Re: Cholesterol, Foods, Lipomas

[Guest guest]

-Dear S, I have a few small lipomas only- nothing causing much

of a problem. Interestingly, i have no family history of cholesterol

problems, but I am going to let my doc know when I see her tomorrow,

that they are just one more thing that could be attribulted to mito, Celia

-- In , BDS31@w... wrote:

> Dear Celia,

> In reading a bit about lipid disorders, I see that they are caused by

> some metabolic glitch. Certainly a mito thing.

> Do you have any problems with lipomas? (Benign fatty tumors.) I have one

> on my upper arm. And I have developed flocks of them along the tendons

> in both my legs, and which now are infiltrating into the adjacent

> muscles.

> We used to have a member, o from Rome, a medical doctor, who was

> having a very difficult time with lipomas all over his body. (Are you

> out there, o?) Also, does anyone remember B. from Kansas

> City? She was going through awful problems with lipomas that were

> greatly compromosing her life, and causing great pain.(Are you out

> there, ?!)

> I have had dogs with lipomas, which the vets like to leave alone, unless

> they are in an area where they cause pain. They have a very robust blood

> supply, and their removal, in dogs at least, can be dangerous because of

> bleeding.

> Take care, Celia. Thanks for all of the help regarding gastroparesis.

> And I hope you get a diagnosis----SOON!

> S.

> PA

[Guest guest]

Yes, I remember from KC and all her problems with lipomas. I

have not heard from her for several years, so don't know what is

happening. We had arranged to meet once, but I had to cancel. I

don't have her email address anymore. Last word was her doctors at

the MDA clinic at KUMC were not open to a mito diagnosis--but did

have another diagnosis for her that is associated with lipomas,

though I have forgotten the name of the disorder at the moment...

I've had a few lipomas too, but not a plague.

Barbara

> Do you have any problems with lipomas? (Benign fatty tumors.) I

have one

> on my upper arm. And I have developed flocks of them along the

tendons

> in both my legs, and which now are infiltrating into the adjacent

> muscles.

> We used to have a member, o from Rome, a medical doctor, who

was

> having a very difficult time with lipomas all over his body. (Are

you

> out there, o?) Also, does anyone remember B. from Kansas

> City? She was going through awful problems with lipomas that were

> greatly compromosing her life, and causing great pain.(Are you out

> there, ?!)

> I have had dogs with lipomas, which the vets like to leave alone,

unless

> they are in an area where they cause pain. They have a very robust

blood

> supply, and their removal, in dogs at least, can be dangerous

because of

> bleeding.

> Take care, Celia. Thanks for all of the help regarding

gastroparesis.

> And I hope you get a diagnosis----SOON!

> S.

> PA

[Guest guest]

Barbara

I have over a hundred - all sizes. Dr. Cohen said that the incidence of

lipomas is higher in the mito population than in the " normal " population.

laurie

>

> Reply-To:

> Date: Thu, 02 Sep 2004 21:17:54 -0000

> To:

> Subject: Re: Cholesterol, Foods, Lipomas

>

> Yes, I remember from KC and all her problems with lipomas. I

> have not heard from her for several years, so don't know what is

> happening. We had arranged to meet once, but I had to cancel. I

> don't have her email address anymore. Last word was her doctors at

> the MDA clinic at KUMC were not open to a mito diagnosis--but did

> have another diagnosis for her that is associated with lipomas,

> though I have forgotten the name of the disorder at the moment...

>

> I've had a few lipomas too, but not a plague.

> Barbara

>

>

>> Do you have any problems with lipomas? (Benign fatty tumors.) I

> have one

>> on my upper arm. And I have developed flocks of them along the

> tendons

>> in both my legs, and which now are infiltrating into the adjacent

>> muscles.

>> We used to have a member, o from Rome, a medical doctor, who

> was

>> having a very difficult time with lipomas all over his body. (Are

> you

>> out there, o?) Also, does anyone remember B. from Kansas

>> City? She was going through awful problems with lipomas that were

>> greatly compromosing her life, and causing great pain.(Are you out

>> there, ?!)

>> I have had dogs with lipomas, which the vets like to leave alone,

> unless

>> they are in an area where they cause pain. They have a very robust

> blood

>> supply, and their removal, in dogs at least, can be dangerous

> because of

>> bleeding.

>> Take care, Celia. Thanks for all of the help regarding

> gastroparesis.

>> And I hope you get a diagnosis----SOON!

>> S.

>> PA

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

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>

>

>

[Guest guest]

Right, I understand that. I helped gather research material on

the incidence of lipomas in mitochondrial disease, and there are

quite a few reports in the literature on this subject. But her

doctors said her lipomas were due to another genetic disorder which

she was confirmed to have, and for which lipomas are one of the

hallmarks of the disorder. Just can't recall the name.

Barbara

> >> Do you have any problems with lipomas? (Benign fatty tumors.) I

> > have one

> >> on my upper arm. And I have developed flocks of them along the

> > tendons

> >> in both my legs, and which now are infiltrating into the

adjacent

> >> muscles.

> >> We used to have a member, o from Rome, a medical doctor,

who

> > was

> >> having a very difficult time with lipomas all over his body.

(Are

> > you

> >> out there, o?) Also, does anyone remember B. from

Kansas

> >> City? She was going through awful problems with lipomas that

were

> >> greatly compromosing her life, and causing great pain.(Are you

out

> >> there, ?!)

> >> I have had dogs with lipomas, which the vets like to leave

alone,

> > unless

> >> they are in an area where they cause pain. They have a very

robust

> > blood

> >> supply, and their removal, in dogs at least, can be dangerous

> > because of

> >> bleeding.

> >> Take care, Celia. Thanks for all of the help regarding

> > gastroparesis.

> >> And I hope you get a diagnosis----SOON!

> >> S.

> >> PA

> >

> >

> >

> > Medical advice, information, opinions, data and statements

contained herein

> > are not necessarily those of the list moderators. The author of

this e mail is

> > entirely responsible for its content. List members are reminded

of their

> > responsibility to evaluate the content of the postings and

consult with their

> > physicians regarding changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends one is

> > automatically moderated or removed depending on the severity of

the attack.

> >

> >

> >

> >