Re: Hello, Im new to this site

[Guest guest]

Simone, Hello and welcome. I live in no. California, about 50 miles from San Francisco. I am the

single, adoptive parent of 4, grandmother of 2, and was dx'd with SLE, RA, Sjogren's, Myofibrositis,

Anemia, Chronic Lyme's, non-insulin dependent Diabetes all between the ages of 30 and 45, although

I started having symptoms at age ten. I am now 54...about 3 weeks away from 55. LOL

You are wise to try to get support for the both of you. We have had spouses join in the past, then

get their partner, the one with Lupus, to join later when they find so much help, here. Feel free to

join in any conversation going on the board, ask questions, laugh, cry, vent, or whine (we offer

cheese with that). We are here 24/7, and have members around the world. Because we are all,

more or less, ill, and live in so many different time zones, it is difficult to get together and chat, but

emails fly back and forth pretty fast, and if you get acquainted with a few members on a deeper

level and wish to have private conversations, you may exchange personal email addys.

Again, welcome, and tell your hubby that we would welcome his input, too. Loving hugs, MM aka:

Mike, one of the moderators

[Guest guest]

Hi Simone,

I am always so happy to read that a family member has joined the group to help them understand what their loved ones are going through who have Lupus.

I hope you can get your husband to join also.......no one can Unerstand a Lupie....like another Lupie.

As for your husband not feeling like a `Real Man' because he is no longer able to work.........Didn't you say that he takes care of the Baby at home ??.....THAT'S not WORK??

My daughter's husband has a bad back......and can't always work......( too stubborn to apply for Disability) ......in the times that he can't work......he takes care of their 4 yr. old daughter, and does what house work that he can manage.

Which saves BIG MONEY for Daycare.

Tell your husband that we will support him though his ups and downs.......We all have a `Melt Down' once in a while and just sometimes need to vent our frustrations. ......that' s what we're here for.

Hello, Im new to this site

Hello my name is Simone , I live in Kentucky, my husband and I will probably both be utilizing this site, my situation is probably going to be different from alot of yours, My husband has Lupus, he was diagnosed about 4 years ago. He is currently on disability,(which was very hard to get). I need this support group to help me understand if I can what he is going through, He has his ups and downs both physically and emotionally and I would like to be a better support person if I could. You know how men are he thinks if he doesnt work his not a man. We have 3 beautiful daughters, Imani(12), Kiera(7) and Niyah(9mths), my husband takes care of the baby at home. I suggested he use this support system I hope he does, I know I will. His family is very understanding which is also helpful. Well I guess that enough for now, thanks for listening and I'm sure I'll be posting more soon. "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies