Re: Getting over Blisters!

[Guest guest]

Hi Sandy,

My grandson Andrez also developed a very bad blister and was out of

his shoes for 12 days. We took him back to his doctor who re-casted

him for 3 weeks because he lost some of his correction. I've read

that most babies are casted while their blisters are healing but our

doctor did not suggest that - if he had Andrez would not have had to

go back in the casts. Well to make matters worse, when my daughter

took Andrez back to have his casts removed and hoping to have him

back in his shoes, his x-rays showed his hips were setting right so

now he has to wear a harness and short cast for 3 months! We are

hoping after the 3 months we will be through with the casts.

Best of luck to little Lola!

Andrez BCF 2-13-04

> Hi Everyone,

>

> Sandy and Lola here. Lola is having a really tough time getting

back

> use to her Bar and Shoes... She had a really badly infected blister

> which she had to go on antibiotics for - anyway - we got over that

> phase - I have started to reintroduce the boots - her scab had

fallen

> off her blister - but there was still a tiny little one - but I

went

> in to see my Orthodist - Dr Patel - and he said they looked fine

and

> I should continue on with putting the shoes on. Anyway - I have

been

> trying to put them on for a few more hours each day - however

today -

> she has just screamed and screamed all day - which is so unlike

her -

> so I had another look at her feet and the sore foot is a bit red

but

> there now seems to be a lump there? Almost like a bone or a callus?

> Has anybody else had this happen to them? I am at my wits end as I

> just want to get them back on and happening - Dr Patel has assured

me

> that her feet are very well corrected and not to be too concerned

> about them relapsing - but it does concern me as she has not had

them

> on full time now for 3 weeks!

>

> We are having a long weekend this weekend in Australia - so I will

> have to wait until Tuesday to call Dr Patel and try to get in to

see

> him... if anybody else out there has gone through this would

greatly

> appreciate any suggestions on how you got over it? Maybe I put the

> shoes back on too early?

>

> Looking forward to hearing back from anyone!

>

> Thanks

>

> Sandy and Lola

>

> Moderate Bilateral club foot. 02-12-04

[Guest guest]

Sandy,

DO I read correctly that Lola was out of shoes but not in cast while healing?

If that is the case the the problem is most likely that she lost correction

while healing and now the shoes really hurt. Especially if she never acted that

way before with the shoes.

Not knowing the geography of Australia, I dont know if any of the other Ponseti

doctors are near you; but I suggest that if she was out of shoes for so long

then she really needs another cast - even if the doc isnt certain that

correction was lost - and if Dr Patel is not willing to do that for her there

are other doctors you can contact.

Bellemore, M.D.

Suite 3, Ground Floor

Children's Hospital Centre

Hainsworth Street

Westmead, NSW 2145, Australia

Tel: (02) 9893-7394

Haemish Crawford, M.D.

Starship Children's Hospital

Private Bag 92024

Aukland, New Zealand

Tel: 09-379-7440

Email Dr. Crawford

Good luck and I hope to hear she is all better soon!

Angel

Getting over Blisters!

Hi Everyone,

Sandy and Lola here. Lola is having a really tough time getting back

use to her Bar and Shoes... She had a really badly infected blister

which she had to go on antibiotics for - anyway - we got over that

phase - I have started to reintroduce the boots - her scab had fallen

off her blister - but there was still a tiny little one - but I went

in to see my Orthodist - Dr Patel - and he said they looked fine and

I should continue on with putting the shoes on. Anyway - I have been

trying to put them on for a few more hours each day - however today -

she has just screamed and screamed all day - which is so unlike her -

so I had another look at her feet and the sore foot is a bit red but

there now seems to be a lump there? Almost like a bone or a callus?

Has anybody else had this happen to them? I am at my wits end as I

just want to get them back on and happening - Dr Patel has assured me

that her feet are very well corrected and not to be too concerned

about them relapsing - but it does concern me as she has not had them

on full time now for 3 weeks!

We are having a long weekend this weekend in Australia - so I will

have to wait until Tuesday to call Dr Patel and try to get in to see

him... if anybody else out there has gone through this would greatly

appreciate any suggestions on how you got over it? Maybe I put the

shoes back on too early?

