Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Let me send you a link to what things look like to me. It will give you a better idea than my trying to describe it. This is not actually all that new but has increased in severity since last fall. Alice http://www.american- hearing.org/name/bilateral_vestibulopathy.html&PrinterFriendly=yes Alice > Dear Alice, > May I ask how your vestibular problems are causing your vision to be > distorted? > Is this a relatively new problem? (I know that your balance problems > are very disabling, and have been so for more than a year.) Can you > describe the distortions you see? > Does anyone else here have the same thing? > Please forgive the 20 questions, but I think we always learn so much > from you and from your experiences, Alice. > Be well! > Sincerely, > S. > PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 In a message dated 9/2/2004 3:49:07 PM Eastern Standard Time, justagram14@... writes: Let me send you a link to what things look like to me. It will give you a better idea than my trying to describe it. This is not actually all that new but has increased in severity since last fall. Hi Alice, Do you have oscillopsia (the appearance of things bouncing when you walk)? This happened to me after I had a 4 week course of the antibiotic gentamicin. It was so bad that it was like looking at the world through a tv video that had been videotaped on someone's shoulder while they were walking or running. I still have it, but have compensated pretty well. It gets worse when I am tired though. It is a frustrating problem to deal with and I am so glad that it has gotten so much better for me. I hope you don't have it too, too badly. Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Yes Malissa, I was diagnosed with opsillopsia by the n-o. Did you know that there's a lab doing studies on people who have this condition from gentamicin? I'll see if I can find the link to it and send it to you. My situation has worsened over the last year. In fact it's considerably worse and I went from dizzy to this. I was able to drive a little bit a year ago. Now I cannot drive at all and I can't even tolerate being in moving vehicle too well. Much of the time, I close my eyes. I actually have dizziness and this condition which sometimes working together make it impossible. The computer makes it all worse so I am limited in spending time with my favorite pastime these days. Alice Re: Re: For Alice: Your Eyes In a message dated 9/2/2004 3:49:07 PM Eastern Standard Time, justagram14@...justagram14@...> writes: Let me send you a link to what things look like to me. It will give you a better idea than my trying to describe it. This is not actually all that new but has increased in severity since last fall. Hi Alice, Do you have oscillopsia (the appearance of things bouncing when you walk)? This happened to me after I had a 4 week course of the antibiotic gentamicin. It was so bad that it was like looking at the world through a tv video that had been videotaped on someone's shoulder while they were walking or running. I still have it, but have compensated pretty well. It gets worse when I am tired though. It is a frustrating problem to deal with and I am so glad that it has gotten so much better for me. I hope you don't have it too, too badly. Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Dear Alice, You are always so supportive of the rest of us. I'm sory to hear that this condition has become so limiting for you. i suffer from intermittant vertigo problems myself, so I can imagine how awful it must be to feel like that most of the time. Is there anything they can do for you?, Celia > Yes Malissa, > > I was diagnosed with opsillopsia by the n-o. Did you know that there's a lab doing studies on people who have this condition from gentamicin? I'll see if I can find the link to it and send it to you. > > My situation has worsened over the last year. In fact it's considerably worse and I went from dizzy to this. I was able to drive a little bit a year ago. Now I cannot drive at all and I can't even tolerate being in moving vehicle too well. Much of the time, I close my eyes. I actually have dizziness and this condition which sometimes working together make it impossible. The computer makes it all worse so I am limited in spending time with my favorite pastime these days. > > Alice > Re: Re: For Alice: Your Eyes > > > > > In a message dated 9/2/2004 3:49:07 PM Eastern Standard Time, > justagram14@m... writes: > > Let me send you a link to what things look like to me. It will give > you a better idea than my trying to describe it. This is not > actually all that new but has increased in severity since last fall. > > > > > Hi Alice, > Do you have oscillopsia (the appearance of things bouncing when you walk)? > This happened to me after I had a 4 week course of the antibiotic gentamicin. > It was so bad that it was like looking at the world through a tv video that > had been videotaped on someone's shoulder while they were walking or running. > I still have it, but have compensated pretty well. It gets worse when I am > tired though. > It is a frustrating problem to deal with and I am so glad that it has gotten > so much better for me. I hope you don't have it too, too badly. > Malisa > > > > > Quote Link to comment Share on other sites More sharing options...
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