RE: Cathy: Omacor

May 1, 2005

Hi Cathy,

I'm on Omacor. I am able to obtain it from Mayo Clinic Pharmacy in

Rochester,Minnesota. My physician has prescribed 4 capsules per day as compared

to Coromega, which was 12 packets per day. (I'm currently 49 years old). It

has the highest EPA and DHA per tablet that is available. It was FDA approved

November 2004. If the Mayo Pharmacy cannot provide the med for you, perhaps

they may be able to tell you where else to obtain it from in the US. There is

also a web site www.omacor.co.uk/ If you have trouble getting on to this

site, try typing in Omacor at Google search and it will bring you to the site.

I find Omacor is much more tolerable than others I've tried, (no fish burps

etc.) and is certainly an extremely purified form. It is a blessing for me, to

take only 4 capsules per day, because I'm on tons of other stuff round the

clock. Hope that helps. Some folks believe that one fish oil is the same as

another, but I personally like the Omacor. I'm not sure what the

cost is, but if you find out, would you let me know? I have emailed them

directly several months ago about the treatment of Ig A and a few other

questions. If you have any need to contact them directly, it usually takes a

few days for a return response, but both times I have contacted them, they

replied within less than a week. Bonnie

Hi

Nine capsules a day is a lot of capsules, but that is what the doctor

recommended and her nutrionalist agreed. The Nature Made 1000 mgs Omega 3

fish oil bottle says to take one to two capsules twice a day and that is for

someone without Iga, ask your doctor for his opinion on the amount he should

be taking I'm just doing what Jennell's doc recommended.

Take care and God Bless

Cathy......Jennell's Mom

_____

From: iga-nephropathy

[mailto:iga-nephropathy ] On Behalf Of susan capo

Sent: Saturday, April 30, 2005 11:45 AM

To: iga-nephropathy

Subject: RE: Cathy

Hi Cathy, Thanks for the info, wow! that sounds like a lot of capsules to

take daily. I actually started him on nature made omega 3 1000mg.once daily.

Cathy Waelty wrote:Welcome back ,

I hope all of you enjoyed your vacation. I am sorry to hear that

had to be in the hospital again. What wonderful news that he will be off

prednisone soon. Regarding the Omacor, it is a prescription for pure fish

oil. It only comes that way from what I am told. But, it isn't available

here in the Us yet, it was just approved. In the mean time we are using

Nature Made maximum strength Omega 3, 1200 mgs capsules, 9 a day. I am told

that you have to really watch for the amount in each capsule, some are

cheaper than others, but you need to take more capsules to get the amount

your doc wants him to take. I think you just have to try to find one that

is as pure as it can be and all natural ingredients. I was giving her Omega

3 / Omega 6 capsules but after seeing the nutrionalist she told me to get

just Omega 3 capsules.

This was a response that I got from this site from someone else

I take 10 capsules daily (based on the Mayo Clinic study) and I get

them at Costco (Kirkland brand) It is a good value for the quantity

plus the added benefit of knowing that they got a stamp of approval

by Consumer Labs and Consumer Report magazine for content and absence

of pollutants. Be wary of supplements because they are not regulated

and some fish oils do not have what they claim on the label.

I found the Nature Made Brand that Jennell is taking at BJ's Wholesale,

$9.99 per bottle of 200 capsules.

Take care and welcome back

Cathy......Jennell's Mom

_____

From: iga-nephropathy

[mailto:iga-nephropathy ] On Behalf Of susan capo

Sent: Friday, April 29, 2005 6:37 PM

To: iga-nephropathy

Subject: Re: Cathy

Hi Cathy, I am glad to hear that Jennell is doing better. We all just got

back from vacation last week, which did very well. Though he just

got out of the hospital today, and he is doing much better. Within 4 weeks

he will be completely off the prednisone (yeaaaa). His last 24 urine is

still 4+ but after this last tx of iv solumedrol, I am hoping his next 24hr

ua will be that much better. My question to you on the omacor fish oil, do

you know if it matters which brand you use? I started him on fish oil 2

weeks ago myself. Thanks,

Cathy Waelty wrote:Hi Pierre and everyone else,

I hope all is still going well with you Pierre.

We just got back from our appointment with Jennell's Nephrologist.

Some good news and some bad.

This appointment was a follow up to our initial appointment 2 weeks

ago. This was to discuss " the plan " for Jennell's health care and

options for her HSP and IgaN care.

Wow, lots to say here so I will appologize for this long email early.

