Conference AND & a Updates

August 9, 2004

Hi all,

I wanted to say that I really enjoyed meeting many of you at the conference.

It was also really good to get some time to talk to some of the mito

specialists, as well, but I really enjoyed spending time with you guys the most.

I

always feel like a few days goes by so fast when I'm at conferences like this.

Thanks to Laurie, , Bug, and Christie for their hardwork. It definitely

takes energy to do what all of you did and we're all really appreciative.

I talked with 's mom and also with a tonight. Both were

admitted to the hospital today. flew straight to Cleveland from the

conference b/c she wasn't feeling well. They got a room at the RMH and today she

got

admitted to CCF. She saw a pediatric GI doctor today who wanted to try a few

more things before thinking about removing her colon. He'll be coming back

tomorrow to see her again and they'll talk more about what the plan is. Her mom

sounded much more hopeful about coming up with a good plan since they'd seen

him.

He sounds like he's really going to try to think about solutions for .

YAY!

And...a had her GJ tube placed today. She said that she had some

tremors after she woke up and had vomited several times this afternoon. They are

giving her demerol for pain and it seems to be helping some. They still have her

NPO and still have an NG tube down for suction if needed. She's not sure if

she'll go home tomorrow or not, but originally that was the plan.

Please keep both of these inspirational young women in your prayers. I'll

update tomorrow if I hear anything more.

Malisa

Recommended Posts