Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 In a message dated 8/3/2004 5:40:00 AM Central Daylight Time, writes: > Mayo Clinic has a very disappointing > >attitude towards it. I forgot exactly how they put it, but almost > >saying it was emotional or exaggerated, or something. I don't > think > Does anyone have any experience with Mayo Clinic Rochester MN as far as mito goes? My husband was diagnosed last month, we go back to Mayo the end of this month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Hi, , I want to clarify. I did not go to the Mayo Clinic for hypoglycemia or mito. I was referring to some references, including a Health Encyclopedia tyype of book put out by the Mayo Clinic. One of my endos - the arrogant one that said he would not read Dr. Cohen's paper - also quoted the Mayo Clinic's position. I know nothing about the work in mito the Mayo Clinic is doing, but I would expect it to be state of the art. Also, the docs don't always agree, even at a place like, Mayo, so I should have been clearer about it in my post. Sorry if I gave the wrong impression. Regards Sunny > In a message dated 8/3/2004 5:40:00 AM Central Daylight Time, > writes: > > > Mayo Clinic has a very disappointing > > >attitude towards it. I forgot exactly how they put it, but almost > > >saying it was emotional or exaggerated, or something. I don't > > think > > > > Does anyone have any experience with Mayo Clinic Rochester MN as far > as mito > goes? My husband was diagnosed last month, we go back to Mayo the > end of this > month. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 I have to jump in here. Everything I have heard about the Mayo Clinic and Mito patient's has not been favorable at all. Anyone I have known to have gone there for anything with regard to Mito has come away very disappointed. Alice Hi, , I want to clarify. I did not go to the Mayo Clinic for hypoglycemia or mito. I was referring to some references, including a Health Encyclopedia tyype of book put out by the Mayo Clinic. One of my endos - the arrogant one that said he would not read Dr. Cohen's paper - also quoted the Mayo Clinic's position. I know nothing about the work in mito the Mayo Clinic is doing, but I would expect it to be state of the art. Also, the docs don't always agree, even at a place like, Mayo, so I should have been clearer about it in my post. Sorry if I gave the wrong impression. Regards Sunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 In a message dated 8/3/2004 11:03:46 AM Eastern Standard Time, jest2smile@... writes: Does anyone have any experience with Mayo Clinic Rochester MN as far as mito goes? My husband was diagnosed last month, we go back to Mayo the end of this month. There is one geneticist at Mayo that I have heard people have good luck with....Dr Whiteman. I heard he wasn't seeing new patients for awhile, but haven't heard anything about that recently. Good luck. Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 interesting, Alice I do not know if I am surprised or not. I did visit the Mayo clinic about 20 years ago, when my back was giving me a lot of trouble. (Now I realize the muscle weakness was at least part of the cause - I did not have enough internal muscle strength to keep proper posture for long - this resulted in more spinal pain). I was not helped very much at all, and felt that many people there were somewhat arrogant. If they could not fix it, it was not serious tthey seemed to imply. Several others patients that I spoke to also felt that way. But, I did have one great physical therapist/MD who made the trip worth it, and have heard other good stories. As far as mito docs, I think the personality of the doctor is most important, not where he/she is. The doc has to be willing to learn, admit he doesn't know everything, and respect that the patient has physical reasons for the sometimes " unusual " set of symptoms. Not sure that this is the type of personality that prestigious places attract. Just my thought. > I have to jump in here. Everything I have heard about the Mayo Clinic > and Mito patient's has not been favorable at all. Anyone I have > known to have gone there for anything with regard to Mito has come > away very disappointed. > > Alice > > Hi, , > I want to clarify. I did not go to the Mayo Clinic for hypoglycemia > or > mito. I was referring to some references, including a Health > Encyclopedia tyype of book put out by the Mayo Clinic. One of my > endos - the arrogant one that said he would not read Dr. Cohen's > paper > - also quoted the Mayo Clinic's position. > > I know nothing about the work in mito the Mayo Clinic is doing, but > I > would expect it to be state of the art. Also, the docs don't always > agree, even at a place like, Mayo, so I should have been clearer > about > it in my post. Sorry if I gave the wrong impression. > > Regards > > Sunny > > > Quote Link to comment Share on other sites More sharing options...
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