Re: ~Barry

[Guest guest]

Tonya,

your post touched me very deeply. I feel so sad for all your hurt right now.

I wish you and Barry could make that trip to the ocean, together. I wish you

werent struggling so much.

I wish for that Birthday for your kids.

I wish I had more than words to offer,

sending love and hugs and prayers..

[Guest guest]

Hi Tonya,

I'm sorry to read the difficulties you are experiencing and the decline in

Barry's health. I'm sure this is very difficult for him. Have you been in

contact with Hospice per the information that was provided in an earlier message

to you? If you have lost this - here it is again:

From: " patsyannk "

PatsyAnnK@...http://health.groups.yahoo.com/group/ /post?postID=s8\

LPH-nv0Qbq89R2ZKmc4tffOViXbgByGkLGfpI8fdG2xgKh77ypahlHEHXAsg6bT8SIolqZxw>>

Date: Wed Aug 25, 2004 6:32 pm

Subject: Barry and Tonya

I should have posted earlier but I forgot. I did find an excellent

Hospice right in the town where they live. I talked to the gentleman

and he said they will do anything they can. He was very friendly and

helpful. This hospice is affliated with Henry Ford Hospital. Medicare

is no problem and the fact that Barry can still walk is immaterial.

I talked to Tonya a little while ago and she hadn't had time to call

yet.

Pat K

An earlier suggestion to get a friend in to make the call was a good one.

Please don't hesitate. This may help you all in more ways than one.

Alice

RE: ~Barry

Dear Friends,

I am here again with nothing but more bad news. Last

night I think Barry suffered a small stroke. He wont

go to the hospital and he doesnt want to go to the

DR's. He seems ok now, nothing has changed much in

the line of pain or anything else , just sleeps all

the time and says he cant believe the amount of pain

he is in nor how sick he feels all the time. Keeping

him sleeping is the best one can hope for right now.

I just kinda sit and watch him , I leave when I have

to and always expect him to be dead when I come home.

I hate this and I am falling into a deep deep

depression. I have no medical insurance for myself

and so therefore I cant go see someone to talk to ,

nor can I get prescriptions for myself. Right now I

want to run and hide from this. I have been so strong

for four years and I feel like a deflated ballon. I

have been beaten down slowly.

I received a gift in the mail this past weekend and

what a blessing it was because I was able to go to the

grocery store and buy food. The daily challenge of

paying basic bills and buying food is more then I can

take. Our children have birthdays coming in the next 2

weeks and I explained to them that right now I cant

afford to do birthday parties. They seem to

understand , but I feel so guilty. They have had to

suffer right along with the rest of us and give up so

much. Nothing about this is fair. I am not a

complainer or hosting a pitty party, I just dont know

where else to turn.

The other night Barry was watching TV and they were

showing the ocean and he said to me , Tonya , before I

die I want to see the ocean one more time. What a

humble thing for someone to ask for. With us being in

Michigan the ocean is not a close place for us to go

to. I thought , ya know they should have a Make a

wish foundation for Adults.

This disease has taken everything from us, and it just

doesnt stop. I cant help but want it to be over and

for him to not suffer anymore. They put animals out

of their misery but yet he has to suffer so much. The

past 4 months have been such a test for him and he is

taking it personal , saying to me , wow , I must have

done something very wrong in my life to have it end

this way. And he says to me , all I wanted was to

work and have a life.

He has never complained and will not even entertain

the idea of self pitty. He has faught so hard to

never win. Im the one who feels sorry for him. And

he can see it in me. I can only be so strong.

I know that with everything ....I have known in my

life what true love is. I believe God gave me Barry

so I would know what love from a man is. It has been

the greatest thing, undescribable and so wonderful yet

so painful to lose.

I will keep all of you posted. For right now he is

sleeping and comfortable.

