Re: Mild Lupus

[Guest guest]

I think you have all the right to request a repeat of the test. It was an

easy situation with me, my original tests 17 years ago came all positive for

Lupus and you know if they did so many years ago, then there is absolutely

no question.

I completely don't agree with the use of the word " mild " . I was considered

" mild " for many years, but that doesn't change the fact that when I started

I was serious, but then went into remission. When I flared again after a

long remission, it was not mild at all. It's just an illness that can go

either way, and hopefully it will just get " milder " in your case. The

seriousness depends on the particular flare you are experiencing. Then, it's

easy for a healthy doctor to diagnose something as mild. He/She does not

feel the pain or the limitations or the suffering of the person they are

diagnosing. I normally put a happy face on, I have a great pain tolerance. I

make jokes when I get admitted into a hospital, even if I am in pain. Many

doctors comment that I do not have a disposition of a sick person, but

again, it doesn't mean that I am experiencing mild symptoms.

Take care .

Mojo

Mild Lupus

>

> The thought of having " mild " Lupus scares the heck outta me. I know I

> am a wimp but I can't help but think, if this is mild, Please God don't

> let me progress to moderate or severe.

>

> I went to my PCP Tuesday and started crying. He has been my Dr. for

> several years and is a very compassionate person. I think he ended

> feeling worse than me. But he did put me on a steroid regime. So far I

> am not seeing a lot of improvement but I am giving it time. Normally

> the Naproxen and Ultram is enough but lately they are not even touching

> the pain. The Dr. offered to give me a stronger narcotic but I am such

> a cheep date that all narcotic's tend to do is put me to sleep, for

> days. Hehe I cannot do that since, although my work is very supportive,

> I don't think they would appreciate me analyzing samples high as a kite.

>

> I have a question about the testing for Lupus. I had the testing done

> about 6 weeks ago and my ANA was neg and some of the other indicators

> were " borderline " abnormal. Is this because I was not currently

> experiencing a flare? Should I call my Rheumy and ask her to redo the

> blood work? I would like to have a firm diagnosis since my hubbies

> " cancer policy " will cover my Lupus. And I am getting a new supervisor

> and having a Dr. statement would help me break him in right.

>

>

>

>

>

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