Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 I just looked that up the other day. http://www.ghr.nlm.nih.gov/ghr/disease/ehlersdanlossyndrome Click on each type on the site above for its individual statistics. TYPE Prevalence All Types about 1 in 5,000 births worldwide. hypermobility as many as 1 in 10,000 to 15,000 people. classical fewer than 1 in 20,000 to 40,000 people. vascular 1 in 100,000 to 200,000 people have the condition. kyphoscoliosis fewer than 60 cases have been reported worldwide. arthrochalasia very rare; about 30 cases have been reported worldwide. dermatosparaxis fewer than 10 cases have been reported worldwide. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 Jen, where is your friend going to school for speech pathology? I'm a speech pathologist and did the huge survey... What year is she in school? Is she still an undergrad or grad? If you want to pass on my email address to your friend and her profs, please feel free to do so... Bonnie Heintskill EDS Variant Milwaukee WI area Prevalence > Hi all, > > My friend is in school for speach pathology and we were talking > about EDS and the speach problems that go along with it. Quote Link to comment Share on other sites More sharing options...
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