Looking forward to hearing back from anyone!

Thanks

Sandy and Lola

Moderate Bilateral club foot. 02-12-04

[Guest guest]

My daughter had a similar problem recently. She got a sore, healing cast,

shoes back on and then the sore came back. The doc said she didn't need a cast

this time but to leave the shoes off. Did that, shoes back on, sore came

back. Cut hole in shoe and saw that her heel was not staying flat like it was

supposed to. To get her heel to stay flat the shoes had to be so tight that she

started to get a sore on the top of her foot from the strap. So, we went back

to the doctor. He recommended a custom made AFO. She got fitted for the AFO

on Friday and we are going to pick it up on Tues. I questioned him on the

efficacy of the AFO vs. DBB. He said the results are the same as well as the

rate of relapse. He also said that DBB's less costly and that is why they are

the first choice of treatment. (an AFO costs $650.00 each time you get one) I

researched what he said on the web and found a group that studied babies with

DBB vs. AFO's and they found no difference in the level of correction or rate

of relapse. I completely believe in Dr. Ponseti but the DBB did not work for

us. Maybe when Kaitlin's foot grows we will try again. Also the AFO will not

have to involve her right foot- which is the foot that keeps getting the

sores.

Freeman

Kaitlin Freeman 3/9/04 LCF

Freeman

[Guest guest]

> Hi everyone,

Thanks for all your suggestions regarding Lola's blisters and getting

back into the shoes.

We have tried again this morning as I took her shoes off the other

day and her heel was still red and sore and with a small bump -

looked like a calcium build up. Anyway - we have them on at the

moment and she has slept for the last hour - that's hopeful!

Hoping we are back on track. Will speak to Dr Patel at our next

appointment re: correct fitting, re-casting?, cutting window in back

of shoe.... thanks again everyone.

Will keep you all posted.

>

> Sandy and Lola

>

> Moderate Bilateral club foot. 02-12-04

[Guest guest]

Hi ,

I think we have finally gotten back on track - geez - what a long

ordeal that all was! Lola has had her shoes on now successfully -

with sleep for the last 48 hours! Even when I put them back on after

her one hour she is not crying - maybe a bit of a whinge but I tend

to prop her in front of the tele and that distracts her enough for me

to get them back on. Blister has completely healed and looks

beautiful! I have bought these nifty little things called Blister

Blocks - they are a bandaid - but more like a cushion or second skin

you put on and it forms to your foot... they are ideal - if anybody

out there needs something to offer a bit of relief after a blister

for their little ones look out for them - they are not bulky like a

bandaid so easy to slip the shoes on and off over!

She has now gotten use to pulling her legs up in unison and kicking

them up in the air. A friend of mine has made some fleece " skirts " -

basically they are like a sleeping bag but only come up to the waist -

so I put her in a grow suit (feet cut out) and pop the skirt on top -

they just have an elastic waist band. She seems to love this as she

can still freely move about - great little invention... if anybody

out there needs help in their little ones sleeping this one worked

for us! If I don't put it on her - she wakes up every 15 mins.... I

will try to organise a photo of her in it and send it on the board so

eveyone can have a look.

I will let you know how we go at our next appointment - which is 1st

July! Thanks for everything - especially for getting me in

touch with this great board!

Take care

Sandy and Lola

BL Clubfeet

> > > Hi everyone,

> >

> > Thanks for all your suggestions regarding Lola's blisters and

> getting

> > back into the shoes.

> >

> > We have tried again this morning as I took her shoes off the

other

> > day and her heel was still red and sore and with a small bump -

> > looked like a calcium build up. Anyway - we have them on at the

> > moment and she has slept for the last hour - that's hopeful!

> >

> > Hoping we are back on track. Will speak to Dr Patel at our next

> > appointment re: correct fitting, re-casting?, cutting window in

> back

> > of shoe.... thanks again everyone.

> >

> > Will keep you all posted.

> >

> >

> > >

> > > Sandy and Lola

> > >

> > > Moderate Bilateral club foot. 02-12-04