Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 My precious daughter had a tenotomy on both of her feet today and then they were casted. Because she has severe, atypical club feet, her tenotomies were done in the middle of the casting instead of the end of the process so she'll continue to get casts changed over the next few weeks. However, I have a question or two. When we were leaving the office the Dr. said that some blood would seep through the cast at the site and that was perfectly normal so not to worry. By the time we got home (10 minutes tops) one foot was already seeping through. Is this really normal? Also, we were told to keep her feet elevated for a few days and that it would help with the pain. However she has other health problems and must have her torso elevated as well during and for 90 minutes after each feeding. It seems they are mutually exclusive. Any ideas? Finally, I had read so much about this procedure here and thought that it was not painful at all. Poor is quite miserable and I am beside myself. When does the pain stop? How long will it take for her to be able to move her legs or have us move them without experiencing pain? She's on tylenol with codeine but it isn't stopping the pain completely at all. HELP!!! Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Sorry to read about 's difficulty with the tenotomy. Is she crying constantly and inconsolably? Our daughter did feel some pain too for the first day but I don't remember it being constant. As for the blood, it is normal for a spot the size of a quarter or a bit bigger to form. It's also normal for one foot to bleed more than the other. I wish I could help more but thought you could at least be reassured about the bleeding. Dan Tenotomy Today My precious daughter had a tenotomy on both of her feet today and then they were casted. Because she has severe, atypical club feet, her tenotomies were done in the middle of the casting instead of the end of the process so she'll continue to get casts changed over the next few weeks. However, I have a question or two. When we were leaving the office the Dr. said that some blood would seep through the cast at the site and that was perfectly normal so not to worry. By the time we got home (10 minutes tops) one foot was already seeping through. Is this really normal? Also, we were told to keep her feet elevated for a few days and that it would help with the pain. However she has other health problems and must have her torso elevated as well during and for 90 minutes after each feeding. It seems they are mutually exclusive. Any ideas? Finally, I had read so much about this procedure here and thought that it was not painful at all. Poor is quite miserable and I am beside myself. When does the pain stop? How long will it take for her to be able to move her legs or have us move them without experiencing pain? She's on tylenol with codeine but it isn't stopping the pain completely at all. HELP!!! Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Hi I'm sorry you and are having such a rough time of it! For Jake, the first day was definitely the worst. He had his surgery bright & early at 7am...he would sleep for a couple hours at a time, and then wake up shrieking from the pain! Our dr only allowed tylenol, but I don't think it really helped much. All I could do was try to comfort him as best I could, and nursing really helped (he got that cuddle time with me and it would put him back to sleep). Like I said before, the first day was the worst, and even by that evening he was pretty much back to his usual self. About the bleeding, I'd suggest calling your dr's office about it. We were told by our dr that Jake's might seep thru a little, but we didn't have any bleeding at all. So I'd give your dr a call, it never hurts to just ask about it. As far as trying to keep her legs elevated...you could try just folding a blanket and putting that under her legs. Then, even when she's sitting up after feedings, they wouldn't be too high. The main reason for elevating the legs is to help decrease any bleeding and swelling that she could get in her heels from the surgery. I don't know that they need to be elevated really really high or anything, so maybe just a folded blanket or towel would do the trick. Good luck, and tomorrow will definitely be better for you both. Kassia mommy to 3/22/01 (Lt club foot) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Hi there So sorry you are having a nasty time of it. My son (unilateral left clubfoot)had his tenotomy done twice, and we had very different experiences with them. The first time he was as you describe your daughter, absolutely inconsolable. I could see him fles his leg and his eyes would shoot open with the pain and he would scream and scream. It also bled alot and he had a toonie sized blood stain in his cast. He hardly slept that night, lots of short naps broken up with loud crying. He was better the next day but still pretty bad. I would say it took 2-3 full days before he was himself again. The second time was totally different. After the tenotomy he had a massive nap for about 3 hours, and when he woke he was fine. no crying...nothing. And it didn't even bleed. Basically every child is different and every tenotomy is different. Trust your instincts, if it is bleeding too much or your baby girl is too upset you will know. If you are in doubt take her in. It can't hurt. Hope she is feeling better soon. Ruth Mum to Ben born March 31, 2003 left clubfoot Now in DBB nights and naps. > My precious daughter had a tenotomy on both of her feet today and then they were casted. Because she has severe, atypical club feet, her tenotomies were done in the middle of the casting instead of the end of the process so she'll continue to get casts changed over the next few weeks. > > However, I have a question or two. When we were leaving the office the Dr. said that some blood would seep through the cast at the site and that was perfectly normal so not to worry. By the time we got home (10 minutes tops) one foot was already seeping through. Is this really normal? Also, we were told to keep her feet elevated for a few days and that it would help with the pain. However she has other health problems and must have her torso elevated as well during and for 90 minutes after each feeding. It seems they are mutually exclusive. Any ideas? Finally, I had read so much about this procedure here and thought that it was not painful at all. Poor is quite miserable and I am beside myself. When