Re: (unknown)

[Guest guest]

Hi Shana,

Welcome to the board. I'm very happy to hear that your brother seems to

have a very mild form of IgA. I for one do have achy legs...along with

restless leg syndrome. Sometimes it's difficult getting to sleep because it's

impossible to get comfortable. Does your brother take any meds that may cause

muscle type pain and has he mentioned this to his neph? Rita

[Guest guest]

Hi Shana,

Welcome to the board. I'm very happy to hear that your brother seems to

have a very mild form of IgA. I for one do have achy legs...along with

restless leg syndrome. Sometimes it's difficult getting to sleep because it's

impossible to get comfortable. Does your brother take any meds that may cause

muscle type pain and has he mentioned this to his neph? Rita

[Guest guest]

Welcome to the group, Shana.

I was about your brother's age when my symptoms of IgAN were first

discovered.

I don't think there is anything about mild IgAN by itself that would cause

achy legs. More advanced chronic renal failure could, but it doesn't sound

like you brother has that. Maybe medications though. Blood pressure meds can

do all sorts of things.

Pierre

Pierre

(unknown)

> Hello, my name is Shana and I am a new member. I joined because my

> brother who is 22 has been diagnosed with IgaN. We have known for about a

> year and a half now. He is doing very well, but it has not been easy to

> grasp. His labs are excellent, and he had his tonsils taken out a couple

> of months ago. He has normal protein levels and all else is good, no

> crescents on biopsy and his doctor calls his a mild form of the disease.

> However, one thing that he has each month is very achy legs. Do any of

> you suffer from this, or know someone who does? His doctor keeps saying

> it's unrelated, but we are unsure. Any ideas from anyone would be

> awesome! I hope that all of you are doing well!

> Shana

>

>

> ---------------------------------

>

[Guest guest]

Hi Shana,

A very warm welcome to you! I am sorry your brother has IgAN. He is

blessed to have a sister that takes such an interest in his health.

Sounds like he is in excellent shape right now with normal labs and protein

levels. I pray that continues for decades to come.

I do not know of any association between IgAN and achy legs.

Welcome again!

In a message dated 5/30/2005 4:17:31 P.M. Pacific Daylight Time,

shanajamison@... writes:

Hello, my name is Shana and I am a new member. I joined because my brother

who is 22 has been diagnosed with IgaN. We have known for about a year and

a half now. He is doing very well, but it has not been easy to grasp. His

labs are excellent, and he had his tonsils taken out a couple of months ago.

He has normal protein levels and all else is good, no crescents on biopsy

and his doctor calls his a mild form of the disease. However, one thing that

he has each month is very achy legs. Do any of you suffer from this, or know

someone who does? His doctor keeps saying it's unrelated, but we are unsure.

Any ideas from anyone would be awesome! I hope that all of you are doing

well!

Shana

[Guest guest]

Hi Shana,

A very warm welcome to you! I am sorry your brother has IgAN. He is

blessed to have a sister that takes such an interest in his health.

Sounds like he is in excellent shape right now with normal labs and protein

levels. I pray that continues for decades to come.

I do not know of any association between IgAN and achy legs.

Welcome again!

In a message dated 5/30/2005 4:17:31 P.M. Pacific Daylight Time,

shanajamison@... writes:

Hello, my name is Shana and I am a new member. I joined because my brother

who is 22 has been diagnosed with IgaN. We have known for about a year and

a half now. He is doing very well, but it has not been easy to grasp. His

labs are excellent, and he had his tonsils taken out a couple of months ago.

He has normal protein levels and all else is good, no crescents on biopsy

and his doctor calls his a mild form of the disease. However, one thing that

he has each month is very achy legs. Do any of you suffer from this, or know

someone who does? His doctor keeps saying it's unrelated, but we are unsure.

Any ideas from anyone would be awesome! I hope that all of you are doing

well!

