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Here's my insurance situation: BCBS-FL has denied our appeal so the next step is to file a second-level appeal to the Division of State Group Insurance since the reason for the denial was the fact that this treatment is specifically excluded from my contract (the State Employee's PPO).

I spoke on the phone with the person who will make this decision and her only "qualification" is that she is a licensed nurse (NOT a doctor)! If that appeal is denied (which it likely will be) I have the option of requesting an administrative hearing with an "independent" hearing officer (an appointed judge who also happens to be an employee of the State of Florida).

I have found a local family who went through this same process last year. They went to the administrative hearing and their case was denied by the judge. The state's "expert witness" was a doctor who is Blue Cross & Blue Shield of Florida's senior medical director. I have been unable to find out what his area of specialization is, but the family I spoke with said that he did not seem familiar with the research he quoted and often contradicted himself.

The funny thing here (well, not so funny) is that there were 3 things the judge had to decide: was the cranial orthosis "medically necessary", was it "investigational/experimental" and was it a "cosmetic outcome" (to improve appearance and not function). He found AGAINST the state on the first two (it was medically necessary and was not investigational), but found IN FAVOR OF the state on the last one. Here's the part that I love (NOT!): He said that the evidence presented failed to establish that the treatment was "for correction of a congenital anomaly... while (the child's) torticollis was a congenital anomaly, her deformational plagiocephaly was not, and her DOC band treatment addressed her deformational plagiocephaly, not her torticollis."

HUH?!? How can someone separate the two? To my knowledge you can't be born with plagio... but the torticollis, which is congenital, causes it. Just thought this might be of interest to those of you who are also in the process of fighting your insurance companies. I'm SO mad. I still think I'm going to pursue this but in a way I now know it is futile.

Alison

mom to Leila, born 9/25/05 (tort/plagio, STARband 6/5/06)

Boynton Beach, FLWith MSN Spaces email straight to your blog. Upload jokes, photos and more. It's free! It's free!

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In a message dated 7/18/06 11:38:30 AM, amarcof@... writes:

To my knowledge you can't be born with plagio... but the torticollis, which is congenital, causes it. 

Actually, my ortho told me that babys CAN be born w/ plagio - though Tort can cause it and/or make it worse.

I know that my dd was born w/ facial asymmetries and they got worse as she got older. We didn't know about "plagio" then. We just knew she "wasn't quite right".

Jen

Mommy to 4...and 1 more!!!!

"Luli"

www.babiesonline.com/babies/j/jens5th/

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That's a good point-- I guess it's just that the plagio can't really be diagnosed until a bit later as the baby begins to grow (in other words, since most babies who are born vaginally have a rather "funny" head shape, you can't really tell if it's plagio until later when it doesn't just automatically correct itself). What I really think that the judge in the case of this other family's appeal didn't understand was the link between torticollis and plagio. It's taken me a long time to understand it too-- that's why repositioning alone doesn't always work, because if the muscle is still tight from the torticollis it can continue to distort the face and head as the child grows.Alison

Plagiocephaly From: DVJen@...Date: Tue, 18 Jul 2006 18:45:55 -0400Subject: Re: insurance woes

In a message dated 7/18/06 11:38:30 AM, amarcof@... writes:

To my knowledge you can't be born with plagio... but the torticollis, which is congenital, causes it. Actually, my ortho told me that babys CAN be born w/ plagio - though Tort can cause it and/or make it worse. I know that my dd was born w/ facial asymmetries and they got worse as she got older. We didn't know about "plagio" then. We just knew she "wasn't quite right".

JenMommy to 4...and 1 more!!!!"Luli"www.babiesonline.com/babies/j/jens5th/

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Alison,

don't give up. Sometimes appeals can be pushed through and you seem

to have all your info in order. :o)

Good luck and let us know what the outcome is.

Sandy Willow's Mom

Tort and plagio resolved 02/04

>

> Here's my insurance situation: BCBS-FL has denied our appeal so

the next step is to file a second-level appeal to the Division of

State Group Insurance since the reason for the denial was the fact

that this treatment is specifically excluded from my contract (the

State Employee's PPO).

