Doc says I'm over it!

[Guest guest]

Hello everyone,

I've been away from the message board and don't know how you

all are

doing. So I risk posting without reading the current messages. I

truly hope I am not inserting during a time of crisis. Now that

I've written that I am thinking every day is a crisis with

RSD

I think of you everyday and send my best wishes, prayers, and

thoughts to each and everyone of you. I thought I might be able to

catch up with answering the messages but that now seems like an

overwhelming task. I hope you who wrote to me will understand and

know that I am very grateful for your time and energy. It all helps

so much.

I also want to thank you for giving me whatever information you had

in my search for Vic and Sharon concerning an extremely

interesting research paper,

my symptoms of numbness and needles in all four extremities,

and all the questions about what we have in common that has brought

us to RSD,

and the many light hearted laughs shared here. Every day I look at

all of you on my Pin Pal Map, it makes me feel less alone in this.

Right now I am searching for a new doctor seems mine picked up

some

information in the last week or two and has decided that I am

" over

it " . Those are his words. That visit stunned me into silence

for

several days. He explained away the pain as being side effects of

Prednisone, said " RSD doesn't spread " and " take these (

Paxil) " and

see him in two weeks. No kidding! He told me to put away my notes

charting the symptoms, he didn't even want to hear about any of

it.

This doctor was my ally for years. Who or what did he hear or read

to make him do this 180 on me? He went from the previous week's

visit of saying he just didn't know what to do for me to taking

this

new position that I am " over it " . He has gone on vacation

this week

so when my wits finally returned he is not available to ask that

very question. I am sure this story isn't over, yet.

My best to you all. Hopes for a pain free day. With Love, Lyn

[Guest guest]

This doctor was my ally for years. Who or what did he hear or read to make him do this 180 on me? He went from the previous week's visit of saying he just didn't know what to do for me to takingthis new position that I am "over it". He has gone on vacationthis week so when my wits finally returned he is not available to ask that very question. I am sure this story isn't over, yet.My best to you all. Hopes for a pain free day. With Love, Lyn

Lyn,

I am so glad that you have written again, I was getting worried about you and I couldn't find which notebook I wrote your phone number in. I just can't believe that I have lost your number twice now.

That is so strange that your doctor did that to you, but it was more like a 360 turn, maybe this one doctor over here got a hold of him this is the infamous Dr. O.

I hope you will get the chance to ask him that question and go into some sites and collect and print the stats that they give for this disease. The NINDS site I have told you about, there is also a web site run by several doctors, PT, social worker anyway it is called http://www.rsds.org/index2.html. Just click on this and there is a fact and fiction page that is quite enlightening.

take care Lyn and my prayers are with,

Lin