Shana

[Guest guest]

Hi Shana,

A very warm welcome to you! I am sorry your brother has IgAN. He is

blessed to have a sister that takes such an interest in his health.

Sounds like he is in excellent shape right now with normal labs and protein

levels. I pray that continues for decades to come.

I do not know of any association between IgAN and achy legs.

Welcome again!

In a message dated 5/30/2005 4:17:31 P.M. Pacific Daylight Time,

shanajamison@... writes:

Hello, my name is Shana and I am a new member. I joined because my brother

who is 22 has been diagnosed with IgaN. We have known for about a year and

a half now. He is doing very well, but it has not been easy to grasp. His

labs are excellent, and he had his tonsils taken out a couple of months ago.

He has normal protein levels and all else is good, no crescents on biopsy

and his doctor calls his a mild form of the disease. However, one thing that

he has each month is very achy legs. Do any of you suffer from this, or know

someone who does? His doctor keeps saying it's unrelated, but we are unsure.

Any ideas from anyone would be awesome! I hope that all of you are doing

well!

Shana

[Guest guest]

> Hi Shana,

>

> Welcome to the board. I'm very happy to hear that your brother

seems to

> have a very mild form of IgA. I for one do have achy

legs...along with

> restless leg syndrome. Sometimes it's difficult getting to sleep

because it's

> impossible to get comfortable. Does your brother take any meds

that may cause

> muscle type pain and has he mentioned this to his neph? Rita

>

>

>

[Guest guest]

> Hi Shana,

>

> Welcome to the board. I'm very happy to hear that your brother

seems to

> have a very mild form of IgA. I for one do have achy

legs...along with

> restless leg syndrome. Sometimes it's difficult getting to sleep

because it's

> impossible to get comfortable. Does your brother take any meds

that may cause

> muscle type pain and has he mentioned this to his neph? Rita

>

>

>

[Guest guest]

> Hi Shana,

>

> Welcome to the board. I'm very happy to hear that your brother

seems to

> have a very mild form of IgA. I for one do have achy

legs...along with

> restless leg syndrome. Sometimes it's difficult getting to sleep

because it's

> impossible to get comfortable. Does your brother take any meds

that may cause

> muscle type pain and has he mentioned this to his neph? Rita

>

>

>

[Guest guest]

Hi ,

You are correct that Motrin is definitely to be avoided, and also that only

trace protein is a good thing. Spilling large amounts of protein is very

hard on kidneys so keeping that in check is important. It seems like his Neph

is following him closely and he is in good hands.

I am glad that your son is doing well and able to be a normal 8 year old.

Hopefully those flare-ups will be few and far between.

In a message dated 5/31/2005 12:26:25 P.M. Pacific Daylight Time,

valmond@... writes:

Hi ,

My 8 year old son had his biopsy about 18 months ago. When he was initially

diagnosed, he was tired and sometimes dizzy. He was actually anemic due to

blood loss. He began taking iron pills and fish oil and after a few months,

he was no longer anemic. He now sees the nephrologist every 3 months but he

is a normal 8 yr old. I try not to be overprotective as he plays all sports.

He knows to tell me if he's dizzy or tired and not to flush dark, foamy

urine until we've seen it. I'm watching for " flare ups " per the nephs

suggestion. This is where blood is visible and the foam indicates protein. He

has

had 2 flare ups since diagnosis, but his normal urinalysis has microscopic

blood and trace protein. At this stage, they monitor his kidney function but

there is no real treatment. We have banned motrin from the house. His

pediatrician says it works better but the neph says he is absolutely not to

have any

motrin as it can have adverse effects on kidneys. I hope you find answers

soon and that your son does well. It is my belief that only trace protein is

a good thing.

[Guest guest]

Hi ,

You are correct that Motrin is definitely to be avoided, and also that only

trace protein is a good thing. Spilling large amounts of protein is very

hard on kidneys so keeping that in check is important. It seems like his Neph

is following him closely and he is in good hands.

