Adam - Re: Alice..Thanks for all your help..great ideas...Long post

[Guest guest]

Hi Alice,

I just tried putting protein powder in the shake I had this morning.

Waiting to see how it does. I will have to wait for a trip to the

food store before trying the recipes. I will let you know how it

goes. Keeping my fingers crossed. :-)

So you are the one who recommended Dr Korson! You and Malissa, who

also is a patient of Dr Korson. He is a very good doctor and very

caring and conscientious. Unfortunately, he is totally overwhelmed

with the amount of patients he has. I feel bad for him. I don't

know how he does it and keeps his sense of humor at the same time.

The Director of their Metabolic Department just retired. They knew

about it for a year, and still when she left in August, they had no

replacement for her. Dr Korson has had to take on 180 of her

patients in addition to his own. He had too many patients already

and I doubt he is taking any more. He is supposed to be getting

another physician to help in January, but orignially it was supposed

to be September and they moved it back.

YOur grandson is also sick with Mito, Alice? I am SO sorry to hear

that. How many people in your family are affected? I have three

children. One has behavior that I identify as preserving energy,

just like I have done. I think he may end up with the diagnosis.

Another child had ITP for two years, but has been okay for the past 3

years. One child seems perfectly healthy. I haven't had a biopsy

yet, as Dr Korson said it could wait, that we should focus on what we

could do to get me to a better place first. I couldn't have traveled

any way. But I hope to have it, to help identify something that

could help my kids know if they could have it or not.

Thanks again Alice...I will let you know how things are going.

:-)

Adam

> No thanks are necessary. This is why we are here and I'm very sure

that your day will come when you can offer just as much if not more

assistance to someone else. I do hope that the food ideas help and

I'll be anxious to read your reports on your attempts with great

anticipation that you are finding that some of the suggestions

worked. Sometimes, it's easier for someone looking in from the

outside to come up with ideas that could help. The real job is your

attempting them and a good result is certainly the desired goal.

>

> I'm glad you are seeing Dr Korson and actually think I was the one

who recommended him to you. I soundly believe that his interception

in Branden's (my grandson) care a few years ago saved his life and

I'll always be grateful for his willingness to help Branden's

pediatrician when she contacted him. He is a fine doctor and in

your area, you cannot do better. I'm from RI but no longer live in

New England but if I did, he would be my doctor of choice there.

Please tell us all about your appointment that is coming up soon.

>

> Yummy - the yogurt shake sounds delicious and a great idea. Yogurt

is very good for us. I hope you enjoyed it. Hopefully, some of

these ideas will help you to feel better so that you can come to your

computer more often and be a part of this great family that really

cares.

>

> Now - Sleep Study - Sounds like a must do to me.

>

> Have a great day!

>

> Alice

>

>