creatine....conference issue

[Guest guest]

Barbara,

YW....Honestly there was not a lot of " discussion " about creatine at the

conference. Just a comment by Dr. Cohen in his symptom management session that

it now appears it is beneficial and can be used long term in mito patients. I

suspect we will see/hear more about this in the near future.

I have been on creatine monohydrate (7 grams/day) since 2000 during/after a bout

of endocarditis. Dr. Cohen and my local neuro have kept me on it because I seem

to do better and my pulmonary function suffers when I'm off of it.

My nutritionist doc recommended the ProLab version (pricey), but does seem pure

and consistent. Mine is taken in through my J-tube so it bypasses the stomach

acids.

Do you have a nutritionist you can work with on this issue?

Kristie

Kristie, Tks so much for your post. I have some additional questions

> about the creatine discussions at the conference.

>

> 1. Did anyone mention which brands of creatine monohydrate are

> considered reliable? There is a tremendous difference in quality and

> purity among creatine products.

>

> 2. Did anyone mention the second-generation creatine products such

> as creatine pyruvate and creatine maleate? They claim superior

> bioavailabity over creatine monohydrate and also claim to eliminate

> the side effect of fluid retention.

>

> I am currently using a NutraBiotics product called ATP Evolution

> which is creatine monohydrate chelated with magnesium. It also

> contains nucleotide precursers that aid in formation of ATP.

> Chelating the creatine with magnesium protects the creatine from

> stomach acid and greatly enhances chances of actually getting to the

> muscle via the gut. Stomach acid tends to break creatine down into

> creatinine which is then just excreted through the kidneys. Was this

> problem addressed at all?

>

> I know Dr. Tarnopolsky has been the pioneer in using creatine in

> neuromuscular disorders. He has felt for some time that it is safe

> and recommends it for patients. I am glad to know that other experts

> now agree.

>

> Tks again.

> Barbara