I am glad that your son is doing well and able to be a normal 8 year old.

Hopefully those flare-ups will be few and far between.

In a message dated 5/31/2005 12:26:25 P.M. Pacific Daylight Time,

valmond@... writes:

Hi ,

My 8 year old son had his biopsy about 18 months ago. When he was initially

diagnosed, he was tired and sometimes dizzy. He was actually anemic due to

blood loss. He began taking iron pills and fish oil and after a few months,

he was no longer anemic. He now sees the nephrologist every 3 months but he

is a normal 8 yr old. I try not to be overprotective as he plays all sports.

He knows to tell me if he's dizzy or tired and not to flush dark, foamy

urine until we've seen it. I'm watching for " flare ups " per the nephs

suggestion. This is where blood is visible and the foam indicates protein. He

has

had 2 flare ups since diagnosis, but his normal urinalysis has microscopic

blood and trace protein. At this stage, they monitor his kidney function but

there is no real treatment. We have banned motrin from the house. His

pediatrician says it works better but the neph says he is absolutely not to

have any

motrin as it can have adverse effects on kidneys. I hope you find answers

soon and that your son does well. It is my belief that only trace protein is

a good thing.

[Guest guest]

Hi ,

You are correct that Motrin is definitely to be avoided, and also that only

trace protein is a good thing. Spilling large amounts of protein is very

hard on kidneys so keeping that in check is important. It seems like his Neph

is following him closely and he is in good hands.

I am glad that your son is doing well and able to be a normal 8 year old.

Hopefully those flare-ups will be few and far between.

In a message dated 5/31/2005 12:26:25 P.M. Pacific Daylight Time,

valmond@... writes:

Hi ,

My 8 year old son had his biopsy about 18 months ago. When he was initially

diagnosed, he was tired and sometimes dizzy. He was actually anemic due to

blood loss. He began taking iron pills and fish oil and after a few months,

he was no longer anemic. He now sees the nephrologist every 3 months but he

is a normal 8 yr old. I try not to be overprotective as he plays all sports.

He knows to tell me if he's dizzy or tired and not to flush dark, foamy

urine until we've seen it. I'm watching for " flare ups " per the nephs

suggestion. This is where blood is visible and the foam indicates protein. He

has

had 2 flare ups since diagnosis, but his normal urinalysis has microscopic

blood and trace protein. At this stage, they monitor his kidney function but

there is no real treatment. We have banned motrin from the house. His

pediatrician says it works better but the neph says he is absolutely not to

have any

motrin as it can have adverse effects on kidneys. I hope you find answers

soon and that your son does well. It is my belief that only trace protein is

a good thing.

[Guest guest]

Hi ,

Welcome to the board. It's so sad to hear of little ones afflicted with

this disease. My heart goes out to you.

It is good to hear though that your little boys proteinurea is now down to a

trace. Spilling significant amounts of protein is very hard on the kidneys.

I can attest to the fact that I do tire easily and I do suffer from flank

pain on occasion. I know others here do as well.

Welcome again, Rita

[Guest guest]

Hi ,

Welcome to the board. It's so sad to hear of little ones afflicted with

this disease. My heart goes out to you.

It is good to hear though that your little boys proteinurea is now down to a

trace. Spilling significant amounts of protein is very hard on the kidneys.

I can attest to the fact that I do tire easily and I do suffer from flank

pain on occasion. I know others here do as well.

Welcome again, Rita

[Guest guest]

Hi ,

Welcome to the board. It's so sad to hear of little ones afflicted with

this disease. My heart goes out to you.

It is good to hear though that your little boys proteinurea is now down to a

trace. Spilling significant amounts of protein is very hard on the kidneys.

I can attest to the fact that I do tire easily and I do suffer from flank

pain on occasion. I know others here do as well.

