's experience

[Guest guest]

WOW! What a story. I’m sure glad you made it!

From:

lonewolflinda

Count me in on " sensitive to

Meds. " .......The ones I have had the most negative reactions to have been

.......first of all SYNTHROID.......When it was discovered that I had Hypothyroidism......the

Indochrinologist (sp?) that I was referred to told me that My thyroid was the

lowest of anyone he had ever seen.My TH3 was 5....he prescribed 100 mcg.of

Synthroid to start me off......In a couple of days I thought I was going insane.....well.....insaner.....I

went to the library and checked out a book on hypothyroidism......and found

that usually patients are started at 25 mcg.....and then increaesed graduallyin

25mcg. increments untill they are in the normal range....I went back to

my Indochrinologist and told him how I was feeling.....couldn't

eat......couldn't sleep.....shaking and crying all the time......felt like my

skin was crawling.....And asked him if he thought he had prescribed too much

too fast......told him about the book I had read and what it said.....His

response was.... " Just because you read a book doesn't make you an expert

on Hypothyroidism !! " .........and proceeded to increase my dosage to

132mcg.........Then I was really going Nuts......I had to call 911 because I

was having suicidal thoughts.....and felt I was totally out of control......I

was afraid of myself!!!......

The doc. that saw me in the E.R......told me that he had seen this

in patients before......newly taking thyroid meds for the first time.......he didn't

say so in so many words ......but I could tell from what he " didn't "

say....and his demeaner, that he also thought I was overdosed to begin

with......he gave me a sedative and sat and talked to me till it took effect

then called me a cab and arranged a voucher to get me home so I didn't have to

pay the cab fee....That was one good expereince with an E.R. doc. on

call.........I never went back to see the Indochrinologist again.....I made an

appt. with my psychiatrist......who ran a check on my thyroid......and admitted

that he usually checked his patients ( who didn't respond to

antidepressants) for hypothyroidism ......and didn't have a good answer to why

he hadn't checked ME !.......He agreed that 100mcg....then the increase to

132mcg......was uncalled for......He started me a 25mcg........and gradually

increased it to 50 mcg.

That was about a year before I was diagnosed with LUPUS.......then

when I was getting so sick with Lupus I was not thinking straight...half the

time was in and out of Lucidity.....couldn't get a diagnosis....couldn't

remember to take me meds half the time.......Wound up losing conciousness

and laying in a coma in my living room floor for about 3 days before my

daughter finally got worried cause I wouldn't answer my phone, and called apt.

manager to go check on me......They called her back.....said I was laying on

the floor......wouldn't respond to them....and my Dogs were standing over me

and wouldn't let anyone near me......She got me to the Doctor.....I only

weighed 72 lbs. she was able to pick me up and put me in the car......I was

Hospitalized for 2 months........in a coma for 10 days because my whole

indochrine system had crashed !

They didn't think I'd ever be able to go home .....thought I would

have to have round the clock care in a nursing home.

As I was coming out of the coma ......I was hallucinating

something awful......it was like being in HELL.......horrible visual and

auditory hallucinations .....I definately know how it feels to be

schizophrenic.....I had all the symptoms of paranoid schizophrenia.....the

walls talked to me.....there was a 'Grandma in a rocking chair' who kept

popping out of the closet and coming after me with a machete.

There was a teenaged girl with half her head missing ,who sat by

my bed in a chair trying to get me to tell her where the rest of her head

was........

There was a little black boy being held locked in the wall behind

my bed....begging me to let him out......I actually was able to get him

out.....and let him play in my room.....

I could go on........I don't even remember what this post was

supposed to be about.......Anyway it was while in this coma that I was

diagnosed with Lupus......

I was told that I not only had one foot in the grave at one

time.....I had been pulled out of the grave......I believed them, when I had to

be readmitted to the hospital a year later because I kept falling down, and

couldn't get up......The hospital I was in was a teaching hospital.....and they

had documented my case......along with pictures ......I asked to see the

pictures that had been taken when I was in the coma........I LOOKED LIKE THE

CRYPT KEEPER.!!.....My skin looked like someone who had been exposed to high

radiation.....bright red,and scaling.....my hair had all fallen out......I was

just a bag of bones covered in skin! YUCK......

And the first thing I remember.......that was real.......was my

son, Jamey, sitting by my bed playing his guitar,and singing to me.......He

came every day and sang me back into this world......

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