Re: Heart Failure?

[Guest guest]

,

I was dx'ed with left ventricular diastolic dysfunction about 1 year

ago. My PCP at the time wanted me on blood pressure meds. I tried

Toprol XL and had horrible side effects. I then insisted on going to a

cardiologist and he said mine was NOT nearly bad enough to take meds for

it. This year, my echo showed no sign if it. I don't know if it was

the tech or the increase in the Q-Gel over the last year that accounted

for the test result difference.

Don't get in a panic, just get checked out by a cardiologist and see

what they say. It may just be something to keep on eye on take take

blood pressure meds if warrented.

BDS31@... wrote:

>Dear Listmates,

>Here I am back again, and I apologize for being so loquacious....

>I saw my wonderful neurologist in mid-September, and I told her that I

>had been having more falls. In the past, I always attributed them to my

>bad right knee. (I broke my wrist twice in six months, and dislocated my

>elbow--way before mito).

>She knows I have balance problems, along with going deaf. However, she

>wants first to rule out a cardiac cause. I always sign to get a copy of

>my test results, and as others said here recently, DO this every time.

>Several years ago an MDA clinic said I had a cardiac conduction defect

>(very common in mito), but did not need treatment yet. I couldn't find

>out anything else; not getting info on test results was one of the

>reasons I left that clinic.

>

>Well, yesterday I was sent a copy of my echocardiogram, and it said that

>I have " a mitral flow velocity consistent with left ventricular

>diastolic dysfunction. " Also, my right ventricular systolic pressure is

>quite low.

>

>When I did a google, they called this heart failure. Also said that this

>usually presents with no symptoms. Yikes. Do any of you have this?

>It said that if this condition showed up after a heart attack, the

>prognosis is grave. To my knowledge I have not had a heart attack,

>though we found out that my father had had two silent heart attacks.

>

>Am still waiting for the Holter monitor results.

>Guess I better make an appt. to see the cardiologist. I like all of my

>physicians, but he is a bit of a " cold fish, " but I think a very

>competent cold fish.

>Any feedback would be very appreciated!

>Thank you.

> S.

>

>

>

>

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>

[Guest guest]

Dear ,

Thanks for your reassuring reply. The echo was done at the office of a

cardiologist I had already seen. He had said I can't take the triptans

for migraines because of Prinzmetal's angina.

He called me after you answered my post, and said that the test result

was because of my age (60), and was to be expected.

He said he was not too upset about it.

I already take an ACE-inhibitor for high blood pressure. And my neuro

has me also on a calcium channel blocker. I told her that Dr. Cohen at

the UMDF convention said not to use cal.channel blockers with mito, but

she said that I must stay on Verapamil.

So, thanks for your reply!

S.

[Guest guest]

I am glad you are feeling better about the dx. Can I ask what you take

the Verapamil for? Why won't your neuro let you go off it it?

BDS31@... wrote:

>Dear ,

>Thanks for your reassuring reply. The echo was done at the office of a

>cardiologist I had already seen. He had said I can't take the triptans

>for migraines because of Prinzmetal's angina.

>

>He called me after you answered my post, and said that the test result

>was because of my age (60), and was to be expected.

>He said he was not too upset about it.

>I already take an ACE-inhibitor for high blood pressure. And my neuro

>has me also on a calcium channel blocker. I told her that Dr. Cohen at

>the UMDF convention said not to use cal.channel blockers with mito, but

>she said that I must stay on Verapamil.

>So, thanks for your reply!

> S.

>

>

>

>

[Guest guest]

Dear Tonya,

Thanks so much for responding. As I have just posted to others, the

cardiologist just said that he is not very upset over this, so I will

try not to be.

As far as your dreadful problem with your husband's cardiovascular

health,could they not offer him a cardiac pacemaker? Would this solve

these life-threatening attacks that he keeps getting. They must be very

scary for the whole family....

Once I saw my husband turn blue and collapse on the floor at the foot of

the bed. He had gotten a cough drop lodged in his windpipe. With the

help of my daughters, who were about 8 and 10 at the time, I did the

Heimlich technique and out came the deadly cough drop. Since my husband

has almost no recollection of this, he just brushed it aside. But the

memory of it scares me still.

Can you possibly be more aggressive with the doctors regarding a

solution to this very scary episodes?

Thank you again.

S.

PA

[Guest guest]

Dear ,

She gave me the first Rx of Verapamil for the awful migraine attacks

that kept me incapacitated for days. It can help some with migraines.

Then, once when she checked my blood pressure, the systolic reading was

180, so she upped the dose to 240 mgs. I also take lisinopril twice

daily. I think it's all part of autonomic neuropathy.

After sending me for an echo and Holter monitoring, she had mentioned

the tilt table test to me. Did you have that test, ? Also, I find

that my various probs with autonomic neuropathy vary on a daily basis.

Is this true for anyone else on the list?

Thanks for your response and for your interest.

Sincerely,

S.

PA