Re: Back with Questions.... ()

[Guest guest]

,

We are just getting ready to head back to Iowa on Thursday to have

some casts done to see if Becky is going to need the ATTT or not.

She is also bilateral and it is looking like her right foot is giving

her the most trouble too. What a coincidence!!! LOL Will you be in

Iowa to get the ATTT done?

======================================================================

> > Hi all! It's been quite some time since I've posted here as

> things

> > had been uneventful up until this point.

> >

> > We had our check-up with Dr. Herzenberg last week and he's

> > considereing doing the tendon transfer on Dylans feet. He wants

> us

> > to come to a symposium in September to get some opinions of other

> > clubfoot docs.

> >

> > What I was hoping for from all of you was any information you

have

> > about the procedure itself, the recovery and such (how long in

> > casts, is it outpatient, how much pain, etc). I didn't think to

> ask

> > anything at the appointment as I was caught a little off guard

and

> > nothing was definately decided.

> >

> > Also, will anyone else here be at the symposium in September?

> >

> > Thanks in advance for any info or guidance you can give me. If

> you

> > would prefer to e-mail me off the board my address is

> > tanda912@y...

> >

> > Theresa

[Guest guest]

It seems like a lot of children are suffering a relapse lately - any ideas why

the sudden increase? Makes me nervous about my own baby.

s.

Re: Back with Questions.... ()

,

We are just getting ready to head back to Iowa on Thursday to have

some casts done to see if Becky is going to need the ATTT or not.

She is also bilateral and it is looking like her right foot is giving

her the most trouble too. What a coincidence!!! LOL Will you be in

Iowa to get the ATTT done?

======================================================================

> > Hi all! It's been quite some time since I've posted here as

> things

> > had been uneventful up until this point.

> >

> > We had our check-up with Dr. Herzenberg last week and he's

> > considereing doing the tendon transfer on Dylans feet. He wants

> us

> > to come to a symposium in September to get some opinions of other

> > clubfoot docs.

> >

> > What I was hoping for from all of you was any information you

have

> > about the procedure itself, the recovery and such (how long in

> > casts, is it outpatient, how much pain, etc). I didn't think to

> ask

> > anything at the appointment as I was caught a little off guard

and

> > nothing was definately decided.

> >

> > Also, will anyone else here be at the symposium in September?

> >

> > Thanks in advance for any info or guidance you can give me. If

> you

> > would prefer to e-mail me off the board my address is

> > tanda912@y...

> >

> > Theresa

[Guest guest]

I would imagine it's more apparent because there's more of us online here

as well as more children receiving this kind of treatment than there was

even a few years back. I can't imagine that there's actually

more... other than the apparent reasons such as docs letting children out

too early or not bracing long enough (hours) indicating a failure in the

treatment process rather than bunk feet. Those feet treated in Iowa would

seem to be the ones that don't relapse but even Dr. P. has experienced that

5% that need further treatment, or else it wouldn't be in the

literature. So it stands to reason that if 100 babies a year were treated

in 1999 and 5 of them needed further treatment or relapsed that the 1000

that are being treated now would result in about 50 who relapsed or needed

further treatment. (I know those numbers are wrong - I was just using them

as an example)

Then again... many of those parents who are going back to Iowa were some

of the original members of this list. So it stands to reason that we'd

find out about them here whereas without this list, none of us would have

the first idea what was going on with children from around the world.

At 02:55 PM 7/19/2004, you wrote:

>It seems like a lot of children are suffering a relapse lately - any

>ideas why the sudden increase? Makes me nervous about my own baby.

>s.

Kori

Mama of

Kenton - 6/98

Merek - 3/00

Darbi - 3/28/03 - Rt. CF - DBB 12hr/d

(¨`·.·´¨)

`·.¸(¨`·.·´¨)

`·.¸.·´

[Guest guest]

I wouldn't include Dylan with the typical relapse rate either as we

didn't start with a Ponseti doc until 14 months. Dylan also require

a posterior release since we started so late with the method and

were unable to get a complete correction with casting and a

tenotomy.