Hmmmmm. where do I start;

The 24 hour urine that we did last week, the results can back and

the doc said either a miracle has happened or someone typed in a

result wrong with the numbers because it showed everything was fine,

therefore we have to do another 24 hour urine to be sure. Jennell's

urine is black in color, she gave him a sample and because of the

color of her urine he believes someone did in fact make a mistake

when typing in the report on her 24 hr urine results.

He said because Jennell's last blood work reports have been showing

some improvement with her kidney function, but he did confirm that

she is becoming anemic so we have to watch that carefully he also

said that may be because of the cytoxan that she has been taking

making the numbers not really true as far as the anemia.

He did more blood work today and I hope to have those answers on

Monday.

" The Plan " is this right now, he is taking her off the Cytoxan

immediately, which I am very pleased about, he said his collegues

and himself do not feel that it is a drug Jennell should be on right

now because all the data that has been collected so far on it has

not confirmed that it does indeed help with IgaN. They do not feel

that the data supports it enough to have her on it because of the

long term side effects so he has discontinued it as of today.

Her prednisone dosage now of 60 mgs a day we are to start tappering

down after 1 week of being off the Cytoxan, he wants me to start to

tapper off the prednisone by 5 mgs a week and while doing this he

will watch her blood and urine levels. He is also taking her off

the Bactin anti-biotic that she takes 3 times a week after she has

been off the cytoxan for a week.

He also wants me to have her take Omacor (pure fish oil) and take

her off the Omgega 3 and replace it with the Omacor, he said it has

just been approved here in the USA by the FDA but guess what, I

can't find it anywhere at any pharmacy in my area. So, I called

Reliant Pharmacuticals in New Jersey, they are the company that has

received the approval to distribute it but they said it will not be

ready to distribute until the 4th quarter this year.

Pierre, I am told that it can be obtained in Canada, is this true?

If so how can I get it for Jennell? We are willing to drive there

to get it if necessary, we do have a prescription for it.

We are scheduled to go back and see him in one month to re-evaluate

Jennell. He told Jennell that if she feels anything differant going

on he needs to know about it and she promised her that she would.

I guess I'm not sure what to expect from all of these changes, but

she does seem to be leveling out according to the doctor and I guess

this is the part that where go into a " test and see trial " as to how

she will react to the change in medication.

All and all she is feeling pretty good, she has only gained 2 pounds

which is a surprise with the Prednisone dosage that she has been on

now for 5 weeks. Everyone is surprised even the doctor that she is

not swelling up and gaining weight.

Well I am sure I have burnt everyones eyes out here having to read

this long long email, and I am sorry for that.

All opinions are welcome on this information.

Pierre, if you know where I can get the Omacor, please let me know.

Can I get it if I drive to Canada? Is a prescription needed there

or is it an over the counter item?

Thanks all

God Bless

Cathy......Jennell's Mom

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---------------------------------

May 1, 2005

Thank you Bonnie,

I only spent 1 day trying to locate Omacor. I do have a prescription for it

from my daughters neph but can't find any place in Massachusetts that has

it. I will look on the web site you suggested then also try the Mayo

Clinic.

Thanks again

Cathy......Jennell's Mom

_____

From: iga-nephropathy

[mailto:iga-nephropathy ] On Behalf Of Bonnie Duran

Sent: Sunday, May 01, 2005 4:37 PM

To: iga-nephropathy

Subject: RE: Cathy: Omacor

Hi Cathy,

I'm on Omacor. I am able to obtain it from Mayo Clinic Pharmacy in

Rochester,Minnesota. My physician has prescribed 4 capsules per day as

compared to Coromega, which was 12 packets per day. (I'm currently 49 years

old). It has the highest EPA and DHA per tablet that is available. It was

FDA approved November 2004. If the Mayo Pharmacy cannot provide the med for

you, perhaps they may be able to tell you where else to obtain it from in

the US. There is also a web site www.omacor.co.uk/ If you have

trouble getting on to this site, try typing in Omacor at Google search and

it will bring you to the site. I find Omacor is much more tolerable than

others I've tried, (no fish burps etc.) and is certainly an extremely

purified form. It is a blessing for me, to take only 4 capsules per day,

because I'm on tons of other stuff round the clock. Hope that helps. Some

folks believe that one fish oil is the same as another, but I personally

like the Omacor. I'm not sure what the

cost is, but if you find out, would you let me know? I have emailed them

directly several months ago about the treatment of Ig A and a few other

questions. If you have any need to contact them directly, it usually takes

a few days for a return response, but both times I have contacted them, they