Re: Where are we all from?

[Guest guest]

HELLO PAM THIS IS JANICE HARRELL,I HAVE BEEN TRYING TO

FIND SOMEONE IN MY AREA THAT HAS MSA.BUT I DON,T KNOW

IF I AM DOING SOMETHING WRONG OR WHAT BUT I TRY TO

CONTACT PEOPLE BUT I SEEM TO GET NO REPONSE,I DON,T

KNOW WHAT I AM DOING WRONG.WELL ANY WAY I LIVE IN

JACKSONVILLE FLORIDA,AND I WOULD LOVE TO BE A CONTACT

PERSON IN MY AREA.I LIVE AT 458 WEST 59 ST.

JAX.FLA.32208 MY NO. IS 1- PLEASE CONTACT

ME IF YOU KNOW OF ANYONE IN MY AREA....THANK YOU

JANICE HARRELL

--- CAROLE A BARBER BARBER.CAROLE@...> wrote:

> Hi Pam:

>

> Carole Barber

> N. Versailles, PA (about 20 miles east of

> Pittsburgh)

> USA

>

> Just a little background info for new members. I

> have been on the list

> since 9/95 when my sister, , was dx. at

> Vanderbilt. She began

> having incontinence problems around 1990. That was

> the first really

> noticeable symptom. SDS progressed very rapidly in

> her. By early 96

> she was in a w/c most of the time as her symptoms

> worsened. In 9/98, she

> peacefully left us late at night while sleeping.

> She had decided she did

> not want a trac/peg tube or to be kept alive by any

> other means. So, we

> all respected her decision.

>

>

>

>

> On Mon, 26 Nov 2001 11:56:19 -0400 " Pam Bower "

> pbower@...>

> writes:

> > Please write and let me know where you are from:

> >

> > City/Town:

> > State/Province:

> > Country:

> >

> > If you live in a small town or suburb tell me what

> large city you

> > are close

> > to.

> >

> > I keep a database and that allows people to

> connect with each other.

> > I just

> > noticed today that there are 4 families from

> Omaha, Nebraska.

> > Hopefully

> > that is enough for them to start having meetings.

> >

> > Many people think they are the only one from their

> area who is

> > tackling

> > Shy-Drager/MSA but many have found people close to

> them through this

> > forum.

> > Even if you can't get out to attend meetings you

> can still keep in

> > touch

> > with others in your area by phone or email. If

> you'd like to be a

> > contact

> > person for your area please let me know that too

> and I'll try to

> > make sure

> > you know about new people who join from your area.

> >

> > Take care,

> > Pam

> >

> >

> >

> >

> > If you do not wish to belong to shydrager, you may

>

> > unsubscribe by sending a blank email to

> >

> > shydrager-unsubscribe

> >

> >

> >

> >

> >