Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 Welcome to the group. Yes, there are lots of us and this group is very supportive. I'm glad you found us. laurie > > Reply-To: > Date: Fri, 30 Jul 2004 23:45:39 -0700 (PDT) > To: > Subject: Re:Hello I am New > > Hello, > My name Is and I am new to this group! I have MELAS. > I have been diagnosed for about 10 years now.I am just now,starting to find > out that there are more people who have this and that I am not alone.Thanks > for letting be a part of this group. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 Hi , I'm glad you found the group. Did you find us doing a web search or did someone tell you about Mitoldies. It's a very supportive group as you will find and I am sure you will be glad you discovered it. the reason you are here is not a pleasant one but the members are like one big family and you'll feel comfortable here. I hope you'll share a little about yourself like where you got your diagnosis and what drove you to find it. Did you spend years like most or was it found because of genetics in the family? Are you the only person in your family with the disease? That's enough questions. I hope they encourage you to tell us more about . Welcome! Alice My name Is and I am new to this group! I have MELAS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 Hello, I found this group from a Friend,Malisa! I started this rough journey from birth! My Mom was in and out of the hospital and doctors with me!I had too many infections,sick alot,being underweight and a right droopy eye! It wasn't until I was 19 and My eye doctor said,she couldn't figure out why my eye was droopy.she kept telling my mom i had myasenia gravis,so she referred me to the M.D.A clinic.So,I met A doctor who looked at my history and gave me a exam.He said,I am going to take a muscle biopsy,because I don't think you have myasenia,i think you have Mitochondrial Encephalomyopathy! I Felt all sorts of emotions.They said It would take a week to get the results.They called me 3 days later to come in. I went in and they told us that it was mito! I am not currently on any medication.I am still underweight,I had a complete Hysterectomy at age 22,due to all of my female stuff losing muscle mass.I have a lot of other things going on that I am trying to get help with.I after,10 years of being diagnosed am still learning about this disease. So far they don't know where it came from.Hope this helps explain a little about me. A ADAMS justagram14@...> wrote: Hi , I'm glad you found the group. Did you find us doing a web search or did someone tell you about Mitoldies. It's a very supportive group as you will find and I am sure you will be glad you discovered it. the reason you are here is not a pleasant one but the members are like one big family and you'll feel comfortable here. I hope you'll share a little about yourself like where you got your diagnosis and what drove you to find it. Did you spend years like most or was it found because of genetics in the family? Are you the only person in your family with the disease? That's enough questions. I hope they encourage you to tell us more about . Welcome! Alice My name Is and I am new to this group! I have MELAS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 In a message dated 7/31/2004 8:43:35 AM Eastern Standard Time, tiffany.kellison@... writes: My name Is and I am new to this group! I have MELAS. I have been diagnosed for about 10 years now.I am just now,starting to find out that there are more people who have this and that I am not alone.Thanks for letting be a part of this group. Hi , Good to see you here. This is a great group of people! Malisa Quote Link to comment Share on other sites More sharing options...
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