Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 In a message dated 9/9/04 11:56:10 PM Central Daylight Time, writes: > OK , things are the same , but now something scary. > Barry is having temporary blindness. Complete > blindness where he cant see anything at all for > periodic moments. Anyone ever hear of this happening > ? This is what initially brought my husband to a dx of MELAS. He woke up one morning and couldn't see right. Several hours later at the ER he had pretty much lost all site. The Doc's couldn't figure out what was going on.. they ran every test. Then the seizures started, then unresponsive for a few days. After some time in the hospital, now we know why he's only 5'1, 120 pounds with a hypotrophic cardiomyopathy, diabetes, seizures, fatigue and significant hearing loss. The early deaths and sickness in his family now has a name. So, yep... I have heard of the temporary blindness! It is scary... sorry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 It has happened to me one time. In one eye, completely blind for about 15 or 20 mintues. Very scary. Came on sudden, sure hope it never happens again. they did all sorts of test on me and couln't find a reason. One very interesting thing though is that once I started on 02 nightly, my severe eye muscle pain stopped pretty much. I still have double vision and when I go into fatigue mode the eyes will hurt again, but if I don't try to read or use my eyes alot I don't have the pain that I use to have before the 02 was started. Smiles to you, Re: Digest Number 3417 > In a message dated 9/9/04 11:56:10 PM Central Daylight Time, > writes: > > > OK , things are the same , but now something scary. > > Barry is having temporary blindness. Complete > > blindness where he cant see anything at all for > > periodic moments. Anyone ever hear of this happening > > ? > > This is what initially brought my husband to a dx of MELAS. He woke up one > morning and couldn't see right. Several hours later at the ER he had pretty > much lost all site. The Doc's couldn't figure out what was going on.. they ran > every test. Then the seizures started, then unresponsive for a few days. > After some time in the hospital, now we know why he's only 5'1, 120 pounds with a > hypotrophic cardiomyopathy, diabetes, seizures, fatigue and significant > hearing loss. The early deaths and sickness in his family now has a name. So, > yep... I have heard of the temporary blindness! It is scary... sorry. > > > Quote Link to comment Share on other sites More sharing options...
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