Guest guest Posted February 8, 2008 Report Posted February 8, 2008 Jung, when I went to the bigger AM dose and moved the bed-time dose back to 8PM I crashed in the middle of the night hard. It took two days for it to happen, but it did and it didn't work out for me. I think that others might say that 20 is a big AM dose that is likely to over-suppress your ACTH later, but if it works for you... We're all different in how we react to this stuff, there is nothing truer than that. > > I've been trying different HC schedules, so this week I've been doing > 20-10-5-5 every 4 hours. (7AM, 11AM, 3PM, 7PM) > > I've noticed that I'm been much more relaxed during the mornings due > to the big morning dose. What's interesting is that I moved my last > dose from bedtime to 7PM, and it hasn't my affected my sleep. My sleep > isn't any better, but it's not any worse, which is surprising. > > Has anybody tried a schedule like this? I read a lot about big doses > suppressing our ACTH too much. Is a schedule like this harmful in any way? > > -Jung Quote
Guest guest Posted February 8, 2008 Report Posted February 8, 2008 Well, it took 4 days to happen to me... I crashed last night after trying this schedule since Monday. I feel horrible today. Are you planning on continuing with the Pred? P.S. How much is it? Jung > > > > I've been trying different HC schedules, so this week I've been doing > > 20-10-5-5 every 4 hours. (7AM, 11AM, 3PM, 7PM) > > > > I've noticed that I'm been much more relaxed during the mornings due > > to the big morning dose. What's interesting is that I moved my last > > dose from bedtime to 7PM, and it hasn't my affected my sleep. My sleep > > isn't any better, but it's not any worse, which is surprising. > > > > Has anybody tried a schedule like this? I read a lot about big doses > > suppressing our ACTH too much. Is a schedule like this harmful in > any way? > > > > -Jung > Quote
Guest guest Posted February 8, 2008 Report Posted February 8, 2008 Sorry to hear that, but I was afraid that it might happen. I'm staying with the pred for now even though it has come with all of it's own tricks and problems - who would have thought that I have to take a drug before 7PM to get it to affect me when I need it to 5-8 hours later or that it would continue to affect me for up to 15 hours later? This stuff (treating with steroids and trying to find a rhythm) is crazy. Last night I took 1.25ml of Pediapred (methyl-prednisolone). 1ml is equal to 1mg which is equal to 4mg of HC so, since I was taking 5mg of HC at bed-time, my equivalent dose of pred is 1.25ml. I think that it's too strong and so does my doc so I'm going to cut it back to 1ml, but I might stay with the 1.25ml for tonight to see if I can repeat last night's decent sleep performance and tomorrow is Sat. so it doesn't matter as much if I can't think straight until noon. Now I need to figure out my HC dose b/c I should be cutting it back by 4-5mg to account for the addition of the pred (assuming that I was on enough HC in the first place). By taking it AND the 2.5mg of cream at bed-time I'll be increasing my daily dose by 5mg if I don't reduce the other doses somewhere. I think that I'll reduce my 6:30PM dose of HC from 7.5mg to 5mg to account for the 2.5mg at bed-time. I'm not sure where to find the other 2.5mg and I could use some help from the wise ones on the board with that. My current dosing schedule is 12.5mg at 8AM, 10mg at 11:30, 7.5mg at 3/3:30, 7.5mg at 6/6:30 and 2.5mg of cream at bed PLUS the 1.25ml of pred for a total dose of 45mg. Should I just take 5 and 5 for my 3PM and 6PM doses? I feel like I need the bigger doses earlier in the day because I'm so wiped out and I start to get dizzy in between when the next dose is due (around 3 hours). Thanks, P.S. I forget how much it was - seems like a big bottle was like a $28 co-pay and I have good insurance. > > Well, it took 4 days to happen to me... I crashed last night after > trying this schedule since Monday. I feel horrible today. > > Are you planning on continuing with the Pred? > > P.S. How much is it? > > Jung Quote
Guest guest Posted February 8, 2008 Report Posted February 8, 2008 My current dosing schedule is 12.5mg at 8AM, 10mg at 11:30, 7.5mg at 3/3:30, 7.5mg at 6/6:30 and 2.5mg of cream at bed PLUS the 1.25ml of pred for a total dose of 45mg. Should I just take 5 and 5 for my 3PM and 6PM doses? I feel like I need the bigger doses earlier in the day because I'm so wiped out and I start to get dizzy in between when the next dose is due (around 3 hours). since prednisolone is long acting steroid and you are taking it night , i would cut back 1.25 mg from each dose.if that is not convenient i would try 10-7.5-7.5-2.5. my thoughts.. best wishes. nil Quote
Guest guest Posted February 8, 2008 Report Posted February 8, 2008 " jasrich " wrote: > I think that I'll reduce my 6:30PM dose of HC > from 7.5mg to 5mg to account for the 2.5mg at bed-time. I'm not sure > where to find the other 2.5mg and I could use some help from the wise > ones on the board with that. > > My current dosing schedule is 12.5mg at 8AM, 10mg at 11:30, 7.5mg at > 3/3:30, 7.5mg at 6/6:30 and 2.5mg of cream at bed PLUS the 1.25ml of > pred for a total dose of 45mg. Should I just take 5 and 5 for my 3PM > and 6PM doses? I feel like I need the bigger doses earlier in the day > because I'm so wiped out and I start to get dizzy in between when the > next dose is due (around 3 hours). Tailor your dosing schedule to how you feel. If you need 3 hour spacing in the morning, do that. If you can get away with 4 hour spacing later in the day, then do that too. 12.5 - 8 a.m. 10 - 11 a.m. 7.5 - 2 p.m. 2.5 - 6 p.m. AND 1 ml pred - 6 p.m. 2.5 - bedtime Barb Quote
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