Welcome again, Rita

[Guest guest]

Shana:

I want to add my welcome to the board for you and your brother. This can be a

lot to absorb, so while you learn about IgAN at te rocket pace, let your brother

take his own pace. Sometimes too much info all at once is not the best for the

patient.

I never had really bad aches (only on occasions), so I cannot help you there,

but I look forward to chatting...

Shana Jamison wrote:

Hello, my name is Shana and I am a new member. I joined because my brother who

is 22 has been diagnosed with IgaN. We have known for about a year and a half

now. He is doing very well, but it has not been easy to grasp. His labs are

excellent, and he had his tonsils taken out a couple of months ago. He has

normal protein levels and all else is good, no crescents on biopsy and his

doctor calls his a mild form of the disease. However, one thing that he has

each month is very achy legs. Do any of you suffer from this, or know someone

who does? His doctor keeps saying it's unrelated, but we are unsure. Any ideas

from anyone would be awesome! I hope that all of you are doing well!

Shana

---------------------------------

[Guest guest]

Shana:

I want to add my welcome to the board for you and your brother. This can be a

lot to absorb, so while you learn about IgAN at te rocket pace, let your brother

take his own pace. Sometimes too much info all at once is not the best for the

patient.

I never had really bad aches (only on occasions), so I cannot help you there,

but I look forward to chatting...

Shana Jamison wrote:

Hello, my name is Shana and I am a new member. I joined because my brother who

is 22 has been diagnosed with IgaN. We have known for about a year and a half

now. He is doing very well, but it has not been easy to grasp. His labs are

excellent, and he had his tonsils taken out a couple of months ago. He has

normal protein levels and all else is good, no crescents on biopsy and his

doctor calls his a mild form of the disease. However, one thing that he has

each month is very achy legs. Do any of you suffer from this, or know someone

who does? His doctor keeps saying it's unrelated, but we are unsure. Any ideas

from anyone would be awesome! I hope that all of you are doing well!

Shana

---------------------------------

[Guest guest]

Rest to sure you are....You reached me here in NJ. Conni

[Guest guest]

Rita,

Yes I get you.

Jane Anne

(unknown)

> Am I getting thru?

>

> Rita

>

>

>

>

>

>

>

[Guest guest]

I am 40 and have type 1 diabetes and I am on the Paradigm Pump by Mini-Med.

I love it.

I also know of a 3 1/2 year old on this pump too. She is having very good

results. It took awhile to make the infusion site injections less stressful for

her. But she doesn't mind them much now. She is to young to control the pump

herself, but your daughter would probably get the hang of it pretty quick. It

would make it easier at school too.

The monitor that tests the BS feeds information into the pump automatically

and after the pump is set up correctly, it will tell the user how much insulin

they need for the amount of carbs they eat. It's great

Shellie

jbdreams2000 wrote:

MY 6 YEAR OLD DAUGHTER IS DIABETIC. I AM READING INFORMATION REGARDING

THE PUMP AND IT SOUNDS LIKE YOU CAN GET REALLY GOOD RESULTS. DOES

ANYONE HAVE CHILD USING THE PUMP?

Diabetes homepage: http://groups.yahoo.com/group/diabetes/

To unsubscribe to this group, send an email to:

diabetes-unsubscribe

Hope you come back soon!

[Guest guest]

We live in the DFW area. Our daughter is 17 mos old.

She has bilateral cochlear implants. We use

Bliss ()for AVT therapy & there is another

AVT therapist in town s that I know of.

The Callier center - which is affiliated with the Univ

of Texas at Dallas - fitted our daughter with hearing

aids (before she received her implant) and also

adjusts her cochlear implant has a HOH preschool

program, but I don't know too much about it. The

Callier Center's phone number is and they

are located on 1966 Inwood Rd in Dallas (off hwy 35E.)

They also have a location in North Dallas if you are

moving to that part of town.

