Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Dear Mark, In 1999 at Columbia in NYC, I had a local with light sedation (Valium). This was on the quadriceps. Soon I will have another biopsy, a local, with Versed, on the deltoid muscle. When I was in my 20's I had major knee surgery and went into a 3-day coma, and they never knew why. Now we think we know... I had not thought of that before, what you said about a local possibly skewing the results. Makes sense. However, with a general there are gases and chemicals being used to keep you under. It's an issue I would guess that even the best scientists could debate. Take care. S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 I have had every known type of anesthetic for biopsies. I had one that they didn't feel they could put the muscle to sleep and it was painful, but not for long. The one done by Dr. Shoffner was local and he did anesthesize the muscle. The one done under Dr. Cohen's direction was a spinal. I think there are several opinions on this. I would also think that the scheduled tests might make a difference. laurie > From: BDS31@... > Reply-To: > Date: Wed, 29 Sep 2004 20:42:56 -0400 > To: > Subject: Re: possable problem > > Dear Mark, > In 1999 at Columbia in NYC, I had a local with light sedation (Valium). > This was on the quadriceps. Soon I will have another biopsy, a local, > with Versed, on the deltoid muscle. > When I was in my 20's I had major knee surgery and went into a 3-day > coma, and they never knew why. Now we think we know... > I had not thought of that before, what you said about a local possibly > skewing the results. Makes sense. However, with a general there are > gases and chemicals being used to keep you under. It's an issue I would > guess that even the best scientists could debate. > Take care. > S. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Dear Laurie, Thanks for your reply about anesthesia and muscle biopsies. If I am not incorrect, I think it is you who have had to endure more muscle bx's than anyone else on the list. I am having another one at the urging of my neuro, particularly now that I have grandchildren. My first bx was in 1999, on the quadriceps. This will be on the deltoid. I hope that the mito knowledge may have increased, even since 1999. She always believes that this illness is progressing, with which I agree. Thank you again. S. PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Barbara Not one I like to hold either. I haven't counted those in our family, but there have been several. laurie > > Reply-To: > Date: Tue, 05 Oct 2004 00:29:13 -0000 > To: > Subject: Re: possable problem > > > Laurie probably does hold the record for # of muscle biopsies > performed for diagnosis. I've had six, but only two were for > diagnosis (both did yield a diagnosis) while the other four were for > research. My son has had four, three of those for research. Other > family members have also had biopsies. I count a total of 15 in our > family in the last 20 years. Dubious distinction, though. Not a > Guinness record anyone would want to hold. > > Barbara > > > > >> >> >> I am the one who probably holds the record. I hope your muscle > biopsy goes >> well and they are able to get more information this time. my > deltoid biopsy >> was a snap, even if the resident and student made a mess when > sewing me back >> up. >> >> laurie >> >>> From: BDS31@w... >>> Reply-To: >>> Date: Mon, 4 Oct 2004 17:18:03 -0400 >>> To: >>> Subject: Re: possable problem >>> >>> Dear Laurie, >>> Thanks for your reply about anesthesia and muscle biopsies. If I > am not >>> incorrect, I think it is you who have had to endure more muscle > bx's >>> than anyone else on the list. >>> I am having another one at the urging of my neuro, particularly > now that >>> I have grandchildren. My first bx was in 1999, on the > quadriceps. This >>> will be on the deltoid. >>> I hope that the mito knowledge may have increased, even since > 1999. >>> She always believes that this illness is progressing, with which > I >>> agree. >>> Thank you again. >>> S. >>> PA >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 Hi RH, I believe that is going to Columbia Presbyterian Hospital to have her biopsy done. They did her last one in 1999( I think that was the yr.) and she is very happy with them. About Shoffner, I have never met him personally, but alot of people that I have spoken to say that if your biopsy shows no Mito, than he considers you as not having Mito. Alot of patients don't like that, and it can really hurt when someone only goes by a biopsy result. Also I have heard that he is NOT accepting every kind of insurance, so some people can't go to him to have a biopsy done, and this is also upsetting!! I am due for my second biopsy(first one was done in 1995) and have a referral to Dr. Shoffner. Just not sure when I will get there. Ann-Marie Re: possable problem , I live near PA, and I went all the way to Georgia to get my muscle biopsy. Where are you going (sorry if it's a repeat question or you already said)? Thanks, RH > Dear Laurie, > Thanks for your reply about anesthesia and muscle biopsies. If I am not > incorrect, I think it is you who have had to endure more muscle bx's > than anyone else on the list. > I am having another one at the urging of my neuro, particularly now that > I have grandchildren. My first bx was in 1999, on the quadriceps. This > will be on the deltoid. > I hope that the mito knowledge may have increased, even since 1999. > She always believes that this illness is progressing, with which I > agree. > Thank you again. > S. > PA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 Ann Marie Dr. Shoffner did my first fresh biopsy. I don't think it is that he won't take some insurances (things may have changed), but he would not even set up an appointment until he had it in writing what the insurance would pay. This took almost a year at the time, but hopefully this has improved. Dr. Shoffner uses a lower percentage to consider a complex as being impaired compared to some of the other docs. I sure wish they were more consistent in the diagnosis aspect of mito. laurie > > Reply-To: > Date: Tue, 5 Oct 2004 19:10:08 -0400 > To: > > Subject: Re: possable problem > > Hi RH, > > I believe that is going to Columbia Presbyterian Hospital to have her > biopsy done. They did her last one in 1999( I think that was the yr.) and she > is very happy with them. > > About Shoffner, I have never met him personally, but alot of people that I > have spoken to say that if your biopsy shows no Mito, than he considers you as > not having Mito. Alot of patients don't like that, and it can really hurt when > someone only goes by a biopsy result. > > Also I have heard that he is NOT accepting every kind of insurance, so some > people can't go to him to have a biopsy done, and this is also upsetting!! > > I am due for my second biopsy(first one was done in 1995) and have a referral > to Dr. Shoffner. Just not sure when I will get there. > > Ann-Marie > > Re: possable problem > > > > , > > I live near PA, and I went all the way to Georgia to get my muscle > biopsy. Where are you going (sorry if it's a repeat question or you > already said)? > > Thanks, > RH > > > >> Dear Laurie, >> Thanks for your reply about anesthesia and muscle biopsies. If I am > not >> incorrect, I think it is you who have had to endure more muscle bx's >> than anyone else on the list. >> I am having another one at the urging of my neuro, particularly now > that >> I have grandchildren. My first bx was in 1999, on the quadriceps. > This >> will be on the deltoid. >> I hope that the mito knowledge may have increased, even since 1999. >> She always believes that this illness is progressing, with which I >> agree. >> Thank you again. >> S. >> PA >> >> >> >> Quote Link to comment Share on other sites More sharing options...
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