Re: Back at home--oops

[Guest guest]

Oops I meant Kangaroo---but you probably figured that out. One

finger too many. :-)

B

> > Hi all,

> > I just wanted to let you all know that I am back home

> after my

> > G/J tube surgery. I was in the hospital until Wednesday, as

they

> decided

> > to keep me a little longer due to complications. I was allowed

to

> go

> > home on Wednesday as I was going to my parents' house ( I live

> alone). I

> > am finally back at my apartment and taking it easy. I am

learning

> the

> > ways of the G/J tube and will hopefully pick up tricks of the

> trade soon.

> > We are watching for infection, as my temp keeps going up, but I

> know

> > things will be okay. Thank you all for your warm thoughts and

> prayers.

> > They helped me a lot. Malisa read many of your messages to me

> when I was

> > in the hospital and they meant a lot to me.

> > For those of you who have G/J tubes, (Kristie, Barbara,

and

> > others), do you have a pump that you use, or is it just a slow

> drip? I

> > am trying to get a pump, as I feel this might be needed.

> > Well, I am going back to lying down, sitting up in

> anything but

> > my recliner for a period of time is still a little hard and I

> want to be

> > up and at them by Friday when I go back to work. Thankfully, I

am

> still

> > only working around 2 1/2 hours a day at the school, teaching

the

> At Risk

> > Reading Program.

> > Thanks again to all of you.

> > Hugs and bright smiles,

> > a

> >

> > On Mon, 9 Aug 2004 22:23:38 EDT Malilibear@a... writes:

> > Hi all,

> > I wanted to say that I really enjoyed meeting many of you at the

> > conference.

> > It was also really good to get some time to talk to some of the

> mito

> > specialists, as well, but I really enjoyed spending time with

you

> guys

> > the most. I

> > always feel like a few days goes by so fast when I'm at

> conferences like

> > this.

> > Thanks to Laurie, , Bug, and Christie for their hardwork.

It

> > definitely

> > takes energy to do what all of you did and we're all really

> appreciative.

> >

> > I talked with 's mom and also with a tonight. Both

> were

> > admitted to the hospital today. flew straight to

Cleveland

> from

> > the

> > conference b/c she wasn't feeling well. They got a room at the

RMH

> and

> > today she got

> > admitted to CCF. She saw a pediatric GI doctor today who wanted

to

> try a

> > few

> > more things before thinking about removing her colon. He'll be

> coming

> > back

> > tomorrow to see her again and they'll talk more about what the

> plan is.

> > Her mom

> > sounded much more hopeful about coming up with a good plan since

> they'd

> > seen him.

> > He sounds like he's really going to try to think about solutions

> for

> > .

> > YAY!

> >

> > And...a had her GJ tube placed today. She said that she

had

> some

> > tremors after she woke up and had vomited several times this

> afternoon.

> > They are

> > giving her demerol for pain and it seems to be helping some.

They

> still

> > have her

> > NPO and still have an NG tube down for suction if needed. She's

> not sure

> > if

> > she'll go home tomorrow or not, but originally that was the plan.

> >

> > Please keep both of these inspirational young women in your

> prayers. I'll

> >

> > update tomorrow if I hear anything more.

> > Malisa

> >

> >