Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 , thanks so much for sharing this with us! What a relief that you were able to avoid unnecessary treatment just in the nick of time. Good for you! I just did a search on 'femoral torsion' so that I could understand what it was - you learn something new everyday! Interestingly, one of the pages that I found noted that 'W' sitting is a leading cause of fermoral torsion: " For most regular kids, the most common cause of persistent femoral torsion is habitual kneeling or sitting in the W-position or television position. These positions perpetuate femoral torsion because they keep the hips in the internally rotated position. It is therefore important that all children, when sitting on the floor to play, learn to sit cross-legged Indian-style. This position places the hips in the externally rotated position and encourages the normal modeling process. " http://www.orthoseek.com/articles/femtorsion.html I think that for most of our cf kids, W sitting is most natural to them - at least when crawling around in the FAB. Thinking ahead, it's going to be a challenge trying to discourage Owen from sitting in that position! Daiga and Owen, 02/04/03 Unilateral LCF, FAB 14/24 > We have great news--I think! Many of you will remember a few weeks > back when I was looking for help and info on relapses because we > thought my son Evan (8-17-00, bcf) was relapsing. After sending pics > to Dr. Ponseti and consulting with our own doctor, we had really > decided that re-casting was the way to go. However, I could tell > that our doc. really did not think this was the thing to do as Evan's > feet are still so flexible. His diagnosis was " overactive tibial > tendons " . His hesitancy was driving us nuts, so I emailed Dr. Mosca > (also at Children's in Seattle and Ponseti trained) and he > immediately agreed to pop in to our next appointment and give his > opinion. And thank goodness he did! > > Dr. Mosca took one look at Evan running up and down the hallway and > told us to quit looking at the feet and to watch his knees instead. > The new diagnosis: femoral torsion. Dr. Mosca is currently doing a > study on femoral torsion in cf patients. He said there are never > 100%'s in medicine but he is finding that ALL cf kids have some > degree of femoral torsion. This is based on 20 years of treating cf > kids, first traditionally and then Ponseti method. This shows up > between 3 and 6 years of age and will resolve itself by age 8-10. > Only 1/10th of 1% of them don't. Time is the best and only treatment > at this stage. Unresolved femoral torsion means bone surgery but Dr. > Mosca says he has never seen one in 20 years. > > We are SO relieved with this as you can imagine. But I am also > extremely frustrated that this is not more well known. We were going > to proceed with casting and it would not have worked. Then the next > option would have been ATTT. And it wouldn't have helped either. So > I hope that by sharing this info., if anyone ever runs into an odd > relapse between age 3 and 6, make sure your doctor looks for femoral > torsion. I will be waiting eagerly for Dr. Mosca's finished study on > the cf-femoral torsion link. > > and Evan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 , Thanks for that info. Very interesting! I am glad you got the second opinion! Zoe is only 3 months old, but I am going to keep this for my file and I hope to hear more about this. It is nice to hear it will correct itself. Louisa and little Zoe 2-22-04 Rt uni CF > We have great news--I think! Many of you will remember a few weeks > back when I was looking for help and info on relapses because we > thought my son Evan (8-17-00, bcf) was relapsing. After sending pics > to Dr. Ponseti and consulting with our own doctor, we had really > decided that re-casting was the way to go. However, I could tell > that our doc. really did not think this was the thing to do as Evan's > feet are still so flexible. His diagnosis was " overactive tibial > tendons " . His hesitancy was driving us nuts, so I emailed Dr. Mosca > (also at Children's in Seattle and Ponseti trained) and he > immediately agreed to pop in to our next appointment and give his > opinion. And thank goodness he did! > > Dr. Mosca took one look at Evan running up and down the hallway and > told us to quit looking at the feet and to watch his knees instead. > The new diagnosis: femoral torsion. Dr. Mosca is currently doing a > study on femoral torsion in cf patients. He said there are never > 100%'s in medicine but he is finding that ALL cf kids have some > degree of femoral torsion. This is based on 20 years of treating cf > kids, first traditionally and then Ponseti method. This shows up > between 3 and 6 years of age and will resolve itself by age 8-10. > Only 1/10th of 1% of them don't. Time is the best and only treatment > at this stage. Unresolved femoral torsion means bone surgery but Dr. > Mosca says he has never seen one in 20 years. > > We are SO relieved with this as you can imagine. But I am also > extremely frustrated that this is not more well known. We were going > to proceed with casting and it would not have worked. Then the next > option would have been ATTT. And it wouldn't have helped either. So > I hope that by sharing this info., if anyone ever runs into an odd > relapse between age 3 and 6, make sure your doctor looks for femoral > torsion. I will be waiting eagerly for Dr. Mosca's finished study on > the cf-femoral torsion link. > > and Evan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 can you clarify what " W " sitting is please? Freeman Kaitlin Freeman LCF 3/9/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 , if you go to the following link, there is an illustration of 'w' sitting. http://www.orthoseek.com/articles/femtorsion.html Hope this helps, Daiga and Owen, 02/04/03 Unilateral LCF, FAB 14/24 > can you clarify what " W " sitting is please? > > Freeman > Kaitlin Freeman LCF 3/9/04 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Thanks, that helped to explain it really well! Freeman Kaitlin Freeman 3/9/04 LCF Quote Link to comment Share on other sites More sharing options...
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