does the pain stop? How long will it take for her to be able to move her legs or have us move them without experiencing pain? She's on tylenol with codeine but it isn't stopping the pain completely at all. HELP!!! > > Chris > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Thanks, Dan. I called the dr. and he had us come in right away. He took the cast off to be sure she was fine and then recast her. She's been much better since. Don't know what changed unless the case was bothering her... I'm just glad she's doing better. Then again the tylenol with codeine could have something to do with that! LOL Tenotomy Today My precious daughter had a tenotomy on both of her feet today and then they were casted. Because she has severe, atypical club feet, her tenotomies were done in the middle of the casting instead of the end of the process so she'll continue to get casts changed over the next few weeks. However, I have a question or two. When we were leaving the office the Dr. said that some blood would seep through the cast at the site and that was perfectly normal so not to worry. By the time we got home (10 minutes tops) one foot was already seeping through. Is this really normal? Also, we were told to keep her feet elevated for a few days and that it would help with the pain. However she has other health problems and must have her torso elevated as well during and for 90 minutes after each feeding. It seems they are mutually exclusive. Any ideas? Finally, I had read so much about this procedure here and thought that it was not painful at all. Poor is quite miserable and I am beside myself. When does the pain stop? How long will it take for her to be able to move her legs or have us move them without experiencing pain? She's on tylenol with codeine but it isn't stopping the pain completely at all. HELP!!! Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Thanks Kassia. I did go back to the Dr. and he changed the casts - she's been better since. We have used rolled towels under her casts since the first ones in the NICU. Our problem is elevating both ends of her body at the same time... it's a challenge. Can you tell me how long you need to keep her feet elevated? Re: Tenotomy Today Hi I'm sorry you and are having such a rough time of it! For Jake, the first day was definitely the worst. He had his surgery bright & early at 7am...he would sleep for a couple hours at a time, and then wake up shrieking from the pain! Our dr only allowed tylenol, but I don't think it really helped much. All I could do was try to comfort him as best I could, and nursing really helped (he got that cuddle time with me and it would put him back to sleep). Like I said before, the first day was the worst, and even by that evening he was pretty much back to his usual self. About the bleeding, I'd suggest calling your dr's office about it. We were told by our dr that Jake's might seep thru a little, but we didn't have any bleeding at all. So I'd give your dr a call, it never hurts to just ask about it. As far as trying to keep her legs elevated...you could try just folding a blanket and putting that under her legs. Then, even when she's sitting up after feedings, they wouldn't be too high. The main reason for elevating the legs is to help decrease any bleeding and swelling that she could get in her heels from the surgery. I don't know that they need to be elevated really really high or anything, so maybe just a folded blanket or towel would do the trick. Good luck, and tomorrow will definitely be better for you both. Kassia mommy to 3/22/01 (Lt club foot) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Ruth, THanks for sharing. She's better today but still completely annoyed when her legs are bothered. One leg seems to be sitting weird, too. Not her normal, open lay if you know what I mean. I hope she settles down for her sake soon! Chris Re: Tenotomy Today Hi there So sorry you are having a nasty time of it. My son (unilateral left clubfoot)had his tenotomy done twice, and we had very different experiences with them. The first time he was as you describe your daughter, absolutely inconsolable. I could see him fles his leg and his eyes would shoot open with the pain and he would scream and scream. It also bled alot and he had a toonie sized blood stain in his cast. He hardly slept that night, lots of short naps broken up with loud crying. He was better the next day but still pretty bad. I would say it took 2-3 full days before he was himself again. The second time was totally different. After the tenotomy he had a massive nap for about 3 hours, and when he woke he was fine. no crying...nothing. And it didn't even bleed. Basically every child is different and every tenotomy is different. Trust your instincts, if it is bleeding too much or your baby girl is too upset you will know. If you are in doubt take her in. It can't hurt. Hope she is feeling better soon. Ruth Mum to Ben born March 31, 2003 left clubfoot Now in DBB nights and naps. > My precious daughter had a tenotomy on both of her feet today and then they were casted. Because she has severe, atypical club feet, her tenotomies were done in the middle of the casting instead of the end of the process so she'll continue to get casts changed over the next few weeks. > > However, I have a question or two. When we were leaving the office the Dr. said that some blood would seep through the cast at the site and that was perfectly normal so not to worry. By the time we got home (10 minutes tops) one foot was already seeping through. Is this really normal? Also, we were told to keep her feet elevated for a few days and that it would help with the pain. However she has other health problems and must have her torso elevated as well during and for 90 minutes after each feeding. It seems they are mutually exclusive. Any ideas? Finally, I had read so much about this procedure here and thought that it was not painful at all. Poor is quite miserable and I am beside myself. When does the pain stop? How long will it take for her to be able to move her legs or have us move them without experiencing pain? She's on tylenol with codeine but it isn't stopping the pain completely at all. HELP!!! > > Chris > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2004 Report Share Posted March 21, 2004 <> I would think probably just for a couple of days or so. I'm glad to hear 's doing better. Kassia Quote Link to comment Share on other sites More sharing options...
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