Tonya

[Guest guest]

---Tonya, You are in my thoughts and prayers during this very

difficult time. Like someone else said you are my hero. Take care of

yourself, you are a victom of this awful disease. You need lot's of

TLC. Big cyber-hugs, dawn a

In , " A ADAMS " wrote:

> Hi Tonya,

>

> I'm sorry to read the difficulties you are experiencing and the

decline in Barry's health. I'm sure this is very difficult for

him. Have you been in contact with Hospice per the information that

was provided in an earlier message to you? If you have lost this -

here it is again:

>

> From: " patsyannk "

http://health.groups.yahoo.com/group/ /post?

postID=s8LPH-

nv0Qbq89R2ZKmc4tffOViXbgByGkLGfpI8fdG2xgKh77ypahlHEHXAsg6bT8SIolqZxw>

>

> Date: Wed Aug 25, 2004 6:32 pm

> Subject: Barry and Tonya

>

>

>

>

> I should have posted earlier but I forgot. I did find an

excellent

> Hospice right in the town where they live. I talked to the

gentleman

> and he said they will do anything they can. He was very

friendly and

> helpful. This hospice is affliated with Henry Ford Hospital.

Medicare

> is no problem and the fact that Barry can still walk is

immaterial.

> I talked to Tonya a little while ago and she hadn't had time

to call

> yet.

> Pat K

>

> An earlier suggestion to get a friend in to make the call

was a good one. Please don't hesitate. This may help you all in

more ways than one.

>

> Alice

>

>

>

> RE: ~Barry

>

>

>

> Dear Friends,

>

> I am here again with nothing but more bad news. Last

> night I think Barry suffered a small stroke. He wont

> go to the hospital and he doesnt want to go to the

> DR's. He seems ok now, nothing has changed much in

> the line of pain or anything else , just sleeps all

> the time and says he cant believe the amount of pain

> he is in nor how sick he feels all the time. Keeping

> him sleeping is the best one can hope for right now.

> I just kinda sit and watch him , I leave when I have

> to and always expect him to be dead when I come home.

> I hate this and I am falling into a deep deep

> depression. I have no medical insurance for myself

> and so therefore I cant go see someone to talk to ,

> nor can I get prescriptions for myself. Right now I

> want to run and hide from this. I have been so strong

> for four years and I feel like a deflated ballon. I

> have been beaten down slowly.

> I received a gift in the mail this past weekend and

> what a blessing it was because I was able to go to the

> grocery store and buy food. The daily challenge of

> paying basic bills and buying food is more then I can

> take. Our children have birthdays coming in the next 2

> weeks and I explained to them that right now I cant

> afford to do birthday parties. They seem to

> understand , but I feel so guilty. They have had to

> suffer right along with the rest of us and give up so

> much. Nothing about this is fair. I am not a

> complainer or hosting a pitty party, I just dont know

> where else to turn.

>

> The other night Barry was watching TV and they were

> showing the ocean and he said to me , Tonya , before I

> die I want to see the ocean one more time. What a

> humble thing for someone to ask for. With us being in

> Michigan the ocean is not a close place for us to go

> to. I thought , ya know they should have a Make a

> wish foundation for Adults.

>

> This disease has taken everything from us, and it just

> doesnt stop. I cant help but want it to be over and

> for him to not suffer anymore. They put animals out

> of their misery but yet he has to suffer so much. The

> past 4 months have been such a test for him and he is

> taking it personal , saying to me , wow , I must have

> done something very wrong in my life to have it end

> this way. And he says to me , all I wanted was to

> work and have a life.

> He has never complained and will not even entertain

> the idea of self pitty. He has faught so hard to

> never win. Im the one who feels sorry for him. And

> he can see it in me. I can only be so strong.

>

> I know that with everything ....I have known in my

> life what true love is. I believe God gave me Barry

> so I would know what love from a man is. It has been

> the greatest thing, undescribable and so wonderful yet

> so painful to lose.

>

> I will keep all of you posted. For right now he is

> sleeping and comfortable.

>

> Tonya

>

>

>

>

>

>

[Guest guest]

Tonya,

I've delayed responding to your post wishing that there was

something I could say that would be of some comfort to you and your

family. It's heartbreaking and I'm in awe that you are managing as

well as you have been under these circumstances. I'll pray that

you find the strength that you need to get you carry you through

this.

Hugs,

Maggie

> > Hi Tonya,

> >

> > I'm sorry to read the difficulties you are experiencing and the

> decline in Barry's health. I'm sure this is very difficult for

> him. Have you been in contact with Hospice per the information

that

> was provided in an earlier message to you? If you have lost this -

> here it is again:

> >

> > From: " patsyannk "

>

http://health.groups.yahoo.com/group/ /post?

