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Re: mitoldies: daughter back in the hosp

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Please know that you are all in my prayers.

Mrsmurffy@... wrote:

>Hello,

>My middle girl just spent a week in the hospital for metabolic acidosis, now

>this week my oldes is in for bowel obstruction...we are doing the IV

>neostigmine which scares me to death..right before they administer it they

bring the

>crash cart into hte room, then the head nouse, her nurse and the ped doc is

>there. It has to be given by a doctor and she has to be placed on heart

monitors

>and a blood pressure maching that takes her pressures every 3 minutes for 1/2

>hour. Last night she tolerated it alright, her BP dropped to 60/40 and her

>heart rate went to 46. she came back up though. There has got to be a better

>way...she will get another dose this morning so please cross fingers and pray

>it works...the more doses she gets the more the reaction....

>thanks

>

>p.s. we have tried everything else we can think of...all OTC things, miralax,

>enemas, zelnorm, even milk and molasses enemas and drinks. they took away

>all dairly and juices and sodas..

>

>

>

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Please know that you are all in my prayers.

Mrsmurffy@... wrote:

>Hello,

>My middle girl just spent a week in the hospital for metabolic acidosis, now

>this week my oldes is in for bowel obstruction...we are doing the IV

>neostigmine which scares me to death..right before they administer it they

bring the

>crash cart into hte room, then the head nouse, her nurse and the ped doc is

>there. It has to be given by a doctor and she has to be placed on heart

monitors

>and a blood pressure maching that takes her pressures every 3 minutes for 1/2

>hour. Last night she tolerated it alright, her BP dropped to 60/40 and her

>heart rate went to 46. she came back up though. There has got to be a better

>way...she will get another dose this morning so please cross fingers and pray

>it works...the more doses she gets the more the reaction....

>thanks

>

>p.s. we have tried everything else we can think of...all OTC things, miralax,

>enemas, zelnorm, even milk and molasses enemas and drinks. they took away

>all dairly and juices and sodas..

>

>

>

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,

Fingers are crossed and prayers are on their way. (You WOULD think

there was a less scarey way to do this.) Sounds like they're being

cautious though, and I'm sure they'll take good care of her.

Let me know how she's doing, okay?

Maggie

> Hello,

> My middle girl just spent a week in the hospital for metabolic

acidosis, now

> this week my oldes is in for bowel obstruction...we are doing the

IV

> neostigmine which scares me to death..right before they administer

it they bring the

> crash cart into hte room, then the head nouse, her nurse and the

ped doc is

> there. It has to be given by a doctor and she has to be placed on

heart monitors

> and a blood pressure maching that takes her pressures every 3

minutes for 1/2

> hour. Last night she tolerated it alright, her BP dropped to

60/40 and her

> heart rate went to 46. she came back up though. There has got to

be a better

> way...she will get another dose this morning so please cross

fingers and pray

> it works...the more doses she gets the more the reaction....

> thanks

>

> p.s. we have tried everything else we can think of...all OTC

things, miralax,

> enemas, zelnorm, even milk and molasses enemas and drinks. they

took away

> all dairly and juices and sodas..

>

>

>

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,

Fingers are crossed and prayers are on their way. (You WOULD think

there was a less scarey way to do this.) Sounds like they're being

cautious though, and I'm sure they'll take good care of her.

Let me know how she's doing, okay?

Maggie

> Hello,

> My middle girl just spent a week in the hospital for metabolic

acidosis, now

> this week my oldes is in for bowel obstruction...we are doing the

IV

> neostigmine which scares me to death..right before they administer

it they bring the

> crash cart into hte room, then the head nouse, her nurse and the

ped doc is

> there. It has to be given by a doctor and she has to be placed on

heart monitors

> and a blood pressure maching that takes her pressures every 3

minutes for 1/2

> hour. Last night she tolerated it alright, her BP dropped to

60/40 and her

> heart rate went to 46. she came back up though. There has got to

be a better

> way...she will get another dose this morning so please cross

fingers and pray

> it works...the more doses she gets the more the reaction....

> thanks

>

> p.s. we have tried everything else we can think of...all OTC

things, miralax,

> enemas, zelnorm, even milk and molasses enemas and drinks. they

took away

> all dairly and juices and sodas..

>

>

>

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Dear karen, That sounds like such a scary situation for you and your

daughter to be in. I am rather late in posting this, so I hope by now

the crisis has passed and that things are going better. About the

neostigmine- i just wanted to let you know that I take Mestinon (the

drug for myasthenia gravis, and it either is, or is related to

neostigmine) because it seems to help my muscle strength some. the

other good thing, is that it is really good for my Gi motility

problems:so maybe yur daughter's doc could consider her taking the

drug orally on a regular basis. My gut feels much better on it, and i

am much more regular (I also take the gi meds domperidone and zelnorm

but no laxitives) Celia--

- In , Mrsmurffy@a... wrote:

> Hello,

> My middle girl just spent a week in the hospital for metabolic

acidosis, now

> this week my oldes is in for bowel obstruction...we are doing the IV

> neostigmine which scares me to death..right before they administer

it they bring the

> crash cart into hte room, then the head nouse, her nurse and the ped

doc is

> there. It has to be given by a doctor and she has to be placed on

heart monitors

> and a blood pressure maching that takes her pressures every 3

minutes for 1/2

> hour. Last night she tolerated it alright, her BP dropped to 60/40

and her

> heart rate went to 46. she came back up though. There has got to

be a better

> way...she will get another dose this morning so please cross fingers

and pray

> it works...the more doses she gets the more the reaction....

> thanks

>

> p.s. we have tried everything else we can think of...all OTC things,

miralax,

> enemas, zelnorm, even milk and molasses enemas and drinks. they

took away

> all dairly and juices and sodas..

>

>

>

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