Re: Appointment with Mito Dr.

September 9, 2004

Hi Joanne,

If you don't mind, can I ask a few questions?

1) Have you had a muscle biopsy? If so, what did it show?

2) Do you currently have a diagnosis or are they trying to rule out

a mito disorder?

3) What type of tests did Dr. Enns just order?

Thanks for the info.

Lynn

> I wanted to let you all know how my appointment with Dr. Enns went

> yesterday. It was pretty much what I expected. From the waiting

> room which was crowded with children to the content of the

> appointment. He was very up front with me in saying that there

was

> a good chance that we would never find definative proof of Mito.

> That was discouraging to hear. But I guess he doesn't want me to

> get my hopes up. He says that I don't really fit in to one of the

> more common profiles of Mito. But that doesn't mean that I don't

> have it. He found weakness present. That is refreshing because so

> many doctors have just not seen it or written it off. He ordered a

> boat load of tests. He says that we will just have to look at the

> results of those and go from there. I had him go through the

> supplements that I am taking to makes sure they were what I need.

> He said everything was on track except that I might want to double

> up on my B-complex and switch to Q-gel. I knew about Q-gel from

this

> list, but have been finishing up what I have of the other. I have

> been planning on changing anyway. So it was pretty much what I

> expected. Thank you everyone for you help, concern and prayers.

>

> Joanne

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