--- Walden wrote:

> Our family is moving to Dallas, Texas and I'm

> wondering if anyone can help

> me find information about services there.

> Especially for therapy and

> preschool.

>

> Thanks!

>

> Walden

> Mom to 3 yr (moderate to profound, LVAS)

>

>

_________________________________________________________________

> Is your PC infected? Get a FREE online computer

> virus scan from McAfee®

> Security.

>

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

>

>

>

> All messages posted to this list are private and

> confidential. Each post is the intellectual

> property of the author and therefore subject to

> copyright restrictions.

>

[Guest guest]

We live in the DFW area. Our daughter is 17 mos old.

She has bilateral cochlear implants. We use

Bliss ()for AVT therapy & there is another

AVT therapist in town s that I know of.

The Callier center - which is affiliated with the Univ

of Texas at Dallas - fitted our daughter with hearing

aids (before she received her implant) and also

adjusts her cochlear implant has a HOH preschool

program, but I don't know too much about it. The

Callier Center's phone number is and they

are located on 1966 Inwood Rd in Dallas (off hwy 35E.)

They also have a location in North Dallas if you are

moving to that part of town.

--- Walden wrote:

> Our family is moving to Dallas, Texas and I'm

> wondering if anyone can help

> me find information about services there.

> Especially for therapy and

> preschool.

>

> Thanks!

>

> Walden

> Mom to 3 yr (moderate to profound, LVAS)

>

>

_________________________________________________________________

> Is your PC infected? Get a FREE online computer

> virus scan from McAfee®

> Security.

>

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

>

>

>

> All messages posted to this list are private and

> confidential. Each post is the intellectual

> property of the author and therefore subject to

> copyright restrictions.

>

[Guest guest]

We live in the DFW area. Our daughter is 17 mos old.

She has bilateral cochlear implants. We use

Bliss ()for AVT therapy & there is another

AVT therapist in town s that I know of.

The Callier center - which is affiliated with the Univ

of Texas at Dallas - fitted our daughter with hearing

aids (before she received her implant) and also

adjusts her cochlear implant has a HOH preschool

program, but I don't know too much about it. The

Callier Center's phone number is and they

are located on 1966 Inwood Rd in Dallas (off hwy 35E.)

They also have a location in North Dallas if you are

moving to that part of town.

--- Walden wrote:

> Our family is moving to Dallas, Texas and I'm

> wondering if anyone can help

> me find information about services there.

> Especially for therapy and

> preschool.

>

> Thanks!

>

> Walden

> Mom to 3 yr (moderate to profound, LVAS)

>

>

_________________________________________________________________

> Is your PC infected? Get a FREE online computer

> virus scan from McAfee®

> Security.

>

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

>

>

>

> All messages posted to this list are private and

> confidential. Each post is the intellectual

> property of the author and therefore subject to

> copyright restrictions.

>

[Guest guest]

I don't know where you are moving to in Dallas. There are several places for

service. Dr s is an ENT at Medical City Dallas on Forest Lane. Dr.

Roland is also in Dallas. Dr. s works with s and

Gage for speech therapy. There is also the Callier Center that works with

children. All of these are good places but of course there are pros and cons

for each. Your child would get good service at any of these.

Quita Farley

Mom to Rebekah 13 (profound has CI and HA)

[Norton AntiSpam] (unknown)

> Our family is moving to Dallas, Texas and I'm wondering if anyone can help

> me find information about services there. Especially for therapy and

> preschool.

>

> Thanks!

>

> Walden

> Mom to 3 yr (moderate to profound, LVAS)

>

> _________________________________________________________________

> Is your PC infected? Get a FREE online computer virus scan from McAfee®

> Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

>

>

>

> All messages posted to this list are private and confidential. Each post

> is the intellectual property of the author and therefore subject to

> copyright restrictions.

>

[Guest guest]

My friend lives in the DFW area and also goes to s and Dr.

s. Her son has bilateral implants.

Elaine