Re: UMDF Conference: Dr. Bruce Cohen on Headaches

[Guest guest]

As to headaches I have had them since I was 9 years old I'm now 40, when

all my boys were born I nursed each of them even the twins, well to keep up with

the milk demand I had to drink a lot of water, one thing I noticed all the

while I nursed them was my headaches diminished a lot. I also notice this when I

give blood I really slam the water the day before the day of and the day

after and no headache. I use to give blood and boy did it knock me down so I

turned to the water theory and hey it seems to work. Now my headaches are by NO

means gone but the water seems to help.

Patty possible mito

Josh age 8 Mito Myopathy

[Guest guest]

As to headaches I have had them since I was 9 years old I'm now 40, when

all my boys were born I nursed each of them even the twins, well to keep up with

the milk demand I had to drink a lot of water, one thing I noticed all the

while I nursed them was my headaches diminished a lot. I also notice this when I

give blood I really slam the water the day before the day of and the day

after and no headache. I use to give blood and boy did it knock me down so I

turned to the water theory and hey it seems to work. Now my headaches are by NO

means gone but the water seems to help.

Patty possible mito

Josh age 8 Mito Myopathy

[Guest guest]

Very interesting. I did not know that dehydration could cause

chronic intercranial hypotension, which in turn could cause

headaches. I have printed to save. Thks so much for posting all

these tidbits from the conference, . Almost as good as being

there!

Barbara

> Dear Friends,

> I found Dr. Cohen's talk to be very interesting, since I suffer

from

> very disabling headaches, accompanied by vomiting of copious bile,

and a

> very rapid heartbeat (often c. 160/minute). These attacks often

leave me

> very weak, and I know that many of you suffer with the same thing.

I

> think that headaches have marred my life more than any other mito

> symptom.

> Dr. Cohen said that he considers the two most common causes of

headache

> in mito to be sleep apnea (which I know about and for which I

probably

> should be tested), and chronic intracranial hypotension caused by

> dehydration. This sounds very reasonable, too. I wonder if being

careful

> to drink more fluids would help? Because of autonomic neuropathy,

I know

> that I often do not feel thirsty. Also, I rarely sweat. I think

that I

> had an attack of heat exhaustion recently at a dog show, on a hot

and

> muggy day.

> I knew that I would shortly throw up right next to the best-of-

breed

> ring and then faint, if I did not leave immediately. I retreated

to the

> car, blasted the air conditioning,lay down, and used the dogs'

water

> with paper towels. (They were very gracious to share it with me!

> Hahaha!)

>

> I hope this will help someone.

> Take good care.

> Sincerely,

> S.

> PA