Babies, Gluten, Breastmilk... (from House comments)

[Guest guest]

I missed HOUSE I watch it on USA after Monk on Friday's. I didn't

know it was on FOX or maybe I did but forgot. Anyway...

I firmly believe infants can have CD and can show signs early in life

(days old) -- my little Silly Yak surely did. I feel relieved to hear

other mothers have experienced the same things with their Silly Yak

children -- we're not crazy, we're smart and should be praised for

reading our children so well. It's just too bad doctors don't seem to

feel mothers know a thing about their children...

He was " colicky " , his stomach hurt, we had to hold him up right and

crunched over his middle, if he moved he woke up screaming this was

from day 1 in the hospital. His poos were never the typical bf poos,

they were frothy, mucousy, fowl, burned his skin often and green,

brown or yellow brown -- never the yellow brown mustard. He sat up in

a carseat in our room to sleep for the first 3 months or so. He never

slept long or well. He always seemed to be in pain. I set the baby

swing on high just to go to the bathroom, he screamed all the time. I

dreamed screaming, if I left the house I still hurt him in my head!

He loved the sling, ie knees tucked up into stomach.

I didn't know what bf poos were supposed to be like, I had formula fed

my first after a horrid c/s and terrible recovery. We asked the pedi

about his poos and finally the guy did a lab test for Giardia (now I

read that is a common misdx in calming parents who know something is

wrong) -- he was 4 or 5 mo at the time and not yet on any solids, just

breastmilk. I was referred to a lactation consultant for hind milk,

formilk issues at a LLL meeting -- obvioulsy not the problem, but we

didn't know.

As for gluten in breastmilk... Dairy proteins pass easily and readily

into breastmilk, the first thing out of my diet to help him out was

all dairy. Science knows this for certain. There is conflicting

information on gluten proteins and breastmilk, however, I will go with

logic here -- dairy proteins pass, so can gluten. The pediatric

gastro doc we saw agrees breastmilk can contain gluten and my

lactation consultant whom I contacted after the dx also has the

understanding that it can happen and cause a problem.

I'm tempted to think that maybe my body was passing the gluten into my

breastmilk at the time from a possible mild leaky gut. It's the only

thing that could explain why my dd does not seem to have the poo

problems, yet does seem to react to glutenous foods and doesn't really

care for bread (she has not been tested yet -- I think she does so

well b/c the entire household is low gluten and my Silly Yak is of

course GF).

I won't go into what beginning solids was like for us with our celiac

child, but I will say he has never liked bread or oatmeal. And I

thought he was allergic to a lot of things b/c of the rashes and

diarrhea...

Finally answers... I've never been more relieved. You know, I've

never had the pitty him or us party or angry feelings about the dx.

I've been nothing but over joyed my child is now pain free, sleeps

well and is GROWING!!! I was a bit angry at the prior doctors, but

realize CD isn't common enough for the average doc to pick-up even

though they should. I wrote a letter to the allergist, I've left the

first pedi out of it b/c our son was 8 mo old when we switched to

someone else for insurance change reasons. And I have yet to say

anything to the family doctor b/c we switched to a holistic

pediatrician who picked up on CD immediately -- God Bless her!

Rejoyce

Winchester, VA

[Guest guest]

http://www.celiac.com/st_prod.html?p_prodid=381

[Guest guest]

Breast Feeding and GlutenSubmitted by the Celiac Disease Foundationwww.celiac.org

Dr. Fasano….

We are still getting many questions about nursing and gluten. Will you please help me with this question. Is it possible for gluten to be passed through breast milk?

There are two issues that need to be clarified:

1. As far as we know, there are no solid evidence proving that gluten is present of breast milk and passed to infants;

2. Assuming that the infant is genetically predisposed to develop celiac disease, the immune system is not mature yet to develop an autoimmune response

Bottom line, there is no rationale to recommend a gluten free diet to a non celiac nursing mom as a measure of prevention.

Alessio Fasano, MD,Professor of Pediatrics, Medicine, and PhysiologyDirector, Mucosal Biology Research CenterUniversity of land School of Medicine

[Guest guest]

And like I said the scientific evidence is conflicting. But as for me

and what I believe, I must go with what I saw in my infant. No matter

was any doctor tells me, even Fasano -- I will go to my grave

believing that my son reacted to gluten in my breastmilk as an infant

to the age of 14 mo old when he stopped nursing. [Just as I know what

reaction my son has to McD french fries and not all Celiac groups are

stating they are safe... It must be noted that his dx was just months

prior to the announcement of the par frying ingredient issue and we

had already decided french fries were off his eating menu due to

reactions.]

Rejoyce

Winchester, VA

>

>

>

> Breast Feeding and Gluten

> Submitted by the Celiac Disease Foundation

> www.celiac.org

>

> Dr. Fasano..

>

> We are still getting many questions about nursing and gluten. Will

you please help me with this question. Is it possible for gluten to be

passed through breast milk?

>

> There are two issues that need to be clarified:

>

> 1. As far as we know, there are no solid evidence proving that

gluten is present of breast milk and passed to infants;

>

> 2. Assuming that the infant is genetically predisposed to develop

celiac disease, the immune system is not mature yet to develop an

autoimmune response

>

> Bottom line, there is no rationale to recommend a gluten free diet

to a non celiac nursing mom as a measure of prevention.

>

> Alessio Fasano, MD,

> Professor of Pediatrics, Medicine, and Physiology

> Director, Mucosal Biology Research Center

> University of land School of Medicine

>

>

>

>

>

>

[Guest guest]

I agree Rejoyce, I will go to my grave

believing gluten was in my breastmilk. Both my kids had extreme colic while I

breastfed them. Once I switched to formula (at 4m with my son and 5m with my

daughter)....the colic went away within a couple of days.

[Guest guest]

I breastfed my children over 40 years ago also and they all had failure to thrive until I stopped breastfeeding them and put them on a soy formula. They were colicky, cranky and didn't sleep well until the bottle feeding. I firmly believe that if I had bee gluten free they would have been just fine, because we are all Celiacs. Shirley in San Diego and Jill McCutcheon wrote: I agree Rejoyce, I will go to my grave believing gluten was in my breastmilk. Both my kids had extreme colic while I breastfed them. Once I switched to formula (at 4m with my son and 5m with my daughter)....the colic went away within a couple of days.