Guest guest Posted August 22, 2008 Report Posted August 22, 2008 Amy, I've been on 10 mg for about 5 months now...down from 40 mg begun in 2005. I do not have the cognitive problems as severly as I had before. I can do most of the things you say are trouble for you. Are you on o2? Many of your problems can be because of a lack of O2 as well. I'm on 3 lpm all the time ( I used 4 lpm today because I babysat my 6 MONTH OLD GRAND DAUGHTER SARA ALL DAY. I used word jumbles and word search puzzles to help get my concentration back as I was lessening the Prednisone. I started with one puzzle...moved up to 2 etc. I also read simpler books...the beach-novels( Nora , Higgens , ) They are easy to follow and I started with short periods of time and increased over weeks. As a Reading Specialist, the idea of me not reading was painful ! I was determined not to lose that skill. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Amy Dawn wrote: Is anyone on just 10 mg of prednisone? I have been on 10 for a long time. I would love to get off , they keep telling me my breathing would get worse. Also sometimes I feel like I have lost half of my brain cells. I can't remember, forgetful cannot remember how to do things. Programs on the computer I could do without thinking now I cannot remember can't concentrate. I am told it is because I don't excercise my brain, I use to read a lot now I cannot finish a book no a chapter. I hardlyl ever get to leave the house. I getted winded just walking to the door. Oh yeah once you are this bad your friends disapear, they all say "if there is anything we can do anything just call" I probably sound like a big complaining cry baby. I am really not like that it is just I know how long and late stage I am and what I use to do and what I do now. I know everyone is probably feeling this way too so help me about the concentrating. Amy No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.6/1627 - Release Date: 8/22/2008 6:48 AM Quote
Guest guest Posted August 22, 2008 Report Posted August 22, 2008 : I am curious as to why you stay on the 10 mg. so long. Is your goal to get off all together or does this amount keep you stable? I am down to 15 and will go down to 10 next Thursday but my goal is to stop all prednisone. Diane IPF June 07New Brunswick, Canada Re: Amy Dawn Amy, I've been on 10 mg for about 5 months now...down from 40 mg begun in 2005.I do not have the cognitive problems as severly as I had before. I can do most of the things you say are trouble for you.Are you on o2? Many of your problems can be because of a lack of O2 as well.I'm on 3 lpm all the time ( I used 4 lpm today because I babysat my 6 MONTH OLD GRAND DAUGHTERSARA ALL DAY. I used word jumbles and word search puzzles to help get my concentration back as I was lessening the Prednisone.I started with one puzzle...moved up to 2 etc.I also read simpler books...the beach-novels( Nora , Higgens , )They are easy to follow and I started with short periods of time and increased over weeks.As a Reading Specialist, the idea of me not reading was painful ! I was determined not to lose that skill. Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Amy Dawn wrote: Is anyone on just 10 mg of prednisone? I have been on 10 for a long time. I would love to get off , they keep telling me my breathing would get worse. Also sometimes I feel like I have lost half of my brain cells. I can't remember, forgetful cannot remember how to do things. Programs on the computer I could do without thinking now I cannot remember can't concentrate. I am told it is because I don't excercise my brain, I use to read a lot now I cannot finish a book no a chapter. I hardlyl ever get to leave the house. I getted winded just walking to the door. Oh yeah once you are this bad your friends disapear, they all say "if there is anything we can do anything just call" I probably sound like a big complaining cry baby. I am really not like that it is just I know how long and late stage I am and what I use to do and what I do now. I know everyone is probably feeling this way too so help me about the concentrating. Amy No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.6.6/1627 - Release Date: 8/22/2008 6:48 AM Looking for the perfect gift? Give the gift of Flickr! Quote
