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Cohen's STARband seems big

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This may be a really stupid question, but.....

My son, Cohen, received his STARband on Tuesday. The Orthotist cut the helmet to fit correctly over his ears and over his eyes, so that's working out great. I'm worried that the darn thing is too big. I don't understand how it could possibly be working because it's not tight enough. When you look down on his head from the top you can see space between his head and the helmet. It seems to shift awfully easy and won't stay in place. Is this normal? I understand that he must grow into the blank spots, but there are a TON of blank spots! Also, we're still in the "work-in" period where we're on for one hour, then off for an hour. Every time I take it off Cohen has red spots in the same places. One on each cheek where the helmet rubs, and a red mark on his forehead where the "bossing" is. Is this normal?

We have an appointment next Tuesday for my other twin, Brody, to receive his STARband. Should I wait until then to ask questions?

Thanks,

Val

Cohen STARbanded 7/18

Brody to be STARbanded 7/25

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Hi Val,

The bands are made a little bit big to allow room for growth. Can you

post a picture of him in his band? I'd call your ortho and voice your

concerns. Hopefully he/she will be able to put your mind at ease. Keep

us posted.

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Hey Val, My son, Boulder's STARband is fitting him the same way. When he gets up in the morning it is really low in the front. It seems to shift a lot too. I am also wondering the same thing that you are. Boulder has had his helmet for 6 days. Thanks, - Boulder 7months - Plagio Georgia Worster <valerie_worster@...> wrote: This may be a really stupid question, but..... My son, Cohen, received his STARband on Tuesday. The Orthotist cut the helmet to fit correctly over his ears and over his eyes, so that's working out great. I'm worried that the darn thing is too big. I don't understand how it could possibly be working because it's not tight enough. When you look down on his head from the top you can see space between his head and the helmet. It seems to shift awfully easy and won't stay in place. Is this normal? I understand that he must grow into the blank spots, but there are a TON of blank spots! Also, we're still in the "work-in" period where we're on for one hour, then off for an hour. Every time I take it off Cohen has red spots in the same places. One on each cheek where the helmet rubs, and a red mark on his forehead where the "bossing" is. Is this normal? We have an appointment next Tuesday for my other

twin, Brody, to receive his STARband. Should I wait until then to ask questions? Thanks, Val Cohen STARbanded 7/18 Brody to be STARbanded 7/25

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My son had a space like that in his helmet too. Eventually it got smaller and smaller. Sometimes after an adjustment it feels pretty loose again but that doesn't seem to last long that way. Keep in mind some shifting is normal, I was told shifting up to an inch is even normal.

Amy (SC)

Liam - STARband since 4/26/06

On 7/20/06, stacy stroud <stacystroud@...> wrote:

Hey Val,

My son, Boulder's STARband is fitting him the same way. When he gets up in the morning it is really low in the front. It seems to shift a lot too. I am also wondering the same thing that you are. Boulder has had his helmet for 6 days.

Thanks,

- Boulder 7months - Plagio

Georgia Worster <valerie_worster@...

> wrote:

This may be a really stupid question, but.....

My son, Cohen, received his STARband on Tuesday. The Orthotist cut the helmet to fit correctly over his ears and over his eyes, so that's working out great. I'm worried that the darn thing is too big. I don't understand how it could possibly be working because it's not tight enough. When you look down on his head from the top you can see space between his head and the helmet. It seems to shift awfully easy and won't stay in place. Is this normal? I understand that he must grow into the blank spots, but there are a TON of blank spots! Also, we're still in the " work-in " period where we're on for one hour, then off for an hour. Every time I take it off Cohen has red spots in the same places. One on each cheek where the helmet rubs, and a red mark on his forehead where the " bossing " is. Is this normal?

We have an appointment next Tuesday for my other twin, Brody, to receive his STARband. Should I wait until then to ask questions?

