depends on your Dr the answers your

given. My first neuro told me that the spine was inoperatable and also id

be died in 2 years. My new Dr says " your doing great " and I am. That you

are active still says that you are too!!! You need to look into your

treatment options and decide what is right for you. You need to ask your Dr

if hes performed this type of op before, some havent or have very little

experience. Dont be afraid to ask questions. Dont try to sheild your

family from this either:( You need and deserve their love and support.

They deserve to know whats going down with you. Very scary time for

u:( I understand. Has your Mom ever been tested for NF?? I dont know what

an AC op is:( That she has bad balance makes me wonder. Basically too, you

need to know your not alone. All of us here are in the same boat. Good to

have you aboard. Hugs to you~~Lori

Re: Sandy

>

>

> Sandy..I have not had that operation, but know that my prayers are with

you.

> Carol

>

>

>

>

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wanted to post earlier but no time. sandy, any surgery especial those

c spine ones are risky but I promise you there have been many who are

ok after the OP. Being 55 will make it harder I'm sure, I was 14 when

the did c2,3 and 30 when did c6,7, I walk, drive and do everything

but run. Onefor me was horrendous pain and the other was painless, go

figure. but even the painful one turned out ok and he pain meds are

muchhhh better now. also note if you wake up very weak you

usually improve, i woke up last aug from surgery cudnot move legsat

all, but recovered. ine in australia i believehad a c spine

surgery last year, she is around your age and can maybe offer

insight.

In NF2_Crew@y..., " Lori Phibbs " <lphibbs@c...> wrote:

> First thing Sandy:) Is relax. I KNOW a few people that have had

that op

> and are FINE. I myself have bad tumors in spine and had C1 thru C7

radiated

> FRS almost 3 years ago. So it really depends on your Dr the answers

your

> given. My first neuro told me that the spine was inoperatable and

also id

> be died in 2 years. My new Dr says " your doing great " and I am.

That you

> are active still says that you are too!!! You need to look into

your

> treatment options and decide what is right for you. You need to ask

your Dr

> if hes performed this type of op before, some havent or have very

little

> experience. Dont be afraid to ask questions. Dont try to sheild

your

> family from this either:( You need and deserve their love and

support.

> They deserve to know whats going down with you. Very scary time for

> u:( I understand. Has your Mom ever been tested for NF?? I dont

know what

> an AC op is:( That she has bad balance makes me wonder. Basically

too, you

> need to know your not alone. All of us here are in the same boat.

Good to

> have you aboard. Hugs to you~~Lori

> Re: Sandy

> >

> >

> > Sandy..I have not had that operation, but know that my prayers are

with

> you.

> > Carol

> >

> >

> >

> >

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  • 2 years later...

The reason I was takin a statin is because the doctor kept me hypo

when I was on an antithyroid drug for graves.

It says on the prescribing information that people with

hypothyroidism must be monitored closely.

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  • 9 months later...

Sandy, why don't you call the office and ask them to send you a copy of

the lab reports. Or, if you're close, just go by and request them.

Many people find that when they limit carbohydrates, their cholesterol

goes down. Going low carb does not have to mean high fat.

Sue

On Sunday, October 23, 2005, at 08:56 AM, Sandy Gilliland wrote:

> The reason he put me on a diet low in cholesteral was because when my

> first lab tests came back, my cholesteral was very high. He also

> prescribed Crestor for the high cholesteral of which I take 5 mg. a

> day. I can't remember right now just what the reading was on that. I

> did not know that I could ask him for a copy of my lab reports, but

> will ask him for them from now on.

>

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  • 1 year later...

Steph,

It was about 3 weeks into taking aromasin where I

started noticing the joint pain. And no it hasn't

effected my sleeping. I have absolutely no trouble

sleeping.

Sandy

--- sjandtj_ve wrote:

> How long was it you started having the joint pain

> when you started

> taking the Aromasin? Did you notice it right away

> or was it several

> weeks into the treatment?

>

> It hasn't effected your sleeping?

>

> Steph

>

>

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