> postID=s8LPH-

>

nv0Qbq89R2ZKmc4tffOViXbgByGkLGfpI8fdG2xgKh77ypahlHEHXAsg6bT8SIolqZxw>

> >

> > Date: Wed Aug 25, 2004 6:32 pm

> > Subject: Barry and Tonya

> >

> >

> >

> >

> > I should have posted earlier but I forgot. I did find an

> excellent

> > Hospice right in the town where they live. I talked to the

> gentleman

> > and he said they will do anything they can. He was very

> friendly and

> > helpful. This hospice is affliated with Henry Ford

Hospital.

> Medicare

> > is no problem and the fact that Barry can still walk is

> immaterial.

> > I talked to Tonya a little while ago and she hadn't had

time

> to call

> > yet.

> > Pat K

> >

> > An earlier suggestion to get a friend in to make the call

> was a good one. Please don't hesitate. This may help you all in

> more ways than one.

> >

> > Alice

> >

> >

> >

> > RE: ~Barry

> >

> >

> >

> > Dear Friends,

> >

> > I am here again with nothing but more bad news. Last

> > night I think Barry suffered a small stroke. He wont

> > go to the hospital and he doesnt want to go to the

> > DR's. He seems ok now, nothing has changed much in

> > the line of pain or anything else , just sleeps all

> > the time and says he cant believe the amount of pain

> > he is in nor how sick he feels all the time. Keeping

> > him sleeping is the best one can hope for right now.

> > I just kinda sit and watch him , I leave when I have

> > to and always expect him to be dead when I come home.

> > I hate this and I am falling into a deep deep

> > depression. I have no medical insurance for myself

> > and so therefore I cant go see someone to talk to ,

> > nor can I get prescriptions for myself. Right now I

> > want to run and hide from this. I have been so strong

> > for four years and I feel like a deflated ballon. I

> > have been beaten down slowly.

> > I received a gift in the mail this past weekend and

> > what a blessing it was because I was able to go to the

> > grocery store and buy food. The daily challenge of

> > paying basic bills and buying food is more then I can

> > take. Our children have birthdays coming in the next 2

> > weeks and I explained to them that right now I cant

> > afford to do birthday parties. They seem to

> > understand , but I feel so guilty. They have had to

> > suffer right along with the rest of us and give up so

> > much. Nothing about this is fair. I am not a

> > complainer or hosting a pitty party, I just dont know

> > where else to turn.

> >

> > The other night Barry was watching TV and they were

> > showing the ocean and he said to me , Tonya , before I

> > die I want to see the ocean one more time. What a

> > humble thing for someone to ask for. With us being in

> > Michigan the ocean is not a close place for us to go

> > to. I thought , ya know they should have a Make a

> > wish foundation for Adults.

> >

> > This disease has taken everything from us, and it just

> > doesnt stop. I cant help but want it to be over and

> > for him to not suffer anymore. They put animals out

> > of their misery but yet he has to suffer so much. The

> > past 4 months have been such a test for him and he is

> > taking it personal , saying to me , wow , I must have

> > done something very wrong in my life to have it end

> > this way. And he says to me , all I wanted was to

> > work and have a life.

> > He has never complained and will not even entertain

> > the idea of self pitty. He has faught so hard to

> > never win. Im the one who feels sorry for him. And

> > he can see it in me. I can only be so strong.

> >

> > I know that with everything ....I have known in my

> > life what true love is. I believe God gave me Barry

> > so I would know what love from a man is. It has been

> > the greatest thing, undescribable and so wonderful yet

> > so painful to lose.

> >

> > I will keep all of you posted. For right now he is

> > sleeping and comfortable.

> >

> > Tonya

> >

> >

> >

> >

> >

> >

[Guest guest]

In a message dated 9/7/2004 9:57:02 AM Eastern Standard Time,

ladymaddie@... writes:

What a

humble thing for someone to ask for. With us being in

Michigan the ocean is not a close place for us to go

to. I thought , ya know they should have a Make a

wish foundation for Adults.

Hi Tonya,

First I want to say how deeply sorry I am that Barry is having such a hard

time. I wish that things were easier for both of you.

I wanted to let you know that there is actually an adult wish organization

for those with less than a year to live.

Go to _www.dreamfoundation.com_ (http://www.dreamfoundation.com) Even if

Barry is too sick to go to the ocean maybe there is something closer to home

that you could do as a family. I find that having something to look forward

to when things are really hard is such a gift. Maybe this will bring some

happiness into your family in these extremely hard times.

Malisa