Re: question about treatment for bone loss

[Guest guest]

Barbara,

I have severe osteo as well. I can not take the common products like

Fosomax, Actonel, etc because of GI reasons too. I was on the Miacalcin nasal

spray for awhile but when I saw a metabolic bone disease specialist in

Cleveland he pretty much laughed. He said it's just not affective at all. He is

going to give me an IV treatment for my osteo. It's called Aredia (sp?) It's

not

actually approved for osteo but has been used and is very successful. It's a

once a YEAR infusion that takes 20 mins. It builds bone. There is also

another IV med for osteo and osteo genesis imperfecta that children use alot

called

Pamidronate. It has to be given more frequently like once every 3 months for

the same effect. My nutritional status and weight have been a big concern so

I have yet to recieve my bone treatment. My last bone density in Aug. was

unchanged even with having taken the Miacalcin

and calcium supplements.

[Guest guest]

, thks very much, this is great information. I'm very

interested in the once-a-year IV treatment and will ask my PCP about

it.

Does anyone know if any of the osteo drugs can be taken through a j-

tube? That would actually be simpler if it would not defeat the

purpose. Maybe I should ask my tube-feeding group.

B

> Barbara,

>

> I have severe osteo as well. I can not take the common

products like

> Fosomax, Actonel, etc because of GI reasons too. I was on the

Miacalcin nasal

> spray for awhile but when I saw a metabolic bone disease

specialist in

> Cleveland he pretty much laughed. He said it's just not affective

at all. He is

> going to give me an IV treatment for my osteo. It's called Aredia

(sp?) It's not

> actually approved for osteo but has been used and is very

successful. It's a

> once a YEAR infusion that takes 20 mins. It builds bone. There is

also

> another IV med for osteo and osteo genesis imperfecta that

children use alot called

> Pamidronate. It has to be given more frequently like once every 3

months for

> the same effect. My nutritional status and weight have been a big

concern so

> I have yet to recieve my bone treatment. My last bone density in

Aug. was

> unchanged even with having taken the Miacalcin

> and calcium supplements.

>

>

>

>

>