Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 Hi all, My beautiful little girl was born on January 30th 7 lbs 4 oz. The ultrasounds were correct and she has bilateral clubfeet. We spent part of her first week in NICU for some breathing difficulties and had her first set of cast put on at one week. Her feet are correcting well and we will be getting her 4th set of cast put on Friday. Her right foot is more flexible then her left and the doctor thinks that she will have to have the tendon release. He says that they usually do that at about 8 weeks. I am really worried about it but we will deal with that when it comes. I'll try to put a picture in the photo section. I hear her waking up so I better get going. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 : Good thing she is getting casted right away. Don't worry about the tenotomy until the time comes. I spent weeks fretting about the procedure (Vinnys first cast went on at 5 weeks old). There was minimal flexibility at best in his right foot, but what do ya know... by the 7/8th casts he started stretching (he had a total of 10 casts mainly becaus he learned how to shatter the plaster before the week was out). His doctor decided to do a couple more casts to see how far the tendon would be willing to stretch. As of now Vinny has been in his DBB shoes for almost 3 months and has come along beautifully. I still worry about him needing the tenotomy if his foot slips back, but I just make sure I stick to the shoe regiment as instructed to hopefully prevent this from happening. But for now... we are tenotomy free. Have faith and keep with the program! Laurie - Vinny's mommy (08-20-04 bilateral clubfoot) > Hi all, > My beautiful little girl was born on January 30th 7 lbs 4 oz. The > ultrasounds were correct and she has bilateral clubfeet. We spent > part of her first week in NICU for some breathing difficulties and > had her first set of cast put on at one week. Her feet are > correcting well and we will be getting her 4th set of cast put on > Friday. Her right foot is more flexible then her left and the doctor > thinks that she will have to have the tendon release. He says that > they usually do that at about 8 weeks. I am really worried about it > but we will deal with that when it comes. I'll try to put a picture > in the photo section. I hear her waking up so I better get going. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 Congratulations, , on your new baby girl. Don't worry about the tenotony. If it happens, it is over very quickly and they recover quickly. Maybe she won't need one. Best of luck, Robin & Rose 3/11/03 Right club foot sarah.beaver@...> wrote: Hi all, My beautiful little girl was born on January 30th 7 lbs 4 oz. The ultrasounds were correct and she has bilateral clubfeet. We spent part of her first week in NICU for some breathing difficulties and had her first set of cast put on at one week. Her feet are correcting well and we will be getting her 4th set of cast put on Friday. Her right foot is more flexible then her left and the doctor thinks that she will have to have the tendon release. He says that they usually do that at about 8 weeks. I am really worried about it but we will deal with that when it comes. I'll try to put a picture in the photo section. I hear her waking up so I better get going. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 Many congrats on the birth of your little one! Take lots of pictures (and of the feet - you'll be glad you did!) OH, but don't get too carried away, be sure to get some face pics too! (I got a little carried away with the feet pictures!) As far as the tenotomy goes - don't over-worry about that. It will go just fine, if needed. A good majority of Dr. Ponseti's patients (I'm not good with exact numbers) need the procedure, but it's so non-invasive, and the little ones tolerate it quite well - it's really nothing to lose sleep over (you're probably already sleep deprived enough as it is!) Again, congrats!!!!!!!!! Holly Zachary 7/27/02 Unilateral Right Clubfoot Treated by Dr. Ponseti 14 hrs/day DBB -- In nosurgery4clubfoot , Robin Lane wrote: > Congratulations, , on your new baby girl. Don't worry about the tenotony. If it happens, it is over very quickly and they recover quickly. Maybe she won't need one. > > Best of luck, > > Robin & Rose > 3/11/03 Right club foot > > wrote: > Hi all, > My beautiful little girl was born on January 30th 7 lbs 4 oz. The > ultrasounds were correct and she has bilateral clubfeet. We spent > part of her first week in NICU for some breathing difficulties and > had her first set of cast put on at one week. Her feet are > correcting well and we will be getting her 4th set of cast put on > Friday. Her right foot is more flexible then her left and the doctor > thinks that she will have to have the tendon release. He says that > they usually do that at about 8 weeks. I am really worried about it > but we will deal with that when it comes. I'll try to put a picture > in the photo section. I hear her waking up so I better get going. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 , Congratulations on the birth of your daughter! What did you name her? I understand your apprehension about the tenotomy - I'm sure that we all went through some degree of fear for our babies prior to the procedure. You will do fine, as will your precious baby girl, I'm sure! Once again, congratulations! Daiga and Owen, 02/04/03 Unilateral LCF, DBB 14/24 > Hi all, > My beautiful little girl was born on January 30th 7 lbs 4 oz. The > ultrasounds were correct and she has bilateral clubfeet. We spent > part of her first week in NICU for some breathing difficulties and > had her first set of cast put on at one week. Her feet are > correcting well and we will be getting her 4th set of cast put on > Friday. Her right foot is more flexible then her left and the doctor > thinks that she will have to have the tendon release. He says that > they usually do that at about 8 weeks. I am really worried about it > but we will deal with that when it comes. I'll try to put a picture > in the photo section. I hear her waking up so I better get going. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 , I read your email with great interest. Our precious little girl was born on 2/2 and also, as expected, has bilateral club feet. However, she spent her time in the NICU initially due to breathing difficulties. Are they looking in to any global issues for your daughter that may or may not involve the club feet? Do they know why she might have had breathing difficulties? Does she have any other challenges? My precious had breathing difficulties and has severe reflux in addition to her club feet. She had a Nissen procedure done to stop the reflux and has a g tube until she can get the 'suck, swallow, breathe' sequence down pat. Chris birth update Hi all, My beautiful little girl was born on January 30th 7 lbs 4 oz. The ultrasounds were correct and she has bilateral clubfeet. We spent part of her first week in NICU for some breathing difficulties and had her first set of cast put on at one week. Her feet are correcting well and we will be getting her 4th set of cast put on Friday. Her right foot is more flexible then her left and the doctor thinks that she will have to have the tendon release. He says that they usually do that at about 8 weeks. I am really worried about it but we will deal with that when it comes. I'll try to put a picture in the photo section. I hear her waking up so I better get going. Quote Link to comment Share on other sites More sharing options...
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