Re: 25 and in need of support

[Guest guest]

Hello -S,

I was diagnosed with fiborids young too. I hsuffered with pain, heavy

periods, clots, and anemia for years not realizing how serious the problem

had become. When I finally explained to my gyn that I needed help, he

suggested an abdominal myomectomy. He found some fibroids on the outside of

my uterus via ultrasound.

So at age 26 I had the surgery. Unfortunately for me it did not cure my

problems. At that time my doctor suspected that I had a form of

endometriosis called adenomyosis. He thought that might be why my bleeding

and pain did not decrease after the surgery. So I lived with the terrible

symptoms for years after that. I took Lupron several times to help the endo

tissues shrink. This was a temporary fix. For the most part I stayed on

continuous bc pills and suffered with daily breakthrough bleeding, pain,

wearing pads constantly, and just putting up with all of it because I wanted

to have kids someday too. I even got married in the meantime and was still

not ready for kids. We werer told that with my condition we would most

likely not be able to have any. But I was stubborn and did not want anyone

tearing out my uterus yet. I had hope.

This last summer I was so sick of the pill, I decided to go off of it for a

few months. I had two extremely heavy periods and was admitted to the

hospital for several units of blood. It was then that my doctor told me I

had to make a decision. Either try for kids by seeing a fertility

specialist, or have a hysterectomy. Well, the surgery was too scary when

you're only 30. So my hubby and I went to the specialist.

It was with this new doctor that we discovered I did not have adenomyosis.

I had many large and many small fibroids inside my uterine cavity (sumucosal

fibroids.) They had been there all along causing the problems. For some

reason my last surgeon missed them on the ultrasounds and even during the

myo surgery.

Since last summer I have had three minor hysteroscopic resection surgeries

to remove all the fibroids. The surgeries were a success. I am now off the

pill and we have the green light to try for children! It was such good

news, it was hard to believe it was actually true!

So my advice to you is, TO SEE ANOTHER DOCTOR!!! They cannot put time lines

on our bodies. They can maike suggestions, but they don't always have the

right training or knowledge for every problem. There are many highly

skilled gyns out there who know how to successfully surgically remove your

fibroids leaving your uterus intact for having future babies.

The advice your doctor gave you is from the olden days. You made a good

choice joining this group. The women here are very knowledgable about the

latest procedures available today. And they are a great support system for

those of us who feel stuck with nowhere else to turn.

Find out where your fibroids reside in your uterus. Are they subserosal,

intramural, submucosal? This makes a big difference on what kind of

treatment or surgery you are offered. And then once you know which

questions to ask, get a second opinion, even a third opinion.

I lived with horrible symptoms for years before they got so bad I had to

make a decision to do something about them. Seeing a new doctor made all

the difference in the world. My old surgeon was a fantastic tdoctor, no

complaints, but he was not skilled at seeing everything. I don't blame him

for missing my problematic fibroids, I look at my experience as a learning

experience. That way I can tell other women like you to not make the same

mistake by just trusting one doctor's opinion.

So keep reading, don't take your doc's opinion to heart. You have hope.

You are in control of when and what happens to your body.

Take care and Bless you,

Sonja