Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Hi Alice Jack's sister was diagnosed with Mito and had worn this diagnosis for a few years. The family sought out a " second opinion " and further testing and wound up at UCSD in the hands of Dr Haas. After extensive testing and a muscle biopsy the conclusion was that it WAS NOT MITO - Her symptoms had been getting better and to get the news that she was officially " un-diagnosed " from Mito I'm sure also helped her mentally. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Do you know how she was dx'ed the first time? Just wondering. A ADAMS wrote: > >Hi Alice > > >Jack's sister was diagnosed with Mito and had worn this diagnosis for a few years. The family sought out a " second opinion " and further testing and wound up at UCSD in the hands of Dr Haas. After extensive testing and a muscle biopsy the conclusion was that it WAS NOT MITO - Her symptoms had been getting better and to get the news that she was officially " un-diagnosed " from Mito I'm sure also helped her mentally. > >Sharon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Do you know how she was dx'ed the first time? Just wondering. A ADAMS wrote: > >Hi Alice > > >Jack's sister was diagnosed with Mito and had worn this diagnosis for a few years. The family sought out a " second opinion " and further testing and wound up at UCSD in the hands of Dr Haas. After extensive testing and a muscle biopsy the conclusion was that it WAS NOT MITO - Her symptoms had been getting better and to get the news that she was officially " un-diagnosed " from Mito I'm sure also helped her mentally. > >Sharon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 No.. that's all I know. Alice Do you know how she was dx'ed the first time? Just wondering. A ADAMS wrote: > >Hi Alice > > >Jack's sister was diagnosed with Mito and had worn this diagnosis for a few years. The family sought out a " second opinion " and further testing and wound up at UCSD in the hands of Dr Haas. After extensive testing and a muscle biopsy the conclusion was that it WAS NOT MITO - Her symptoms had been getting better and to get the news that she was officially " un-diagnosed " from Mito I'm sure also helped her mentally. > >Sharon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 No.. that's all I know. Alice Do you know how she was dx'ed the first time? Just wondering. A ADAMS wrote: > >Hi Alice > > >Jack's sister was diagnosed with Mito and had worn this diagnosis for a few years. The family sought out a " second opinion " and further testing and wound up at UCSD in the hands of Dr Haas. After extensive testing and a muscle biopsy the conclusion was that it WAS NOT MITO - Her symptoms had been getting better and to get the news that she was officially " un-diagnosed " from Mito I'm sure also helped her mentally. > >Sharon > Quote Link to comment Share on other sites More sharing options...
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