Guest guest Posted August 22, 2008 Report Posted August 22, 2008 Hi : I noticed I did not put a subject I am bad about that sorry. Yes I am on O2 cannot be withour it except for the other day when it came off the bottle and I did not know for about 15 mins and began feeling faint. Thanks for the heads up on the reading even if I do a page or two at a time until I get on track and will try the word jumbles. Thanks Amy Re: Amy Dawn Amy, I've been on 10 mg for about 5 months now...down from 40 mg begun in 2005.I do not have the cognitive problems as severly as I had before. I can do most of the things you say are trouble for you.Are you on o2? Many of your problems can be because of a lack of O2 as well.I'm on 3 lpm all the time ( I used 4 lpm today because I babysat my 6 MONTH OLD GRAND DAUGHTERSARA ALL DAY. I used word jumbles and word search puzzles to help get my concentration back as I was lessening the Prednisone.I started with one puzzle....moved up to 2 etc.I also read simpler books...the beach-novels( Nora , Higgens , )They are easy to follow and I started with short periods of time and increased over weeks.As a Reading Specialist, the idea of me not reading was painful ! I was determined not to lose that skill. Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Amy Dawn wrote: Is anyone on just 10 mg of prednisone? I have been on 10 for a long time. I would love to get off , they keep telling me my breathing would get worse. Also sometimes I feel like I have lost half of my brain cells. I can't remember, forgetful cannot remember how to do things. Programs on the computer I could do without thinking now I cannot remember can't concentrate. I am told it is because I don't excercise my brain, I use to read a lot now I cannot finish a book no a chapter. I hardlyl ever get to leave the house. I getted winded just walking to the door. Oh yeah once you are this bad your friends disapear, they all say "if there is anything we can do anything just call" I probably sound like a big complaining cry baby. I am really not like that it is just I know how long and late stage I am and what I use to do and what I do now. I know everyone is probably feeling this way too so help me about the concentrating. Amy No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.6.6/1627 - Release Date: 8/22/2008 6:48 AM Quote
Guest guest Posted August 22, 2008 Report Posted August 22, 2008 Diane: I would love to get off all together (maybe take off some of this extra 25 pounds) I am told by a number of drs that my breathing would suffer. I have had this for 8 years so I do not want to take the chance. I worry about my immune system and all the other terrible side effects so I guess it is a doubled edge sword good breathing vs all of the above. Amy Re: Amy Dawn Amy, I've been on 10 mg for about 5 months now...down from 40 mg begun in 2005.I do not have the cognitive problems as severly as I had before. I can do most of the things you say are trouble for you.Are you on o2? Many of your problems can be because of a lack of O2 as well.I'm on 3 lpm all the time ( I used 4 lpm today because I babysat my 6 MONTH OLD GRAND DAUGHTERSARA ALL DAY. I used word jumbles and word search puzzles to help get my concentration back as I was lessening the Prednisone.I started with one puzzle...moved up to 2 etc.I also read simpler books...the beach-novels( Nora , Higgens , )They are easy to follow and I started with short periods of time and increased over weeks.As a Reading Specialist, the idea of me not reading was painful ! I was determined not to lose that skill. Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted… I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Amy Dawn wrote: Is anyone on just 10 mg of prednisone? I have been on 10 for a long time. I would love to get off , they keep telling me my breathing would get worse. Also sometimes I feel like I have lost half of my brain cells. I can't remember, forgetful cannot remember how to do things. Programs on the computer I could do without thinking now I cannot remember can't concentrate. I am told it is because I don't excercise my brain, I use to read a lot now I cannot finish a book no a chapter. I hardlyl ever get to leave the house. I getted winded just walking to the door. Oh yeah once you are this bad your friends disapear, they all say "if there is anything we can do anything just call" I probably sound like a big complaining cry baby. I am really not like that it is just I know how long and late stage I am and what I use to do and what I do now. I know everyone is probably feeling this way too so help me about the concentrating. Amy No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.6.6/1627 - Release Date: 8/22/2008 6:48 AM Looking for the perfect gift? Give the gift of Flickr! Quote
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