>

> I spoke on the phone with the person who will make this decision

and her only " qualification " is that she is a licensed nurse (NOT a

doctor)! If that appeal is denied (which it likely will be) I have

the option of requesting an administrative hearing with

an " independent " hearing officer (an appointed judge who also

happens to be an employee of the State of Florida).

>

> I have found a local family who went through this same process

last year. They went to the administrative hearing and their case

was denied by the judge. The state's " expert witness " was a doctor

who is Blue Cross & Blue Shield of Florida's senior medical

director. I have been unable to find out what his area of

specialization is, but the family I spoke with said that he did not

seem familiar with the research he quoted and often contradicted

himself.

>

> The funny thing here (well, not so funny) is that there were 3

things the judge had to decide: was the cranial orthosis " medically

necessary " , was it " investigational/experimental " and was it

a " cosmetic outcome " (to improve appearance and not function). He

found AGAINST the state on the first two (it was medically necessary

and was not investigational), but found IN FAVOR OF the state on the

last one. Here's the part that I love (NOT!): He said that the

evidence presented failed to establish that the treatment was " for

correction of a congenital anomaly... while (the child's)

torticollis was a congenital anomaly, her deformational

plagiocephaly was not, and her DOC band treatment addressed her

deformational plagiocephaly, not her torticollis. "

>

> HUH?!? How can someone separate the two? To my knowledge you

can't be born with plagio... but the torticollis, which is

congenital, causes it. Just thought this might be of interest to

those of you who are also in the process of fighting your insurance

companies. I'm SO mad. I still think I'm going to pursue this but

in a way I now know it is futile.

>

> Alison

> mom to Leila, born 9/25/05 (tort/plagio, STARband 6/5/06)

> Boynton Beach, FL

> _________________________________________________________________

> Try Live.com - your fast, personalized homepage with all the

things you care about in one place.

> http://www.live.com/getstarted

>

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  • 2 years later...

I was going to suggest the same thing. Call again and ask for the Durable Medical Equipment coverage of a cranial band. I have BC/BS in MA and it's covered fully. I can try to locate the code they used in the claim on my online profile. This is an aside but for those people whose drug/pharmacy coverage does not cover things like Alimentum (which my Medco does not) you can call your insurance and it's typically covered under the Durable Med Equipment up to 1 year if you pay out of pocket and get reinbursed. just and FYI.

Ana- On Tue, Feb 24, 2009 at 4:28 PM, <nwilkens2275@...> wrote:

THAT is weird. I've never heard of them being lumped in with wigs!

That has to be wrong. Which state BCBS do you have? Typically, helmets

are included under Durable Medical Equipment as a dynamic orthotic

cranioplasty. DME includes braces, walkers, cruches, etc. A lot of

times it's denied coverage because they don't cover an device

that " changes or reshapes a body part. " It's not a cranial prostheses,

it's a cranial orthotic, so there has to be something wrong with the

way it was coded when submitted to BCBS. Who submitted your claim? I

would check to see what code they used on the claim form, that could

make a difference. I have BCBS of NC (FEP, so it could be a little

different), but the diagnosis I put on the claim was 754.0

(plagiocephaly) and the description of charge code was S1040 (Cranial

Remolding Orthosis), and I'm pretty sure those codes are universal,

cause I know others have mentioned them before (I think there's also

an L1040 or something like it that is a little different). Anyway, I

would definitely look into it further, some people have had success

working in conjunction with their HR department as well.

I just looked in my BCBS brochure and wigs and other cranial

prostheses (which aren't covered) fall under Orthopedic and Prosthetic

devices, which helmets are not. They are orthotic, not orthopedic. And

on the very next page lists DME and under it says, Continuous Passive

Motion (CPM) or Dynamic Orthotic Cranioplasty (DOC) devices, so if

your brochure is similar, I think it was billed under the wrong code.

Hope that helps!

Good luck!

Jake-2 (DOCBand Grad 9/08)

Jordan-5

>

> OUr insurance provider is Blue Cross/Blue Shield and of course we

have

> been denied coverage for our sons helmet.

>

> I called and the guy told me it wasn't covered becuase " Wigs,

> including cranial prostheses are not covered... " . Are the helmets

> considered cranial prostheses??? I am not surprised that they

denied

> it, and I am going to appeal, but seriously something like this is

> included with wigs?

>

> Robin

>

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