Re: Has anyone had this happen?

[Guest guest]

Kassia,

Dr. Dietz is wonderful. He works very closely with Dr. Ponseti. I

believe his office is next door. He actually consulted with Dr.

Ponseti regarding our son. You're in good hands.

Bethany

> Kassia-

>

> Unfortunately regression does happen more often without compliance

of the

> DBB wear. You mention going to Iowa. Why don't you go see Dr.

Ponseti

> himself? He would be able to tell you best if your son could avoid

surgery

> through castings and DBB wear again. If you need his contact

information we

> can provide that for you.

>

>

>

>

> >From: " ksfultz2 "

> >Reply-To: nosurgery4clubfoot

> >To: nosurgery4clubfoot

> >Subject: Has anyone had this happen?

> >Date: Tue, 02 Mar 2004 18:07:16 -0000

> >

> >Hello everyone,

> >

> >Let me introduce my family first. My name is Kassia. I'm a

> >registered nurse in labor & delivery. My husband, Seth, is a

computer

> >programmer. We have a son, , who will be three years old

later

> >on this month, and a daughter, , who is 15 mos old.

> >

> >Jake was born with a left club foot. He has been going thru

> >treatments in the Ponseti method. He had full-leg casts until he

was

> >10 wks old, with the tendon release surgery at 6 wks old. He has

been

> >in orthopedic shoes with the Browne bar off and on since then (he

had

> >to wear them continuously for 3 mos, then just at night for a good

6-8

> >mos). His foot was looking very good and it was getting to be a

fight

> >to keep them on, so he went to just wearing the reverse-last shoe

on

> >his left foot at night (no bar).

> >

> >In the last year or so his left foot (the affected one) has

started to

> >turn in again. We went back to wearing the orthopedic shoes with

the

> >bar at night, and stretching his foot/heel during the day. The

last

> >couple mos or so, unfortunately, he hasn't been able to wear his

> >orthopedic shoes. Just wearing them for only one night has caused

> >sore spots and blisters. So, we talked to his dr, got his check-up

> >moved up a couple mos, and just tried our best to do the stretches

> >every day (a challenge with a very active three-year-old who hates

> >them!!).

> >

> >Today we had our check-up with Dr Pilcher (orthopedic surgeon).

> >Unfortunately Jake's foot is starting to relapse...the tendons are

> >starting to tighten up again. His foot turns in a little and he

walks

> >on tip-toes more now. So, we have an appt next week Monday with

> >another orthopedic surgeon at the University of Iowa. Dr Pilcher

said

> >that most likely the surgeon will recommend foot surgery (Dr

Pilcher

> >doesn't do that surgery very often so that's why we're seeing the

> >other dr). I'm hoping that by some miracle there will be something

> >else we can do before resorting to surgical treatment. I think it

> >would be absolutely horrible for Jake to have to be in a cast, let

> >alone having the surgery done.

> >

> >Has anyone had a child whose club foot relapsed? What treatment

was

> >done? As the child gets older, how did the foot do (did you need

more

> >therapy or something?)?

> >

> >Any information or support anyone can give would be much

appreciated.

> > Thanks in advance.

> >

> >Kassia

> >

> >

>

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