Thanks,

Val

Cohen STARbanded 7/18

Brody to be STARbanded 7/25

How low will we go? Check out Messenger's low

PC-to-Phone call rates.

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Okay, Val. Here's my two cents...

Yes, they say some shifting is normal. My dd's helmet has always

fit 'big' on her. Actually, sometimes I would call it sloppy. It

doesn't just shift, it flops forward and back. But... even she has

shown great improvement. I think what happens is the ortho can turn

it into a passive band without meaning to. This isn't going to hurt

your child in any way (as far as I know) but it makes things much

slower. The child's whole head has to grow into the helmet instead

of just letting the flat spots grow out.

That being said, just be careful at your future appointments. It

would seem like Sophie was just starting to grow into her helmet a

bit, and they would shave out the whole thing and it would be sloppy

again. Yes, they do need to make adjustments and shave out spots

for the flat area to grow. But not so much to make it sloppy.

As far as I am concerned, it is much worse to have a band that is

too tight and forcing the head to grow in the wrong areas, like

upwards.

Good luck to you. This must be very draining with two babies. It

is funny how they grow to love their bands. Last night Sophie was

drinking her bottle after a bath and the helmet was sitting next to

her. She began to get sleepy. Then, she sat straight up, looked at

me and did the sign for please while pointing to her helmet. I

dutifully put the helmet back on and she peacefully snuggled down to

finish her bottle. Who would have thought it could feel so good!

Keep us posted!

- Boise, ID

Sophie - 14 months - STARhelmet 3/15/06

> >

> > This may be a really stupid question, but.....

> >

> > My son, Cohen, received his STARband on Tuesday. The Orthotist

cut the

> > helmet to fit correctly over his ears and over his eyes, so

that's working

> > out great. I'm worried that the darn thing is too big. I don't

understand

> > how it could possibly be working because it's not tight enough.

When you

> > look down on his head from the top you can see space between his

head and

> > the helmet. It seems to shift awfully easy and won't stay in

place. Is

> > this normal? I understand that he must grow into the blank

spots, but there

> > are a TON of blank spots! Also, we're still in the " work-in "

period where

> > we're on for one hour, then off for an hour. Every time I take

it off Cohen

> > has red spots in the same places. One on each cheek where the

helmet rubs,

> > and a red mark on his forehead where the " bossing " is. Is this

normal?

> >

> > We have an appointment next Tuesday for my other twin, Brody, to

receive

> > his STARband. Should I wait until then to ask questions?

> >

> > Thanks,

> > Val

> > Cohen STARbanded 7/18

> > Brody to be STARbanded 7/25

> >

> >

> > ------------------------------

> > How low will we go? Check out Messenger's low PC-to-Phone

call

> >

rates.<http://us.rd./mail_us/taglines/postman8/*http://us.rd

../evt=39663/*http://voice.>

> >

> >

> >

>

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Thank you all for your replies to my email about Cohen's helmet. I feel much better now. He seems to be doing fine. Tomorrow we're up to 4 hours at a time. Wish us luck!

Val

From: "Amy " <smith.amyl@...>Reply-Plagiocephaly To: Plagiocephaly Subject: Re: Cohen's STARband seems bigDate: Thu, 20 Jul 2006 13:37:57 -0400

My son had a space like that in his helmet too. Eventually it got smaller and smaller. Sometimes after an adjustment it feels pretty loose again but that doesn't seem to last long that way. Keep in mind some shifting is normal, I was told shifting up to an inch is even normal.

Amy (SC)

Liam - STARband since 4/26/06

On 7/20/06, stacy stroud <stacystroud@...> wrote:

Hey Val,

My son, Boulder's STARband is fitting him the same way. When he gets up in the morning it is really low in the front. It seems to shift a lot too. I am also wondering the same thing that you are. Boulder has had his helmet for 6 days.

Thanks,

- Boulder 7months - Plagio

Georgia Worster <valerie_worster@... > wrote:

This may be a really stupid question, but.....

