Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 My mom and I flew home from Cleveland today. I'm not feeling well and nothing has really been resolved. On the plus side I did get established with the Ped's GI at CCF and they had much better and realistic ideas for me. I have to return to CCF for 2 wks in Sept. for upper and lower manometry studies. I will also have biopsies taken for Celiac Disease. I was put back on a regular diet and taken off the Boost Plus. The GI doc. felt it was better for me to be on food. I'm being tapered off the Senokot onto Zelnorm and a double dose of Miralax. It's not working at all so far and that is really hard. I'm eating as well as I can and trying to mentally fight this battle and just force more food in even when I'm too full. There is still the possibility of trying Propulsid if the Zelnorm doesn't work as well as the Cecostomy after the motility studies are done. I'm still battling an UTI and have had bleeding which is very troubling after 2 antibiotics. I will be seeing my local doc. and having an ultrasound of my kidneys and bladder done. Appreciated your prayers and kind words while I was away. Quote Link to comment Share on other sites More sharing options...
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