Theresa

> > > Hi all! It's been quite some time since I've posted here as

> > things

> > > had been uneventful up until this point.

> > >

> > > We had our check-up with Dr. Herzenberg last week and he's

> > > considereing doing the tendon transfer on Dylans feet. He

wants

> > us

> > > to come to a symposium in September to get some opinions of

other

> > > clubfoot docs.

> > >

> > > What I was hoping for from all of you was any information you

> have

> > > about the procedure itself, the recovery and such (how long in

> > > casts, is it outpatient, how much pain, etc). I didn't think

to

> > ask

> > > anything at the appointment as I was caught a little off guard

> and

> > > nothing was definately decided.

> > >

> > > Also, will anyone else here be at the symposium in September?

> > >

> > > Thanks in advance for any info or guidance you can give me.

If

> > you

> > > would prefer to e-mail me off the board my address is

> > > tanda912@y...

> > >

> > > Theresa

>

>

>

>

>

[Guest guest]

No, we won't. :-( I'm originally from Iowa and we just spent a

couple weeks there on vacation. When I first decided I wanted to

visit Dr Ponseti, it was because I wanted to meet him. But then, in

talking to my doctor, he thought it would be the perfect time

because we had tried and tried with Emma's right foot (the stubborn

one) and at this point, it was time to " call in the Master " as Dr

calls him! :-) I'm really gland we took Emma and I'm glad

that her (hopefully) last 2 sets of casts were 'true' Ponseti casts

by the Master, himself! The next time we are in Iowa, I may make an

appointment to let him know how she is doing, like a follow-up or

something. I want to keep him informed on her " dimples " in her

feet. I don't know if you read that post before, but she has these

dimples in her feet that he said he hadn't ever seen before. I love

that man! He cupped Emma's face with his hands and said " This child

is an angel. " I'm sure he says that to alot of his babies, but he

was absolutely wonderful with her. It was incredible!

Let me know about the tendon transfer and he he recommends it for

your daughter!

www.pediatric-othopedic-foundation.org

> > > Hi all! It's been quite some time since I've posted here as

> > things

> > > had been uneventful up until this point.

> > >

> > > We had our check-up with Dr. Herzenberg last week and he's

> > > considereing doing the tendon transfer on Dylans feet. He

wants

> > us

> > > to come to a symposium in September to get some opinions of

other

> > > clubfoot docs.

> > >

> > > What I was hoping for from all of you was any information you

> have

> > > about the procedure itself, the recovery and such (how long in

> > > casts, is it outpatient, how much pain, etc). I didn't think

to

> > ask

> > > anything at the appointment as I was caught a little off guard

> and

> > > nothing was definately decided.

> > >

> > > Also, will anyone else here be at the symposium in September?

> > >

> > > Thanks in advance for any info or guidance you can give me.

If

> > you

> > > would prefer to e-mail me off the board my address is

> > > tanda912@y...

> > >

> > > Theresa

[Guest guest]

In Emma's case, she was severe bilateral. The right foot was much

worse than the left and that is why we have never really been able

to get it to where it needs to be very easily.

www.pediatric-orthopedic-foundation.org

> > > Hi all! It's been quite some time since I've posted here as

> > things

> > > had been uneventful up until this point.

> > >

> > > We had our check-up with Dr. Herzenberg last week and he's

> > > considereing doing the tendon transfer on Dylans feet. He

wants

> > us

> > > to come to a symposium in September to get some opinions of

other

> > > clubfoot docs.

> > >

> > > What I was hoping for from all of you was any information you

> have

> > > about the procedure itself, the recovery and such (how long in

> > > casts, is it outpatient, how much pain, etc). I didn't think

to

> > ask

> > > anything at the appointment as I was caught a little off guard

> and

> > > nothing was definately decided.

> > >

> > > Also, will anyone else here be at the symposium in September?

> > >

> > > Thanks in advance for any info or guidance you can give me.

If

> > you

> > > would prefer to e-mail me off the board my address is

> > > tanda912@y...

> > >

> > > Theresa

>

>

>

>

>