My son, Cohen, received his STARband on Tuesday. The Orthotist cut the helmet to fit correctly over his ears and over his eyes, so that's working out great. I'm worried that the darn thing is too big. I don't understand how it could possibly be working because it's not tight enough. When you look down on his head from the top you can see space between his head and the helmet. It seems to shift awfully easy and won't stay in place. Is this normal? I understand that he must grow into the blank spots, but there are a TON of blank spots! Also, we're still in the "work-in" period where we're on for one hour, then off for an hour. Every time I take it off Cohen has red spots in the same places. One on each cheek where the helmet rubs, and a red mark on his forehead where the "bossing" is. Is this normal?

We have an appointment next Tuesday for my other twin, Brody, to receive his STARband. Should I wait until then to ask questions?

Thanks,

Val

Cohen STARbanded 7/18

Brody to be STARbanded 7/25

How low will we go? Check out Messenger's low PC-to-Phone call rates.

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Thanks for the advice. I'll watch him closely and talk with the orthotist in detail on Tuesday.

So, you taught your daughter to sign? I've considered that. My friend swears by it. The hard part is going to be convincing my husband to learn, too. What has your experience been like?

Val

From: "therices2000" <rices@...>Reply-Plagiocephaly To: Plagiocephaly Subject: Re: Cohen's STARband seems bigDate: Thu, 20 Jul 2006 19:34:24 -0000

Okay, Val. Here's my two cents...Yes, they say some shifting is normal. My dd's helmet has always fit 'big' on her. Actually, sometimes I would call it sloppy. It doesn't just shift, it flops forward and back. But... even she has shown great improvement. I think what happens is the ortho can turn it into a passive band without meaning to. This isn't going to hurt your child in any way (as far as I know) but it makes things much slower. The child's whole head has to grow into the helmet instead of just letting the flat spots grow out.That being said, just be careful at your future appointments. It would seem like Sophie was just starting to grow into her helmet a bit, and they would shave out the whole thing and it would be sloppy again. Yes, they do need to make adjustments and shave out spots for the flat area to grow. But not so much to make it sloppy.As far as I am concerned, it is much worse to have a band that is too tight and forcing the head to grow in the wrong areas, like upwards.Good luck to you. This must be very draining with two babies. It is funny how they grow to love their bands. Last night Sophie was drinking her bottle after a bath and the helmet was sitting next to her. She began to get sleepy. Then, she sat straight up, looked at me and did the sign for please while pointing to her helmet. I dutifully put the helmet back on and she peacefully snuggled down to finish her bottle. Who would have thought it could feel so good!Keep us posted! - Boise, IDSophie - 14 months - STARhelmet 3/15/06> >> > This may be a really stupid question, but.....> >> > My son, Cohen, received his STARband on Tuesday. The Orthotist cut the> > helmet to fit correctly over his ears and over his eyes, so that's working> > out great. I'm worried that the darn thing is too big. I don't understand> > how it could possibly be working because it's not tight enough. When you> > look down on his head from the top you can see space between his head and> > the helmet. It seems to shift awfully easy and won't stay in place. Is> > this normal? I understand that he must grow into the blank spots, but there> > are a TON of blank spots! Also, we're still in the "work-in" period where> > we're on for one hour, then off for an hour. Every time I take it off Cohen> > has red spots in the same places. One on each cheek where the helmet rubs,> > and a red mark on his forehead where the "bossing" is. Is this normal?> >> > We have an appointment next Tuesday for my other twin, Brody, to receive> > his STARband. Should I wait until then to ask questions?> >> > Thanks,> > Val> > Cohen STARbanded 7/18> > Brody to be STARbanded 7/25> >> >> > ------------------------------> > How low will we go? Check out Messenger's low PC-to-Phone call> > rates.<http://us.rd./mail_us/taglines/postman8/*http://us.rd./evt=39663/*http://voice.>> >> > > >>

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